2019-03-12

4th Annual National Burning Nights CRPS Conference

 

The Burning Nights CRPS Support 4th Annual National Burning Nights CRPS conference event is on Sunday 4 November 2018!

 

Due to the amazing successes of our last 3 Annual Burning Nights CRPS Support conference events in 2015, 2016 and 2017 our 4th annual national CRPS conference is being held this year on SUNDAY 4th NOVEMBER 2018 and is being held in the North East at the Grand Hotel Gosforth in Newcastle Upon Tyne.

However this year there is just one small difference, and that is this year’s 4th Annual National CRPS Conference is being kindly sponsored by Abbott. Abbott, formerly known as St. Jude Medical are the creators and manufacturer of the Dorsal Root Ganglion Stimulator (DRG) for Complex Regional Pain Syndrome and other neuropathic conditions.

      Here’s all the necessary details within this event page that you’ll need for this year’s annual national CRPS conference:

• Essential information
• Speakers
• Getting Your Tickets
• Raffle
• Auction
• Staying At The Hotel
• Parking At The Hotel

  Why not watch our brief 5 minute highlight video of what went on during our Inaugural Burning Nights CRPS meet & greet event that took place in November 2015:

Our last year’s Burning Nights CRPS Support annual national CRPS conference was held at the Marriott Bexleyheath hotel in November 2017. This was our 3rd Annual National CRPS conference and this is what went on last year:     If you would rather read about our 3rd annual national CRPS conference you can check our our blog -> 3rd Annual National Burning Nights CRPS Conference  or read about our Inaugural Burning Nights CRPS Meet & Greet in the blog?!

If you’re interested in coming along to our 4th Annual National Burning Nights CRPS Support Conference at the Grand Hotel Gosforth Park, Newcastle, please fill in the RSVP box below this event and event details.    

DETAILS

DATE:

SUNDAY 4th NOVEMBER 2018

TIME:

Starting at 9.30am and finishing around 4.30pm (You are free to come and go as you like)

COST:

FREE for CRPS patients and their families* *For professionals we ask for a donation of £50 per person which will include lunch and refreshments

WHERE: 

 Grand Hotel Gosforth Park, High Gosforth Park, Newcastle upon Tyne NE3 5HN (Telephone:  0871 222 1758)    

LUNCH & REFRESHMENTS: 

Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are FREE (for CRPS patients and their families) for you during the day’s event. If your dietary requirements fall out of this we ask you to make your own arrangements. (For professionals the £50 charge will include lunch and refreshments)  

THE HOTEL:

The Grand Hotel Gosforth Park is deemed a disabled friendly hotel. The conferencing area has a separate entrance to the hotel which has a ramp to get into the conference facilities. The suite where the conference is being held can be accessed either via a set of stairs or the ramp.  

PARKING:

There are 300 complimentary parking spaces available at the hotel.  

SPONSOR:

As we mentioned at the beginning, this year’s 4th Annual National CRPS Conference is being very kindly sponsored by Abbott, formerly St Jude Medical, who are the manufacturers of the Dorsal Root Ganglion (DRG) stimulator for CRPS and neuropathic pain.

 

SPEAKERS

Neuromodulation Specialist:

Dr Philippa MC Armstrong MBChB FRCA, York Hospital –  “Dorsal Root Ganglion (DRG) Stimulation treatment for Complex Regional Pain Syndrome (CRPS)”  Consultant in Anaesthesia and Pain Medicine at York Teaching Hospital Trust since 2011. Previously Consultant in Anaesthesia and Pain Medicine at Dr Gray’s Hospital in Elgin, Scotland and Stoke Mandeville Hospital, Buckinghamshire. Undergraduate training in Dundee and postgraduate training in Edinburgh and Oxford. Special interests include developing outpatient multidisciplinary services so that they are available to all those suffering complex chronic pain. Using all aspects of the bio-pyscho-social model to give patients the confidence to self manage and the autonomy to improve their quality of life despite their condition.  

