Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
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7th Annual National CRPS Conference 2021

2021-11-15

21 November @ 09:00 16:30 GMT

The Burning Nights CRPS Support 7th Annual National CRPS Conference is announced for 2021!

Join us at our 7th Annual National CRPS Conference on 21 November 2021 at the DoubleTree Hilton Chester- Burning Nights CRPS Support

The Burning Nights CRPS Support annual CRPS conference is aimed at patients living with complex regional pain syndrome, their families and friends to help give them support and to help their understanding of the condition, treatment options and more.

The 7th annual CRPS conference is mainly for CRPS patients, their families and friends to help support them and to help their understanding of the condition, treatment options and more. The conference is also available to health professionals and healthcare students.

This year our CRPS conference is being held on SUNDAY 21 NOVEMBER 2021 and will be at the DoubleTree Hilton Chester. If, due to Coronavirus restrictions we are unable to hold it at the hotel then we will move the conference back online.

Here’s all the necessary details within this event page that you’ll need for the 2021 7th annual national CRPS conference:


Why not watch our brief 5 minute highlight video of what went on during our 2019 5th Annual National CRPS Conference which was held in Newcastle that took place in November 2019.

Watch our 2019 5th Annual Conference Event

If you’re interested in coming along to our 7th Annual National Burning Nights CRPS Support Conference at the DoubleTree Hilton Chester, please fill in the RSVP box below this event and event details.

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DETAILS

DATE: 21.11.2021

Sunday 21st November 2021

TIME: 9.30am – 4.30pm

We start at 9.30am and finish around 4.00pm / 4.30pm. However you are able to come and go as you wish.

COST:

FREE for CRPS patients and their families*

Lunch and refreshments will be included free of charge.

*For professionals we ask for a donation of £50 per person which will include lunch and refreshments

WHERE:

DoubleTree Hilton Chester, Warrington Rd, Hoole, Chester CH2 3PD

LUNCH & REFRESHMENTS

Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are FREE (for CRPS patients and their families) for you during the day’s event.

If your dietary requirements fall out of this we ask you to make your own arrangements. (For professionals the £50 charge will include lunch and refreshments)

THE HOTEL:

The DoubleTree Hilton Chester is deemed a disabled friendly hotel. The conferencing area has a flat entrance leading from the main hotel reception. The area has a mixture of carpet and tiles. This is a flat area which is suitable for wheelchairs and scooters. There are accessible toilet facilities in the hotel and also in the conference area.

The hotel is easily accessible from the M53 Junction 12 motorway.

The closest train station is Chester which is a few miles from the hotel by taxi or car.

The nearest airport is Liverpool John Lennon (9 miles) and Manchester

PARKING:

There are parking spaces available at the hotel and this includes a limited number of Blue Badge spaces. There are obviously not a large number of these places available. We have also managed to get parking included for the event.

SPONSOR:

If you are interested in sponsoring our 7th annual national CRPS conference please email our Chair, Victoria or contact the charity.

It is with the generosity of sponsors that we can keep the annual national CRPS conference free of charge for CRPS patients and their loved ones.

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SPEAKERS

As soon as our speakers are confirmed we will include their details below. Our speakers will always have working knowledge of Complex Regional Pain Syndrome, living with CRPS or disability due to CRPS.

Barrister Pankaj Madan – ‘CRPS and Legal Claims; the role of the Barrister’

Pankaj was educated at Leeds Grammar School and Magdalene College, Cambridge where he read Law before attending Bar School in London. He was called to the Bar in 1997 by Middle Temple. He was a Harmsworth and Astbury Scholar.  He is a full member of both 12 King’s Bench Walk, London and Exchange Chambers in the North.

 He specialises in Catastrophic and Life-Changing Injury with specialist expertise in Catastrophic and Subtle Brain Injury , severe limb injury, high-value Pain and Complex Regional Pain Syndrome (CRPS) claims and Clinical Negligence.

He acts for both Claimants and Insurers, usually only in very high value cases often involving pedestrians or motorcyclists or severe falls at work. He is adept at liability issues.

He is from a medical family and has an excellent understanding of medical issues. In fact he is the first legal member to sit on the Pain Section Committee at the Royal Society of Medicine.

He is renowned for his meticulous eye for detail and sensitive, sympathetic client approach, The Legal 500 has said the following –

‘A first rate lawyer with IT and technology skills second to none. Combative with charm. Knows exactly what he is doing. Has a real touch for big PI claims. More hard-working than almost anybody I know. More than a safe pair of hands.’

