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Burning Nights support groups for sufferers, families, friends

CRPS SUPPORT GROUPS

2017-09-22

CRPS Support Groups

Burning Nights CRPS Support will be starting regular CRPS support groups beginning with a pilot group in Manchester city centre.

Our 1st support group was held on FRIDAY 4th MARCH 2016 at 3 pm at the Manchester city centre offices of Irwin Mitchell solicitors.

Living with Complex Regional Pain Syndrome (CRPS) can make you feel as if no-one knows or understands how you feel, as you are surrounded by friends and family who don’t have the condition. But by joining a face to face support group for CRPS, those feelings of being alone, isolated and vulnerable are what we want to change.

 

UPDATE FOR FUTURE CRPS SUPPORT GROUPS

To check if we have any support groups coming up please keep an eye on our EVENTS page, where you will find all the details for future CRPS support groups. We have 2 support groups running in 2017 which are in MANCHESTER and BRISTOL. If you’re interested in starting up a CRPS support group in your area, please contact us and let us know. We can then advertise for people in that area. Our founder, Victoria will usually come to your 1st support group to show you how things run and the relevant paperwork needed.

 

We are now looking at setting up CRPS support groups in the following areas:

  • Sheffield
  • Gatwick/Dorking
  • Fife, Scotland
  • Edinburgh, Scotland

If you’re interested in joining any of the above CRPS support groups please contact us and tell us which are you would be interested in. We need approximately 5-10 or more people interested to make the group viable to run. If you are interested in running a support group in your area please get in touch with us.

 

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June CRPS Support Group

Our June CRPS support group in Manchester was held on FRIDAY 17 JUNE starting at 2.30pm, in the same place – Irwin Mitchell solicitors’ Manchester offices. Please see below for the full address.

If you would like to come along please send us an email to support@burningnightscrps.org or give us a ring on 01663 795055 and let us know you’ll be coming along!

 

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April CRPS Support GROUP

Due to our 1st CRPS support group in March being a great success, our next support group in Manchester will be on FRIDAY 22 APRIL starting at 2pm in the same place in Manchester – please see below for the full address.

If you would like to come along please send us an email to support@burningnightscrps.org or give us a ring on 01663 795055 and let us know you’ll be coming along!

 

Burning Nights CRPS Support groups 1

 

These regular monthly groups are there to give you help and support as CRPS sufferers and your carers, loved ones, family members and friends. If there are enough non sufferers we will be able to split up the 2 groups (non sufferers and sufferers) to allow you to be able to chat and get help from others just like you. One of the ways in which those who suffer with CRPS find help and relief is when you meet up with others in the same situation as yourselves. A self-help support group provides an opportunity for those meetings to occur.

 

We will hopefully have a professional speaker for around 30-40 minutes at the start of the group and then for the remainder of the time to chat between everyone. If you would like to hear from a specific speaker or learn about a certain topic or even have an arts & crafts session, then please get in touch with us and give us the details.

 

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We want to provide support to you all and to help you cope better with your condition; Complex Regional Pain Syndrome. Thee groups are there so you can share your problems, feelings, ideas and information with others who are undergoing similar experiences. But we can’t solve all of your problems, nor are they there to replace the services of a pain specialist, doctor or other health care professionals that may be involved in your care.

 

[Tweet theme=”basic-full”]Suffer with #CRPS ? Live in or near Manchester? Why not join other sufferers in face2face CRPS support group? Contact Burning Nights 4 info[/Tweet]

 

AIMS OF THE CRPS SUFFERERS SUPPORT GROUP

The aims of the CRPS support groups may change over time with your help, however we feel that our CRPS support groups are there:

  • To enable CRPS sufferers to meet on a regular, monthly basis to provide mutual support
  • To enable you as CRPS sufferers to meet others in a similar situation and to share your feelings and experiences
  • To provide sufferers with an opportunity to learn more and understand about the condition, so you can educate yourself, family members, friends, work colleagues about CRPS
  • To help provide you with emotional support and coping mechanisms
  • To draw strength from other CRPS sufferers’ experiences
  • To share information around care, healing and various treatments available
  • To build a social network of other CRPS sufferers
  • To improve the quality of your life living with CRPS
  • To try to reduce isolation and vulnerability that comes with living with a chronic pain condition such as CRPS

Please be assured that confidentiality is very important to us at Burning Nights CRPS Support.

 

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If we do have enough non-sufferers, then we can split the group into sufferers and non-sufferers to enable the carers, family members, friends and loved ones time to be able to talk and meet with others who are in a similar situation in caring for someone suffering with Complex Regional Pain Syndrome (CRPS).

