Young Person's Online CRPS Support Group (June 2022) Are you under 18 years of age and have been diagnosed with Complex Regional Pain Syndrome (CRPS)? Join Burning Nights CRPS Support for our online young person's CRPS support group on Thursday 29 June 2022 at 4.30 pm (British Summer Time). Living with CRPS when you're a young person can be very difficult and can be at times frightening. You may have lots of questions not only about your condition but also about how you're going to cope with school or college, or how you're going to make new friends when you have a chronic illness. Being able to chat with other young people your age may answer some of your questions you may have. Who Is This Young Person's Online Support Group For? This online support group is for those 18 years of age and under, and who have Complex Regional Pain Syndrome (CRPS.) If you are under 14 years of age you will need to have a parent or guardian will you at the start of the online support group to agree that you are able to join the group. Once we have confirmation at the start, we are happy for you to ask them to leave the group so you are able to talk. If you are over 18, we ask that you join our regular monthly online CRPS support group which are advertised in our Support Group events section. How To Join Our Young Person's Online CRPS Support Group We will be holding our young person's online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the yellow button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Are you a young person affected by Complex Regional Pain Syndrome? Join our young person's online CRPS Support Group on 24 March 2022. Young Person's Online Support Group Details Date: Thursday 24 March 2022 Time: 4:30 PM Greenwich Mean Time (UK Winter time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Please make sure you have updated your Zoom app or Chrome extension to the latest edition. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Questions If you or your parents/guardians have any questions please get in touch with us by email or by phone on 01663 795055.
Online CRPS Support Group (July 2022) Join Burning Nights CRPS Support for our next online complex regional pain syndrome (CRPS) peer support group on Wednesday 13 July 2022. Our online peer support groups are for anyone affected by CRPS such as patients, relatives, friends, partners or carers. These take place once a month. Our next online CRPS support group is being held on WEDNESDAY 13 JULY 2022 starting at 2:00 pm British Summer Time (UK Summer Time). How To Join Our Online CRPS Support Group As usual, we will be holding our online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Online Support Group Details Date: Wednesday 11 July 2022 Start Time: 2:00 PM British Summer Time (UK Summer time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Making a donation of just £3 a month could help us continue our work raising awareness of CRPS. Will you help us support this? Questions If you have any questions please get in touch with us by email or by phone on 01663 795055.
Virtual London Marathon 2022 Burning Nights CRPS Support has 3 places (UK) and 1 international place in the Virtual London Marathon 2022! On Sunday 2 October 2022, 50,000 runners will have the chance to be a part of the biggest marathon ever - the London Marathon 2022. What is the Virtual London Marathon 2022? The virtual London Marathon will return once again this year, giving you the opportunity to take on the world’s greatest marathon on the course of your choice. You will have 24 hours to complete the virtual London Marathon 2021 on 2 October 2022 which is covering a distance of 26.2 miles. But you can do it your way! You can start from 00:00:00hrs to 23:59:59 GMT (UK time), wherever you are in the world and we have a total of 4 places available! However you can't use a running machine. How Many Places? This year we have a total of 4 places; 3 places for those of you who live in the UK and are wanting to complete the 26.2 miles in the UK. But we also have 1 place for anyone interested in taking on the Virtual London Marathon 2022 for those of you living outside the UK Interested In Taking Part? If you're interested in taking up one of our places at the virtual London Marathon 2022 please click on the orange button below to complete our fundraising event form. Minimum Sponsorship You would need to to raise a minimum of £250 in sponsorship What You’ll Receive As part of Team Burning Nights you would receive the following: A Burning Nights CRPS Running Vest and/or T-ShirtFundraising pack with ideas and materialsPre-event support from a dedicated fundraiserSocial Media shout out with your unique fundraising pageThank you certificate and letter from usA finishers medal and T-shirt after you finish the event, sent by the race organisers (Virgin Money Giving)You’ll also be helping to change the lives of people affected by a debilitating chronic condition!