 ‘Works very hard to achieve the right result. Doing a mixture of Claimant and Defendant work is able to present a balanced view whichever side has instructed him. Very detailed analysis of complex medical issues.’

Legal 500 2021 Tier 1

“Very detailed and methodical” Legal 500 2020 Tier 1
“Recommended for his superb strategic approach to brain injury cases” and “He has a brilliant client manner” Legal 500 2019. In 2017, he was noted as “Very experienced in high-value Catastrophic Injury claims” and his “ability to challenge the unusual in cases”. In fact, he has been commended every year by the Legal 500 since 2008.

Pankaj is routinely instructed nationally by leading firms and he frequently confers with severely injured claimants or their Litigation Friends in hospitals or rehabilitation facilities or their own home. Travel anywhere in the country is never an issue.

To ensure balance he is also instructed and respected by leading Defence firms, and sought after by the insurers often at the first intimation of a claim. His signature standard is an ethical, fair collaborative approach but firm and uncompromising when needed.

Pankaj has efficiency at the foremost of his practice and operates a “paperless” practice. He welcomes instructions in entirely electronic (PDF) form. This results in better use of fixed or budgeted costs and enhanced security.

He is a Deputy District Judge and has considerable expertise in costs management of high value cases for both Claimants and Defendants.

He is experienced in claims of the utmost severity exceeding a capital value of £9 million. He often appears against Leading Counsel on his own. In 2020-21 he settled or fought around £40 million in Catastrophic Injury Claims.

Areas of practice

  • Brain injury ranging from catastrophic severity to the subtle but severe
  • “CRPS” Complex Regional Pain Syndrome
  • Chronic and serious limb injuries with actual or potential amputation often with CRPS issues as well.
  • Spinal Injury
  • Also high-value cases involving:-
  • Hyper-extension flexion injuries leading to Chronic Pain syndrome, or exacerbating pre-existing conditions such as fibromyalgia and joint-hypermobility syndrome;
  • Functional Neurological Disorder;
  • Unusual Psychiatric Injury e.g. Somatisation Disorder and Hysterical Conversion Syndrome
  • Fatal accidents

Pankaj lectures widely and is  a published multiple author. He has written several books, one on Subtle Brain Injury and one on Chronic Pain. He is writing his third book on Catastrophic Brain Injury.

He has been guest lecturer at the Royal Society of Medicine on the subject of Chronic Pain and CRPS and at the Peterhouse Annual Medico-legal Conference in Cambridge, and the International Birmingham Pain Forum. He regularly chairs and speaks at Catastrophic Injury Conferences.  

Mr Mohammed Akbar Hussain, Consultant Neurosurgeon – Functional, Epilepsy and Pain Neurosurgeon, Newcastle Hospitals NHS Foundation Trust – ‘Neuromodulation as a treatment option for CRPS’

Mr A Hussain - Consultant Neurosurgeon - Man facing the camera wearing blue scrubs as a doctor

Expertise in Neuromodulation and image guidance with a keen interest in merging the two modalities and implementing their use in clinical practice.

Mr Hussain has 10 years experience in Spinal Cord stimulation with special interest on Dorsal Root Ganglion (DRG) stimulation. Beyond deep brain stimulation and spinal cord stimulation my interest extends to awake surgery for epilepsy or tumours.

Miriam Parkinson – Advanced Occupational Therapist – ‘Managing Your CRPS Flare-Ups’

Miriam Parkinson OT - Lady with grey hair smiling. She is wearing a navy blue roll neck jumper

I am an Advanced Occupational Therapist working for East Lancashire Hospitals Trust.  I qualified in 2000 and settled very quickly into the field of hand therapy. My first patient with CRPS was a very severe case and I knew nothing! This sparked a real passion in me and I have now subspecialised in CRPS for almost 20 years leading to promoting CRPS awareness and services within our trust. 

Presently, I work mostly in hand therapy with more acute CRPS in the upper limb and, to a lesser extent, in our Pain Management Service to support patients with more chronic CRPS (upper and lower limb) as part of a wider MDT.  Through my involvement with the British Association of Hand Therapists I have had the opportunity to teach on CRPS assessment and management at national conference in 2011 and 2020 and also contribute to the RCP CRPS guidelines revised edition 2018.

PCCA Ltd – Personalised Medicines including for CRPS

PCCA logo

PCCA formulates, manufactures, distributes, and dispenses personalised medicines, known as specials, helping consultants, prescribers, veterinarians, and pharmacists to make a difference to patients with unmet clinical needs.