 

[Tweet theme=”basic-full”]Our next Burning Nights #CRPS Support group meeting in Manchester city centre on FRIDAY 22 APRIL at 2pm! Contact us 4 details[/Tweet]

Are you interested in coming along to these regular monthly support group meetings? Yes? Why not get in touch and let us know you’re interested or you wish to come along to our next support group on FRIDAY 17 JUNE 2016 at 2.30pm! Refreshments will be provided FREE of CHARGE at the group, so no worries! Here are our contact details:

BURNING NIGHTS CRPS SUPPORT

Email: Support Group Email 

Phone: 01663 795055

Contact Us page

Facebook: www.facebook.com/chronicpainCRPS

Twitter: @BNightsCRPS

 

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If the group is successful then we will roll out the support group programme to the rest of the UK. If this is something that you would be interested in coming along to, please contact us either by email, contact us page or on social media. Please feel free to share our CRPS Support Groups blog on social media or on your own blog.

 

WOULD YOU LIKE TO SET UP A CRPS SUPPORT GROUP IN YOUR AREA WITH BURNING NIGHTS?

We are now looking at expanding our CRPS support groups to other areas of the country. Would you be interested in running a support group in your local together with us at Burning Nights? If this is something that you would be interested in, please contact us to discuss how we can help you set up the group, the necessary flyers and help with advertising your group.

 

You’ve now read what the aims of our CRPS support groups are and how we plan to help you, it’s your turn now – what do you think about joining other sufferers like yourself? These support group meetings can help you cope better and feel less isolated as you make connections with others facing similar challenges and experiences as yourself, so why not join us?

 

Last Updated: 22/09/2017

LET’S SPREAD AWARENESS of CRPS! Burning Nights orange side version 

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About the Author
I'm a barrister, advocate & sufferer of Complex Regional Pain Syndrome (CRPS). I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS. However I want to help all those affected by this devastating condition which includes those living with CRPS, their loved ones, families, carers and friends. Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!
  1. Mike Karnyski Reply

    Hi I belong to a Support Group in Buffalo NY.We meet every 4th Monday of the the month.It is a very informative meeting discussing how everyone is doing and to find out about the different treatments we are going through.At times we cry and sometimes just have a good laugh,it is the best thing having face to face meetings.We also invite family and friends to attend so they can see that the person they are there with is not alone in this battle with CRPS.

    Good Luck
    Mike

  2. Helen Evans Reply

    Hi I’m in the East Midlands. I have had CRPS since 2009. Is there any support Groups near me?
    Or can you help me set up one ? To support sufferers in the Midlands.
    Look forward in speaking to you all soon.
    Helen xx

    • Victoria Abbott-Fleming Reply

      Hi Helen,
      Currently we have 2 support groups running – Manchester and a new one starting in Bristol on Friday 18 November. If you would be interested in starting up a support group in your area, we can help you with the necessary paperwork needed for the group. I would come along to the first support group to show you the ropes and then after that you could run the groups when you would like. We usually say every 6-8 weeks because of the workload and not putting too much on you.
      If you’re interested in setting up a group please email support@burningnightscrps.org
      Best Wishes,
      Victoria and the team x

  3. Kay Reply

    I love the work you all are doing.,changing people’s lives because we are leaning more about this we call crps. But why do I still have to tell my doctor every time I see them. What it is I have., then they look thought all my notes. See I’m not in a good way and try to assist my needs. but still comes back to we need more groups in all areas. So more people can assist on Bring more support and awareness in ever area and not just the the few groups in the big city’s. I find it so hard to understand why I got this. The longer I live with this not knowing what I’m dealing with and how to get the right treatment and support for my symptoms I could really do with leaning more about it. for my family that could really do with support,leaning more about why and how to help in a supporting way. So I don’t feel like I’m letting them down.

    • Victoria Abbott-Fleming Reply

      Hi Kay

      Thank you for posting about the work we do as well as bringing more support groups in other areas. Unfortunately we are restricted in that we need volunteers to run these support groups as we don’t have sufficient volunteers from our core team. However if you’d like to consider running a support group in your area please do contact us as we do want to start up groups in other areas especially in London or Brighton, Sheffield, Gatwick and Leicester/Market Harborough.

      If you could spare 5 minutes to answer our charity survey as your answers will help us improve the areas we are lacking in as well as realise the areas we are exceeding at. Here is the link – CHARITY SERVICE USER SURVEY

      Many thanks,
      Victoria

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