November is CRPS Awareness Month 2017
1 November @ 9:00 am - 30 November @ 5:00 pm
November is CRPS Awareness Month 2017
For the whole month of November across the world we will be recognising International CRPS Awareness Month 2017!
For the last 19 years CRPS awareness month has been going on around the world to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD. The more people including the public, medical and legal professionals are made aware of Complex Regional Pain Syndrome will help those living with the chronic condition to get diagnoses and treatment started sooner.
If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome?
HOW YOU CAN HELP RAISE AWARENESS FOR CRPS
Here are some ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS):
- Sign up to our Thunderclap message – Are you on Facebook, Twitter or Tumblr? If so, you can sign up free to our one (1) Thunderclap message for CRPS awareness month which will go out on 30 November 2017 at 12 noon. We are aiming to get the hashtag CRPS trending on the final day of Complex Regional Pain Syndrome awareness month. Please help and support our campaign!
- Buy any of our CRPS awareness products – Leaflet | Postcard | Wristband | Bookmark | Enamel Badge | Pen | Notepad and Pen set … We’re including a FREE CRPS information leaflet for every order during November 2017!
- Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity
- Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last year and are doing this year, as are First Direct Arena and Blackpool Tower
- Talk to your local Doctors’ surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain
- Ask your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects you
- Provide a brief article for your local newspaper
- Ask to give an interview on your local radio station
- Hold a coffee morning
- Hold a fundraiser – See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are available
- Ask your friends and family to post on social media about you and your CRPS story or share our website
- Check out our CRPS Awareness Month page!
HEALTHCARE & LEGAL PROFESSIONALS & STUDENTS
For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS. These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity’s Founder and Chair who provides these CRPS awareness sessions.
We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you’d like us to send you a small supply.
SCHOOLS, COLLEGES & UNIVERSITIES
We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions.
LEARN MORE ABOUT COMPLEX REGIONAL PAIN SYNDROME (CRPS)
You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as:
You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series:
As well as our CRPS Pain Diary, Coping with CRPS/RSD, Acceptance of CRPS/RSD, Dorsal Root Ganglion (DRG) Stimulation treatment for CRPS, Amputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy.
WHAT’S GOING ON DURING NOVEMBER – CRPS AWARENESS MONTH?
We have a few fundraising events as well as landmarks and town halls that are supporting us by changing their lights to orange. Why not check out our events calendar to see what’s going on and where during November – CRPS awareness month? In addition to those fundraising events we also have 3 landmarks who have kindly agreed to change their building lights to orange in support of CRPS awareness month:
MANCHESTER TOWN HALL – Manchester Town Hall will be lighting up their beautiful town hall building on Thursday 2nd November 2017 for the 3rd year running. Thank you!
FIRST DIRECT ARENA – The First Direct Arena will be changing their outside arena lights to orange on Monday 6th November 2017 which is Colour The World Orange Day. Thank You!
BLACKPOOL TOWER – Why not go along to the Tower on Wednesday 8th November 2017, take some photos and share them with us on social media?! Thank You Blackpool Tower!
Here are some images of Manchester Town Hall who have supported CRPS awareness month over the last 2 years:
Making people aware about CRPS is the key to getting the condition properly recognised across the world. It could help ensure that sufferers are correctly diagnosed and treated when they visit their GP’s, doctors and hospitals. There are so many ways that you can try and get the message across to people about Complex Regional Pain Syndrome during CRPS awareness month this November 2017. So why not let us know what you’re up to help raise awareness for Complex Regional Pain Syndrome month?! What are YOU doing to help during CRPS awareness month 2017??! Don’t forget to share your photos of any of the landmarks and buildings who change their lights to orange with us here on our website or on social media (remember to tag us into your posts or tweets!).
Last Updated: 17/11/2017