Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
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2019-10-15
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CRPS Awareness Month 2019

2019-10-15

1 November @ 00:00 30 November @ 23:30 UTC+0

CRPS awareness month has been going on around the world for over 20 years, to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD.

CRPS Awareness Month 2019 - Help us raise awareness of Complex Regional Pain Syndrome (CRPS) during CRPS awareness month 2019

The more people including the general public, medical/healthcare and legal professionals are made aware of Complex Regional Pain Syndrome, will help all those living with the chronic condition to get diagnoses quicker and treatment started sooner.

If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome?

How You Can Help Raise Awareness of CRPS During CRPS Awareness Month

Here are some general ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS) during CRPS awareness month 2019:

CRPS Awareness Month - Get these FREE CRPS products with every order during CRPS awareness month!
  • Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity. Contact your MP and let them know about our Campaign to Raise Awareness of CRPS in Westminster. Visit our CRPS campaign in Westminster article on this which includes a free template letter which you can just add your brief story and send it to your local MP.
  • Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last 3 years and Blackpool Tower have done
  • Talk to your local Doctors’ surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain. Contact us if your surgery would like to include them in their waiting room or ask the Practice Manager to contact us
  • Ask your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects you
  • Provide a brief article for your local newspaper
  • Ask to give an interview on your local radio station
  • Hold a coffee morning
  • Make a donation via our donation page
  • Hold a fundraiser – See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are available
  • Ask your friends and family to post on social media about you and your CRPS story or share our website
  • Check out our CRPS Awareness Month page!
  • Donate £5 by Text – Text ORANGE to 70500 to give £5 to Burning Nights CRPS Support. Texts cost donation plus 1 message at your standard network rate. 100% goes to the charity. Always ask the bill payers permission.
  • Donate £3 per month by Text – You can also pay a regular £3 per month – Text STRENGTH to 70300 to donate £3 per month. 100% to Burning Nights CRPS Support. Ts and Cs apply

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Healthcare and Legal Professionals and Students During CRPS Awareness Month

For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS (within 2 hour radius of the charity’s location. Over 2 hours we ask for a £50 donation towards the cost of the expenses)

These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity’s Founder and Chair who provides these CRPS awareness sessions.

We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you’d like us to send you a small supply.

Schools, Colleges & Universities

We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions not only during CRPS awareness month 2019 but all year round.

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Learn More About Complex Regional Pain Syndrome (CRPS)

You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as:

WHAT IS CRPS?

HISTORY OF CRPS

HOW CRPS IS CAUSED

CRPS DIAGNOSIS & PROGNOSIS

CRPS SIGNS & SYMPTOMS

CRPS TREATMENTS

You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series:

Alternative Therapy for CRPS and Persistent Pain

Psychological Treatments for CRPS and Persistent Pain

As well as our CRPS Pain DiaryCoping with CRPS/RSDAcceptance of CRPS/RSDDorsal Root Ganglion (DRG) Stimulation treatment for CRPSAmputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy.

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Help us raise awareness of Complex Regional Pain Syndrome (CRPS) during CRPS Awareness Month 2019
Help us raise awareness of Complex Regional Pain Syndrome (CRPS) during CRPS Awareness Month 2019

What’s Going On During CRPS Awareness Month 2019?

We have our 5th Annual National CRPS Conference on Saturday 2nd November 2019 which should be fantastic! We also have a couple of fundraising events and landmarks that are supporting us by changing their lights to orange.

Why not check out our events calendar to see what’s going on and where during November – CRPS awareness month 2019?

Here are some images of Manchester Town Hall and Blackpool Tower who have supported CRPS awareness month in the last 3 years:

Making people aware about CRPS is the key to getting the condition properly recognised across the world. It could help ensure that sufferers are correctly diagnosed and treated when they visit their GP’s, doctors and hospitals.

There are so many ways that you can try and get the message across to people about Complex Regional Pain Syndrome during CRPS awareness month this November 2019.

So why not let us know what you’re up to help raise awareness for Complex Regional Pain Syndrome month?! What are YOU doing to help during CRPS awareness month 2019?!

on’t forget to share your photos of any of the landmarks and buildings who change their lights to orange with us here on our website or on social media (remember to tag us into your posts or tweets!).

Written: 09/10/2018

Last Updated: 15/10/2019

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