Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)

BURNING NIGHTS CRPS MEET ‘N’ GREET UK

2015-11-02
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BURNING NIGHTS MEET ‘N’ GREET UK for CRPS SUFFERERS

 

Burning Nights has now confirmed the Meet ‘n’ Greet for CRPS Sufferers and is planned for SATURDAY 7th NOVEMBER 2015 at the Birmingham Marriott Hotel.

 

As you know November is seen as CRPS awareness month and we think that this is going to be an excellent opportunity for you to meet other CRPS sufferers and get to know more about each other!

 

 Burning Nights Meet n Greet 4 CRPS Sufferers announcement

Burning Nights Meet n Greet 4 CRPS Sufferers announcement

 

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THE MEET IS NOW FULL!! 

You will have received your ticket now by email, if you haven’t and you have a confirmed place please let us know straight away so we can check our list and re-issue your ticket.

** Please note – If you are booking to stay at the Birmingham Marriott Hotel, please CONTACT the hotel DIRECTLY when making your booking especially if you have made a request to have a disabled room. Please remember that it is a REQUEST ONLY and it cannot be guaranteed. This is why you MUST contact the hotel first before making a booking. You don’t want to get to the hotel and find you are disappointed.**

BURNING NIGHTS CRPS MEET n GREET UK DETAILS

  • We are holding the event in a conference/event room and the hotel we have been told is fully accessible including disabled toilets.
  • The event will be held at the BIRMINGHAM MARRIOTT HOTEL, FIVE WAYS, BIRMINGHAM, B16 8SJ (See below)
  • STARTING at 9.30am
  • FINISH at approximately 5pm / 5.30pm
  • LUNCH will be provided
  • REFRESHMENTS provided throughout the day
  • There’ll be 3 outside guest speakers giving talks
  • 1 of the speakers we have is MR RICHARD LOWES a solicitor from BLB Solicitors in Bath (See below for details)
  • Another speaker will be GEMMA COLLIS, GB Wheelchair Fencer and London 2012 Paralympian as well as a CRPS sufferer (See below for her details)
  • The final professional speaker is DR JENNY LEWIS form RNHRD Bath Pain Clinic service (See below)
  • We are also having 4 CRPS sufferers and 2 carers recounting their personal stories
  • We are looking at having a RAFFLE as well on the day! (See below for more details)
  • There will be time at the end of the day for a mingle with each other, with Gemma Collis, Mr Lowes and his colleague
  • LIMITED SPACES UP TO 65 PEOPLEIt is NOW FULL!
  • The meeting will be videoed and a highlight video produced, so we can upload it to the website. If you’re unable to come along you will still be able to see what has gone on by watching our short highlight video
  • We will also be treated to the delights of Larissa Ralph with her delicious, specially made and created cupcakes (See below for more info)

 

**We will also be announcing a couple of very special items including the fact we have begun our Charity registration and also we have gained a top UK company as our main sponsor! More details will be given out at our event, however it will all be included on our website following our Meet & Greet conference.**

 

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TICKETS

  • If you have confirmed your ticket and have not given us your email please contact us on the email address below and let us know an email address for us to send you a FREE ENTRY TICKET
  • Your free tickets will have already been emailed to you to the email address you have given to us previously. If you haven’t received it or you’ve lost it, please let us know so we can re-issue your tickets.

 

BIRMINGHAM MARRIOTT HOTEL 

** Please note – If you are booking to stay at the Birmingham Marriott Hotel, please CONTACT the hotel DIRECTLY when making your booking especially if you have made a request to have a disabled room. Please remember that it is a REQUEST ONLY and it cannot be guaranteed. This is why you MUST contact the hotel first before making a booking. You don’t want to get to the hotel and find you are disappointed. Their phone number is 0121 452 1144**

 

SPEAKERS

BLB Logo

RICHARD LOWES, Solicitor from BLB Solicitors, Bath

“CRPS in LITIGATION”

W: www.personalinjurysolutions.co.uk

T: 01225 462871

Our other SPEAKER for the day is:

Gemma Collis Wheelchair Fencer

Gemma Collis Wheelchair Fencer

GEMMA COLLIS who not only is a CRPS sufferer but is also the GB Wheelchair Fencer and London 2012 Paralympian.

Gemma will be talking about her life with CRPS as well as being an athlete whilst also coping and dealing with the stresses and strains of having a chronic pain condition like CRPS.

E: gemmacollisgbfencer@gmail.com

T: @GemmaCollis

 

Gemma Collis GB wheelchair fencer & 2012 Paralympian

Gemma Collis GB wheelchair fencer & 2012 Paralympian

 

Gemma Collis wheelchair fencer in action

Gemma Collis wheelchair fencer in action

 

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OUR 3rd SPEAKER of the day is:

DR JENNY LEWIS PhD, MSc, Dip COT

Dr Lewis has kindly agreed to speak for us in the morning on our Burning Nights CRPS Support Meet & Greet day. Dr Lewis will be talking about Body Perception Disturbance in CRPS. She works at the Royal National Hospital for Rheumatic Diseases in the chronic pain services in Bath. Dr Lewis is a Clinical Research Occupational Therapist whose speciality is Complex Regional Pain Syndrome (CRPS).