Based in Northumberland, PCCA UK has been operating since 1999 and is part of a global network spanning the US, Canada, and Australia.

A ‘Special’ is an unlicensed medicine to meet an individual patient’s unmet clinical need that cannot be met by a licensed product.

We manufacture unlicensed medicines under our MHRA MS license, offering additional treatment options to aid compliance in patients – for example, those who are struggling with the route of administration, have side effects to licensed medicines, need a customised strength or dosage form, or have an allergic reaction to common drug excipients and require a formulation without the excipient.

We challenge ourselves to discover innovative solutions that solve healthcare problems underpinned by care and commitment to patients.

About our talk

PCCA is proud to be contributing to the Burning Nights CPRS Conference with an exclusive talk on the issue of Complex Regional Pain Syndrome (CRPS).

CPRS is generally a poorly understood condition where a person experiences persistent severe and debilitating pain, meaning events such as this and talks given by the PCCA team are vital to helping patients and healthcare professionals to gain a greater collective understanding.

PCCA’s team will be discussing how personalised medicines can provide solutions to an unmet clinical need for the treatment of Complex Regional Pain Syndrome – this is especially vital for those patients that cannot be treated by a licensed product.

During the talk, we will discuss our services, covering the formulation and clinical team, manufacturing and sourcing services and how we innovate new solutions through creating high quality medicines in our MHRA facilities to meet the patients’ exact needs.  

We will also discuss our propriety bases specifically developed for transdermal delivery of pain medications which allow for drugs to be delivered through the skin barriers. PCCA’s close work with prescribers links to our joint aim of providing better health outcomes to patients with care and commitment.

For more information ahead of the talk, visit: www.pccarx.co.uk  

Mr Philip Cutts, Orthopaedic and Musculoskeletal Rehabilitation and Pain Management Specialist

Philip Cutts MSK - man sitting down wearing a black shirt and black jacket

A former martial artist and professional dancer over two decades – I was no stranger to injury or pain.
I always knew that pain relief was more about knowledge than pharmacology.

I embarked on a quest to gain a continued and profound knowledge of Musculoskeletal Medicine
and Pain Management.

Having studied in both the UK and Germany, with various institutions and qualifications gained in
Musculoskeletal Medicine, Neurology, Brain and Behaviour, Nutritional Medicine, Neurodynamics
and Biomechanics, I teach, treat, and train in over 16 countries, 4 treatment centres and deliver
strong and sought after CPD and CME accredited courses around the world too.

Pain, Pain Mechanisms are poorly diagnosed, mis-understood, underestimated and lack the
compassion needed to alleviate the devastating impact on a sufferer’s everyday life.

My team and I strive passionately to improve our knowledge and the knowledge of other clinicians to
improve treatments for present and future generations of CRPS sufferers.

Chris Edwards, Mobility Specialist Expert, Lewis Reed “Motoring with a Disability Q&A”

I’m excited to introduce myself as the newest member of the Lewis Reed team. As a wheelchair user myself, I am passionate about personal independence and mental health. I believe that access to a bespoke driving or passenger solution that is comfortable, beautiful and a joy to be in, is the cornerstone to this.

I’ve worked within the mobility industry for over 20 years. Firstly, starting with a bespoke wheelchair manufacturer visiting individuals and assessing their needs.

More recently I have worked for 17 years for Motability Operations travelling around the UK meeting individuals and groups providing guidance and advice whilst building awareness of travel and driving with a disability.

I have recently taken on the position of Mobility Specialist at Lewis Reed with my primary aim to contact solicitors, health professional, case manager and occupational therapists to demonstrate one of our wheelchair accessible vehicle and explain how we as a company can take responsibility for all mobility issues in your project management.

Ashleigh Stevens, CRPS Patient “My CRPS Journey”

Iwas diagnosed in 2012 with CRPS in my left lower leg, ankle, and foot. I had just turned 30 and I’d been living with CRPS for 14 months prior to diagnosis following a routine operation. I was shortly due to get married, had a promising career in social care and lived a full active life.

The “early years” of CRPS, were filled with loss, career loss, friendship loss and loss of my identity. Since 2016 I have been getting control back and learning how to manage CRPS, I’ll be sharing my journey to this point with you.

CRPS CARERS & CRPS PATIENTS’ SPEAKERS

We are looking for at least 3 patients or family members to speak about their experiences. If you would like to share your CRPS journey at the conference please contact us or email us at support@burningnightscrps.org

Silent Auction

For 2021 we have a very special auction prize! We are holding a silent auction in aid of Burning Nights CRPS Support from 1st November 2021 up to 20th November 2021.

