CRPS Awareness Month 2018
1 November @ 8:00 am - 30 November @ 5:00 pm
November is CRPS Awareness Month 2018
For the whole month of November across the world we will be recognising International CRPS Awareness Month 2018!
For the last 20 years CRPS awareness month has been going on around the world to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD. The more people including the general public, medical/healthcare and legal professionals are made aware of Complex Regional Pain Syndrome will help those living with the chronic condition to get diagnoses quicker and treatment started sooner.
If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome?
HOW YOU CAN HELP RAISE AWARENESS FOR CRPS
Here are some ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS) during CRPS awareness month 2018:
- Download our Twibbon for CRPS Awareness Month on both Facebook and Twitter
- Buy any of our CRPS awareness products – Leaflet | Postcard | Wristband | Bookmark | Enamel Badge | Pen | Notepad and Pen set | Christmas Cards … We’re including a FREE CRPS information leaflet and a button badge for every order during November 2018!
- Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity. Contact your MP and let them know about our Campaign to Raise Awareness of CRPS in Westminster. Visit our CRPS campaign in Westminster article on this which includes a free template letter which you can just add your brief story and send it to your local MP.
- Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last year and Blackpool Tower are doing again for the 2nd year
- Talk to your local Doctors’ surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain. Contact us if your surgery would like to include them in their waiting room or ask the Practice Manager to contact us
- Ask your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects you
- Provide a brief article for your local newspaper
- Ask to give an interview on your local radio station
- Hold a coffee morning
- Hold a fundraiser – See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are available
- Ask your friends and family to post on social media about you and your CRPS story or share our website
- Check out our CRPS Awareness Month page!
- Donate £5 by Text – Text ORANGE to 70500 to give £5 to Burning Nights CRPS Support. Texts cost donation plus 1 message at your standard network rate. 100% goes to the charity. Always ask the bill payers permission.
HEALTHCARE & LEGAL PROFESSIONALS & STUDENTS
For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS. These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity’s Founder and Chair who provides these CRPS awareness sessions.
We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you’d like us to send you a small supply.
SCHOOLS, COLLEGES & UNIVERSITIES
We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions not only during CRPS awareness month 2018 but all year round.
LEARN MORE ABOUT COMPLEX REGIONAL PAIN SYNDROME (CRPS)
You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as:
You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series:
As well as our CRPS Pain Diary, Coping with CRPS/RSD, Acceptance of CRPS/RSD, Dorsal Root Ganglion (DRG) Stimulation treatment for CRPS, Amputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy.
WHAT’S GOING ON DURING NOVEMBER – CRPS AWARENESS MONTH 2018?
We have a couple of fundraising events and landmarks that are supporting us by changing their lights to orange. Why not check out our events calendar to see what’s going on and where during November – CRPS awareness month 2018? In addition to those fundraising events we also have 3 landmarks who have kindly agreed to change their building lights to orange in support of CRPS awareness month:
BLACKPOOL TOWER – Why not go along to the Tower on 5th November 2018, take some photos and share them with us on social media?! Thank You Blackpool Tower!
Here are some images of Manchester Town Hall and Blackpool Tower who have supported CRPS awareness month in the last 2 years:
Making people aware about CRPS is the key to getting the condition properly recognised across the world. It could help ensure that sufferers are correctly diagnosed and treated when they visit their GP’s, doctors and hospitals. There are so many ways that you can try and get the message across to people about Complex Regional Pain Syndrome during CRPS awareness month this November 2018. So why not let us know what you’re up to help raise awareness for Complex Regional Pain Syndrome month?! What are YOU doing to help during CRPS awareness month 2018??! Don’t forget to share your photos of any of the landmarks and buildings who change their lights to orange with us here on our website or on social media (remember to tag us into your posts or tweets!).
Last Updated: 30/10/2018