 

For more information on Dr Lewis, please visit the RNHRD Chronic Pain Services webpage.

W: www.rnhrd.nhs.uk/our-services/chronic-pain/expert-team

 

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RAFFLE 

That’s right! Yes we are holding a raffle to help us fundraise to become a charity for this life-altering condition; CRPS. It is with great thanks that we have received a large number of brand new items from a number of Burning Nights followers and CRPS sufferers and their families and friends.

> 1 of those prizes will be a painting created just for our fundraising raffle from a fellow CRPS sufferer; NATHALIE SHERIDAN. Nathalie has kindly agreed to create us a special painting just for us to raffle to help us fundraise to become a charity. If you’d like to see more of her work and possibly purchase something from her website or Etsy Shop, then here’s her details:

W: www.nathaliesheridanarts.co.uk/

Etsy Shop: www.etsy.com/uk/shop/nathaliesheridanarts

Tickets for the raffle will be available to be bought throughout the whole day and the raffle will be drawn at the end of the day.

 

CUPCAKES

Larissa Ralph who is also a fellow CRPS sufferer, will be creating and bringing in some of her beautifully designed and created cupcakes to sell on the day. She is kindly donating the money to us at Burning Nights. Here are a few pictures of cupcakes and cakes that Larissa has made before for others:

Burning Nights meet & greet Larissa Ralph cakes 1    Burning Nights meet & greet Larissa Ralph cakes 2    Burning Nights meet & greet Larissa Ralph cakes 3

Burning Nights meet & greet Larissa Ralph cakes 4    Burning Nights meet & greet Larissa Ralph cakes 5    Burning Nights meet & greet Larissa Ralph cakes 6

 

PRODUCT TABLE

There will also be a product table at the Meet & Greet with a range of our products for you to buy. Visit our online SHOP to give you more information on our products. We will also be bringing along a few different sizes of our Unisex t-shirt from our t-shirt campaign TBOOM. You can buy different styles including Ladies’ style, vest, unisex and junior size direct from TBOOM.

www.tboom.co.uk/burning-nights-crps-support

 

If you wish to be added to the final reserve list please can you email us on:-

victoria@chronicpaincrps.com

 

We are hoping this will be an excellent opportunity for you all to meet other CRPS sufferers, hear about other sufferers CRPS stories, listen to a couple of guest speakers and generally get to know each other.

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Burning Nights CRPS MEET n GREET UK 2

Thank you all!

 

Please feel free to share this post with any CRPS sufferer that you know, they may also wish to join us.

If you wish to comment on the Burning Nights CRPS Meet n Greet UK post please do so below, or share it on Social Media using the share buttons below!

 

Last Updated: 02/11/2015

LET’S SPREAD AWARENESS of CRPS! Burning Nights logo

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About the Author
I'm a barrister, advocate & sufferer of Complex Regional Pain Syndrome (CRPS). I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS. However I want to help all those affected by this devastating condition which includes those living with CRPS, their loved ones, families, carers and friends. Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!
  1. Mum and dad

    Yes please to both of us I will help with the raffle .xx

  2. Paige Howitt

    I would like to secure one place for myself please? Thanks

  3. Aj hollywood

    I’d really like to attend this. One ticket for myself please. I will be travelling from London. I can’t miss the opportunity to meet other people suffering with the same condition. Many thanks.

  4. Jenny McDonald

    me my mum and dad. Would love to attend this not meet anyone else with CRPS.

    • Victoria Abbott-Fleming

      Hi Jenny! Thanks for letting us know that you need 3 tickets, I’m not certain though what you mean when you say “not meet anyone else with CRPS” I am certain this is a typo but just checking!

  5. Wendy

    Hi Victoria
    Is there any chance of this being repeated at Walton?
    Thanks

    • Victoria Abbott-Fleming

      Hi Wendy,

      It could be difficult to have the next Meet & Greet at the Walton as it is a hospital clinic whereas this meet on 7 November is at a Hotel conference room. However we are not certain where our next one will be yet.

      Thanks for your question!

  6. Lauren Hitchcott

    I would like to request a ticket for this if at all possible. I realise it is late but would love the opportunity to be able to finally meet other sufferers. Thank you in advance.

    • Victoria Abbott-Fleming

      Thank you so much Laura for your request for a free ticket to our Meet & greet in November, unfortunately we are jammed full and have been since end of June. However we have a reserve list if anyone does cancel then we put people off our reserve list in their place, so we can put you on our reserve list. No doubt when we have another meet next year then you will have another opportunity to come along and we will have to book a larger venue.
      Many thanks for your interest 🙂

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