The Burning Nights CRPS Support 8th Annual National CRPS Conference is announced for 2022! The Burning Nights CRPS Support 8th annual CRPS conference is aimed 2022 will be held on Saturday 26 November 2022. Our annual conferences are aimed at patients living with complex regional pain syndrome, their families and friends to help give them support and to help their understanding of the condition, treatment options and more. The full one day conference is to help those living with CRPS and their families to provide them with the latest information and support and to help their understanding of the condition, treatment options and more. The conference is also available to health professionals and healthcare students. This year our CRPS conference is being held on SATURDAY 26 NOVEMBER 2022 and due to a very generous donation from an Estate, will be at the Novotel Edinburgh Park. We will also be holding a very informal get together on the Friday 25 November in the evening in the bar area. Here's all the necessary details within this event page that you'll need for the 2022 8th annual CRPS conference: Essential InformationSpeakersGetting Your TicketsRaffleStaying At The HotelParking At The Hotel Why not watch our brief 5 minute highlight video of what went on during our 2019 5th Annual National CRPS Conference which was held in Newcastle that took place in November 2019. Watch our 2019 5th Annual Conference Event If you're interested in coming along to our 8th Annual National Burning Nights CRPS Support Conference at the Novotel Edinburgh Park, please fill in the RSVP box below this event and event details. DETAILS DATE: Friday 25 November 2022 (evening) - we will be having a very informal get together in the evening of the 25th November in the bar area. Saturday 26 November 2022 - conference day TIME: Friday 25 November 2022 - this will be a very informal get together in the bar area where you can come and go when you would like any time from 7.30pm onwards Saturday 26 November 2022 - We start at 9.30am with registration starting at 08.45am and finish around 4.00pm / 4.30pm. However you are able to come and go as you wish. COST: Conference is FREE for CRPS patients and their families* On the day of the conference (Saturday 26 November 2022) Lunch and refreshments will be included free of charge. However please do consider making a donation either as a one off gift or as a regular donation, by clicking the button below: WHERE: Novotel Edinburgh Park, 15 Lochside Ave, Edinburgh EH12 9DJ CONFERENCE LUNCH & REFRESHMENTS: Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are free and form part of the day's event. If your dietary requirements fall out of this we ask that you contact the hotel direct with your requests. THE HOTEL: The Novotel Edinburgh Park is deemed a disabled friendly hotel. The conferencing area has a flat entrance leading from the main hotel reception. The area has a mixture of carpet and tiles. This is a flat area which is suitable for wheelchairs and scooters. There are accessible toilet facilities in the hotel and also in the conference area. The hotel is easily accessible from the local train station and is two-minute walk from Edinburgh Park rail station and a 12-minute ride to the city centre. The nearest airport is Edinburgh International Airport which is 4km away. PARKING: There are parking spaces available at the hotel and this includes a limited number of Blue Badge spaces. There are obviously not a large number of these places available. The parking is part of the conference and when you arrive in reception please let them know that you are in the car park and that you are attending the conference. SPONSOR: If you are interested in sponsoring our 8th annual national CRPS conference please email our Chair, Victoria or contact the charity. It is with the generosity of sponsors that we can keep the annual national CRPS conference free of charge for CRPS patients and their loved ones. However please consider making a donation to help keep our essential support services running. SPEAKERS As soon as our speakers are confirmed we will include their details below. Our speakers will always have working knowledge of Complex Regional Pain Syndrome, living with CRPS or disability due to CRPS. CRPS CARERS & CRPS PATIENTS' SPEAKERS We are looking for at least 3 patients or family members to speak about their experiences. If you would like to share your CRPS journey at the conference please contact us or email us at email@example.com Silent Auction For 2022 we have a very special auction prize! We are holding the auction in aid of Burning Nights CRPS Support on the day of the conference. Bids will be taken from anyone who is attending the conference. There will be no online or telephone bids for this item. We are thrilled to announce that we have been gifted a SIGNED MANCHESTER UNITED FOOTBALL with Certificate of Authenticity that we will be auctioning off on the day of the conference! Bids for this item will only be taken on the day of the conference and in person. How To Make A Bid To make a bid for this fantastic prize, you must attend the conference and the bid must be in UK pounds (£) If you have any items that you would like us to auction for the charity please contact us. Rules of the auction: Bids must be made clear in UK pound sterling and sent by emailParticipants must be aged 18 years or over and have a valid bank account to transfer to the UK account of Burning Nights CRPS Support d or valid cheque by which to make payment or pay via our website Auction items MUST be paid for in FULL before we can give you the item. Please do not make a bid unless you are able to pay for the item in fullPayment can be […]