CRPS Physiotherapist:

Mr Mark Draper, Walton Centre – “Treatment Options for CRPS including physiotherapy & DRG” Mark Draper is a senior physiotherapist specialising in the field of neuromodulation for pain and spasticity at the Walton Centre. His work includes assessing and treating patients with pain or spasticity for potential intrathecal pumps but mainly centres around the assessment, trialling and follow-up of patients with neurostimulators for neuropathic pain. He took up this post in 2004 after working in Liverpool in the out-patient musculoskeletal field for most of his post-graduate life but then developing a keen interest in chronic pain management. He has given presentations to the University of Liverpool 3rd year physiotherapy students on the subject of pain and neuromodulation. He has delivered talks on pain physiology and mechanisms to MSc students at the University of Liverpool. He has also presented alongside an esteemed multidisciplinary team at the British Pain Society Annual Scientific Meeting on the need for rehabilitation in neuromodulation using patient related outcome measures and biometrics as indicators. He qualified in 2016 in the BeST Back Skills Training programme devised by Oxford University in order to deliver a control arm (psychologically informed physiotherapy) for a back injection research project. Since starting at Walton he has developed and refined the work started by his predecessor in capturing the longer-term physical benefits of neuromodulation and presenting those findings to the wider multidisciplinary team. From his reflections he has seen a need to promote rehabilitation as an essential adjunct to neuromodulation in most, but not all cases, and is keen to see if patient outcomes are enhanced by this approach, whether delivered face-to-face or simply via a self-help manual or a combination of both. Mark has had first-hand experience of assessing and treating acute and chronic CRPS with physiotherapy technique, within a pain management programme setting and within ongoing neuromodulation treatment. In 2007 whilst working part-time on the pain management programme, he joined the CRPS steering group led by Dr Andreas Goebel who has a special interest in CRPS. This group of specialist physiotherapists and occupational therapists developed and promoted the Walton CRPS physiotherapy advice and treatment service.  They help train medics and allied health professionals in the best assessment and treatment methods at the Walton Pain Courses and CRPS Study days and offer direct access to colleagues for advice and treatment and a helpline for those with CRPS. They also hold annual CRPS days for patients to keep them updated with developments in research and treatments but also gain from their crucial feedback to help improve service delivery and access. The output of the collaboration between clinicians and patients have included developing free bookmarks describing CRPS in simple terms to those who aren’t aware of it and also a patient experience section in the Walton information leaflet for potential neurostimulation patients. Mark is a member of the newly created SNNAP (Specialist Neuromodulation Nurses and Allied Health Care Professionals) committee and is now enthusiastic about developing physiotherapy material for the new MSc course at Leeds Beckett University for those who wish to qualify in this field.    

CRPS Specialist:

Dr Zbigniew Kirkor MD PhD – Regenerative Medicine for Complex Regional Pain Syndrome (CRPS) Dr. Kirkor is a Consultant in Anaesthesia and Pain Medicine and Clinical Lead for Pain Services at Shrewsbury & Telford Hospitals NHS Trust. He treats a broad variety of painful conditions: back and neck mechanical pain, Whiplash-Associated Disorders, sciatica, neuropathic pain, Complex Regional Pain Syndrome, post-injury pain, fibromyalgia and many other. Dr. Kirkor qualified from Medical University in Gdansk, Poland in 1987. He completed his formal training in anaesthesia in1994 and he held several consultant posts in Poland. He obtained his PhD in medicine in 1996. He moved to the UK in 2005 and he joined Pain Clinic at Stoke Mandeville Hospital (National Spine Injury Centre). In September 2010 he moved to Telford, Shropshire. Dr. Kirkor’s special interest is interventional pain medicine, interventional medicine in MSK conditions, spine pain, whiplash injury, Whiplash-Associated Disorders and Complex Regional Pain Syndrome (CRPS). Dr. Kirkor is a member of Spine Interventions Society (Membership Committee Member), North American Spine Society and Interventional Orthopaedic Foundation. Dr. Kirkor is an expert witness and his area of expertise is anaesthesia and chronic pain. He acted as an expert in several cases involving Complex Regional Pain Syndrome and neuropathic pain. He is a member of Medico – Legal Society. He is also an APIL Expert (Association of Personal Injury Lawyers). He is a member of the Expert Witness Institute (MEWI). He won The Anaesthesia & Pain Medicine Consultant of the Year 2017 Award (The Lawyers Monthly Magazine). In 2018 Dr. Kirkor set up the first Regenexx Clinic in the UK (second in Europe) upon completion of the extensive training in the USA. The clinic focuses on regenerative medicine (stem cells and platelet rich plasma) for musculoskeletal conditions.  

