Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)

Back of leg and foot


Poor skin, open ulcers, massive swelling on the back of the leg and whole of foot 8 months prior to amputation

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About the Author
I'm a barrister, advocate & sufferer of Complex Regional Pain Syndrome (CRPS). I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS. However I want to help all those affected by this devastating condition which includes those living with CRPS, their loved ones, families, carers and friends. Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!
  1. KAREN O'Neill Reply

    So very sorry for all the extreme surgeries you have had to endure due to CRPS! I was diagnosed with “RSD” in 1988 after Carpal Tunnrl Surgery. Very long story but I live in constant pain……ran entire gamut of procedures, meds, blocks etc. to no avail. So Opioids are now my fix LOL Will probably be on Saboxen next but CRPS Has now taken over my entire right side. Pain is relentless, so is fear of future. No husband not children. Cater…. 88 yr old Mom. Very scared of being alone! Don’t want to go into Nursing Home! Don’t know what is next and really hate thinking of it. Any ideas of USA ways of care? Gentle Hugs to you dear, you well deserve them. Thanks for this wonderful site and your story….goodbye with tears in my eyes.

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