We have just 1 amazing prize up for auction – a framed signed cap, signed by Formula 1 McLaren team 2021 – Lando Norris and Daniel Ricciardo. Within the frame there is the signed cap along with 2 images of the two drivers.

There is a reserve amount of £300. If you are a Formula 1 fan, why not make a bid for this very special prize and help Burning Nights CRPS Support raise valuable funds.

Burning Nights Silent Auction 2021 - a framed signed cap by 2021 Formula 1 team McLaren. All monet raised goes towards providing support to people with CRPS and their loved ones. All you have to do is email your bid and contact details to fundraise@burningnightscrps.org
Burning Nights Silent Auction 2021

How To Make A Bid

To make a bid for this fantastic prize, please send you bid in UK pounds (£) together with your fill contact details to fundraise@burningnightscrps.org In the subject line please include Auction 2021.

We are inviting you to bid from worldwide. If you are unsure whether you are able to bid please contact us and type in the subject line – Auction 2021.

If you have any items that you would like us to auction for the charity please contact us.

Rules of the auction:

  • Bids must be made clear in UK pound sterling and sent by email
  • You must send you bid and your full contact details (including phone number, email, name and address including country)
  • You can bid for this item if you live outside the UK
  • Please send your bid by email to fundraise@burningnightscrps.org
  • Participants must be aged 18 years or over and have a valid bank account to transfer to the UK account of Burning Nights CRPS Support d or valid cheque by which to make payment or pay via our website
  • Auction items MUST be paid for in FULL before we can send out the item. Please do not make a bid unless you are able to pay for the item in full
  • Payment can be made by debit/credit card via our website, PayPal (orders@burningnightscrps.org) or bank transfer to the charity’s account
  • The winning bid must leave their contact name and address.

Official charity receipts for the auctioned items will be sent by post to the winning bidder

Exhibitors

If you’re a company or clinical research company and would like to exhibit at our 7th CRPS annual conference 2021, we have spaces available. If you would like to discuss the options available please get in touch with our Founder, Victoria.

How To Get Your Tickets:

We only have a limited number of 100 places for our very popular annual national CRPS conference, so get your free tickets early to avoid any disappointment!

If you decide after you’ve ordered your tickets that you no longer want to go please contact us as soon as possible because we will have many people on our cancellation list. We ask that you keep to 4 tickets per CRPS patient to enable others to join us.

Please click on the RSVP Ticket box below to give the following information:

  • how many tickets you would like (maximum of 4 per person),
  • your name
  • email
  • If you would like to receive our email newsletter

7th Annual CRPS Conference

Free ticket for the Burning Nights CRPS Support for our 7th annual national CRPS conference 2021

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Live Stream Option

For anyone not in the U.K. or not able to attend the physical conference in Chester (United Kingdom), we now have a live stream option available which will be streamed through Zoom.

To register for the Live Stream option please click on the link below which will take you to the Zoom registration page. Please note the link below is only to register for the LIVE STREAM OPTION ONLY.

Staying At the Hotel

If you would like to stay at the hotel, their phone number is  01454 201 144. If you book online why not sign up for Easy Fundraising and help us raise FREE donations just by booking your hotel online or buying anything online!

Parking At the Hotel

As is usual there are very limited Blue Badge disabled parking spaces at the hotel. But there are a number of car parking spaces available at the hotel.

Coronavirus

Currently there are no restrictions for events. However this may change at any time leading up to the conference date.

You may be required to wear a face mask, give proof of either a lateral flow test or double vaccination. Or we may need to reduce the numbers able to attend the event. If we need to reduce the numbers then it will be the first registered will be the ones who have the tickets.

What Happens Now?

Interested? Have any questions or you can contact us by emailphone or on social media. If you want to order your FREE tickets then please complete the RSVP box above!

We look forward to meeting you all there for our 7th Annual National Burning Nights CRPS Support Conference on Sunday 21st November 2021! Why not bring your family or friends with you? Don’t forget to share our CRPS conference on social media using the sharing buttons below!

Written: 06/04/2021

Last Updated: 06/08/2021

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LET’S SPREAD AWARENESS of CRPS!

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Burning Nights CRPS Support

01663 795055

View Organiser Website

DoubleTree Hilton Chester

Warrington Road
Hoole, Chester CH2 3PD United Kingdom
01244 408800
View Venue Website

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