CRPS Support Groups
Burning Nights CRPS Support began a regular CRPS support groups in Manchester city centre back in March 2016 with the aim of setting up other support groups in other areas of the UK.
Our 1st support group was held on Friday 4th March 2016 2016 at 3 pm at the Manchester city centre offices of Irwin Mitchell solicitors and we’ve held them roughly every 2-3 months since that date. We also set up another CRPS support group in Bristol/Bath area which runs ad hoc.
Living with Complex Regional Pain Syndrome (CRPS) can make you feel as if no-one knows or understands how you feel, as you are surrounded by friends and family who don’t have the condition. But by joining a face to face support group for CRPS, those feelings of being alone, isolated and vulnerable are what we want to change.
UPDATE FOR FUTURE CRPS SUPPORT GROUPS
To check if we have any support groups coming up please keep an eye on our EVENTS page, where you will find all the details for future CRPS support groups. We have 2 support groups running from 2016 up to this year 2018 which are in MANCHESTER and BRISTOL/BATH.
If you’re interested in starting up a CRPS support group in your area, please contact us and let us know. We can then advertise for people in that area. Our founder, Victoria will usually come to your 1st support group to show you how things run and the relevant paperwork needed.
We are now looking at setting up CRPS support groups in the following areas:
- Central London
- Leicester / Market Harborough
If you’re interested in joining any of the above CRPS support groups please contact us and tell us which are you would be interested in. We need approximately 5-10 or more people interested to make the group viable to run. If you are interested in running a support group in your area please get in touch with us.
These regular local CRPS suupport groups are there to give you help and support as CRPS sufferers and your carers, loved ones, family members and friends. If there are enough non sufferers we will be able to split up the 2 groups (non sufferers and sufferers) to allow you to be able to chat and get help from others just like you. One of the ways in which those who suffer with CRPS find help and relief is when you meet up with others in the same situation as yourselves. A self-help support group provides an opportunity for those meetings to occur.
We will hopefully have a professional speaker for around 30-40 minutes at the start of the group and then for the remainder of the time to chat between everyone. If you would like to hear from a specific speaker or learn about a certain topic or even have an arts & crafts session, then please get in touch with us and give us the details.
We want to provide support to you all and to help you cope better with your condition; Complex Regional Pain Syndrome. Thee groups are there so you can share your problems, feelings, ideas and information with others who are undergoing similar experiences. But we can’t solve all of your problems, nor are they there to replace the services of a pain specialist, doctor or other health care professionals that may be involved in your care.
AIMS OF THE CRPS SUFFERERS SUPPORT GROUP
The aims of the CRPS support groups may change over time with your help, however we feel that our CRPS support groups are there:
- To enable CRPS sufferers to meet on a regular, monthly basis to provide mutual support
- To enable you as CRPS sufferers to meet others in a similar situation and to share your feelings and experiences
- To provide sufferers with an opportunity to learn more and understand about the condition, so you can educate yourself, family members, friends, work colleagues about CRPS
- To help provide you with emotional support and coping mechanisms
- To draw strength from other CRPS sufferers’ experiences
- To share information around care, healing and various treatments available
- To build a social network of other CRPS sufferers
- To improve the quality of your life living with CRPS
- To try to reduce isolation and vulnerability that comes with living with a chronic pain condition such as CRPS
Please be assured that confidentiality is very important to us at Burning Nights CRPS Support.
If we do have enough non-sufferers, then we can split the group into sufferers and non-sufferers to enable the carers, family members, friends and loved ones time to be able to talk and meet with others who are in a similar situation in caring for someone suffering with Complex Regional Pain Syndrome (CRPS).
Are you interested in coming along to these CRPS support group meetings? Yes? Why not get in touch and let us know you’re interested or you wish to come along to our next support group? Refreshments will be provided FREE of CHARGE at the group, so no worries! Here are our contact details:
BURNING NIGHTS CRPS SUPPORT
Email: Support Group Email
Phone: 01663 795055
If this is something that you would be interested in coming along to, please contact us either by email, contact us page or on social media. Please feel free to share our CRPS Support Groups blog on social media or on your own blog.
WOULD YOU LIKE TO SET UP A CRPS SUPPORT GROUP IN YOUR AREA WITH BURNING NIGHTS?
We are now looking at expanding our CRPS support groups to other areas of the country. Would you be interested in running a support group in your local together with us at Burning Nights? If this is something that you would be interested in, please contact us to discuss how we can help you set up the group, the necessary flyers and help with advertising your group.
You’ve now read what the aims of our CRPS support groups are and how we plan to help you, it’s your turn now – what do you think about joining other sufferers like yourself? These support group meetings can help you cope better and feel less isolated as you make connections with others facing similar challenges and experiences as yourself, so why not join us?
Last Updated: 12/03/2018