Personal Injury Solicitor – Mr Brian Barr from Brian Barr solicitors, Manchester – CRPS and Personal Injury

  MAC Clinical Research – Talking about the Clinical Research Opportunity for Complex Regional Pain Syndrome (CRPS)   Ruth George MP (High Peak) – Learn more about the campaign to raise awareness of CRPS in Westminster via our article

CRPS CARERS & CRPS PATIENTS’ SPEAKERS

We’re looking for both CRPS carers and CRPS patients who would be interested in giving a short talk about their lives either living with CRPS or as someone who cares/loves for someone with CRPS. If you’d like to speak at our 4th Annual National Burning Nights CRPS Support Conference please get in touch with us and let us know.   We currently have 2 CRPS patients who will be speaking at this year’s 4th annual national CRPS conference.   Sophie Spooner – CRPS Patient – “My name is Sophie Spooner, I am 21 years old. I was diagnosed with CRPS in early 2016 and just recently been diagnosed with Improving CRPS. I contracted CRPS through a Fulkersons Osteotomy surgery in 2015 after an accident on exercise with the Royal Navy.” Libby Carew – CRPS Patient – “My name is Libby Carew –Eichholz and I am from a small village in Co Tipperary in the South of Ireland. I am a nurse by profession and have been nursing in both Ireland and Germany for the past 37 years. In 2010 I received my Masters in Health Education Promotion from the University of Limerick. On July 7^th 2012 my education was to take a completely different course. I had an accident and fell down 2 steps resulting in what is known as a Lisfranc Injury of my Right Foot. Initially  I was treated conservatively, but eventually had to have a mid- foot fusion surgery in January 2016.  The Fusion was successful but I was diagnosed with CRPS on March 18^th 2016 and this started me one of the most difficult courses of my Life. My Journey with CRPS…”  

HOW TO GET YOUR TICKETS:

We only have a limited number of 125 places for our very popular annual national CRPS conference, so get your tickets early to avoid any disappointment! If you decide after you’ve ordered your tickets that you no longer want to go please contact us as soon as possible because we will have many people on our cancellation list. Please click on the RSVP Ticket box below the map and details of the event to give the following information:

• how many tickets you would like (maximum of 4 per person),
• your name
• email

UPDATE: We are now full! However we are taking people on our reserves list. As we gt nearer the time, we do get people cancelling especially last minute. If you’d like to join our reserves list please contact us giving us your name, email and how many tickets you’d like.    

RAFFLE and AUCTION

As usual we will be holding a raffle on the day of the conference as well as a small auction! The raffle will take place and drawn on the day of the conference and will only be available to those attending our CRPS support conference.

AUCTION

This year, there are 3 generously donated auction items that we will be auctioning off on the day of the conference at the end of the day. Those attending the conference will be able to bid for these items on the day. Payment MUST be made in FULL on the day of the conference and won’t be released until payment has been received. You are able to pay for these either in cash, bank transfer or PayPal (orders@burningnightscrps.org)

• 2 Match Play tickets at Lancashire Cricket Club in the 2019 season
• Ninja Coffee Bar Auto-IQ Brewer with Glass Carafe
• Tesco Finest Hamper

   

RAFFLE PRIZES

If you know any companies who would be willing to donate a raffle prize to us please contact us If you are part of a company or you own a business and would consider kindly donating a prize to our raffle, please contact us! All the money raised on the day will go towards the charity.   This year we have been generously given the following items:

• Living with Chronic Pain books – Written by Dr Sue Peacock – Dr Peacock is a Health Psychologist and has a great website that you can visit. Dr Peacock has also written some interesting books that you can purchase via Amazon:

Sleeping with Pain  Break the pain cycle  Managing chronic pain in the family 

• A range of products from Irene Bull, a supporter of Burning Nights CRPS Support
• Avon Gift bags from Joanne

     

STAYING AT THE HOTEL

If you would like to stay at the hotel, their phone number is  0871 222 1758. If you book online why not sign up for Easy Fundraising and help us raise FREE donations just by booking your hotel online or buying anything online!  

PARKING AT THE HOTEL

As is usual there are very limited Blue Badge disabled parking spaces at the hotel. But there are 300 complimentary car parking spaces available at the hotel.

Interested, have any questions or you can contact us by email, phone or on social media. If you want to order your FREE tickets then please complete the RSVP box below!    We look forward to meeting you all there for our 4th Annual National Burning Nights CRPS Support Conference on Sunday 4th November 2018! Why not bring your family or friends with you? Don’t forget to share our CRPS conference on social media using the buttons below!   Written: 12/03/2017 Last Updated: 24/10/2018

LET’S SPREAD AWARENESS of CRPS!