Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
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Chiltern 50 Challenge

Henley-on-Thames

Chiltern 50 Challenge, 25th September 2021...Walk, Jog, or Run it This 'end of season’ 50 km looped route covers some of the best of the Chilterns countryside. You can Walk, Jog, or Run along historic trails and over rolling hills. Starting & finishing at our Base Camp in Henley-on-Thames, there's a Saturday night celebration BBQ & entertainment with camping options. Passing through nature reserves, forests, and a few hills with great views-it's a route with real variety, and some wonderful scenery-and it's all easily accessible from London. With 25km options, also there's a Chiltern Challenge here for everyone! You’ll get full support and hospitality all the way, leaving you to focus on your challenge! Join as Individual or Team50 km Full Challenge25km Half Challenge optionsRest stops-free food & drinkALL meals/ food included!Medics, massage, and pace walkersMedal, T-shirt, a glass of bubbly!Do it at Your paceRun or Jog-set a New Goal!Camping options availablePre-event training support +AppIt's Your Challenge-Your Way! SIGN UP & FUNDRAISING OPTIONS: Charity Sponsorship–you pay a small registration fee, do lots of fundraising and we cover the cost of your event place!Mixed Funding–pay half of the event place cost yourself, fundraise a bit less and we pay the balance of the event place cost.Self Fund–you pay the full cost of the event place-fundraise whatever you want, with no set target or deadline, and there’s no cost at all to the charity! For full details of prices – CLICK HERE! For full details of the Chiltern 50 Challenge – CLICK HERE! To register, please contact Laura on 01663 795 055 or email us.

Virtual London Marathon 2021

Virtual London Marathon 2021 Burning Nights CRPS Support has 3 places in the Virtual London Marathon 2021! On Sunday 3 October 2021, 50,000 runners will have the chance to be a part of the biggest marathon ever - the London Marathon 2021 What is the Virtual London Marathon 2021? The virtual London Marathon by Virgin Money Giving will return once again this year, giving you the opportunity to take on the world’s greatest marathon on the course of your choice. You will have 24 hours to complete the virtual London Marathon 2021 on 3 October 2021 which is covering a distance of 26.2 miles. You can start from 00:00:00hrs to 23:59:59 GMT (UK time), wherever your are in the world and we have 3 places available! However you can't use a running machine. Interested In Taking Part? If you're interested in taking up one of our places at the virtual London Marathon 2021 please click on the orange button below to complete our fundraising event form. Minimum Sponsorship You would need to to raise a minimum of £250 in sponsorship What You’ll Receive As part of Team Burning Nights you would receive the following: A Burning Nights CRPS Running Vest and/or T-ShirtFundraising pack with ideas and materialsPre-event support from a dedicated fundraiserSocial Media shout out with your unique fundraising pageThank you certificate and letter from usA finishers medal and T-shirt after you finish the event, sent by the race organisers (Virgin Money Giving)You’ll also be helping to change the lives of people affected by a debilitating chronic condition!

Online CRPS Support Group – October 2021

Online CRPS Support Group (October 2021) Join Burning Nights CRPS Support for our next online complex regional pain syndrome (CRPS) support group on Wednesday 13th October 2021. Our online support groups are for anyone affected by CRPS such as patients, relatives, friends, partners or carers. These take place once a month. Our next online CRPS support group is being held on Wednesday 13th October 2021 starting at 2:00 pm GMT (UK Time). How To Join Our Online CRPS Support Group As usual, we will be holding our online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group on Wednesday 13th October 2021. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Online Support Group Details Date: Wednesday 13th October 2021 Start Time: 2:00 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Just £5 could help us provide free leaflets to a CRPS patient and a relative. Questions If you have any questions please get in touch with us by email or by phone on 01663 795055.

Young Person’s Online CRPS Support Group (October 2021)

Young Person's Online CRPS Support Group (October 2021) Are you under 18 years of age and have been diagnosed with Complex Regional Pain Syndrome (CRPS)? Join Burning Nights CRPS Support for our online young person's CRPS support group on Thursday 14 October 2021 at 4.30 pm. Living with CRPS when you're a young person can be very difficult and can be at times frightening. You may have lots of questions not only about your condition but also about how you're going to cope with school or college, or how you're going to make new friends when you have a chronic illness. Being able to chat with other young people your age may answer some of your questions you may have. Who Is This Young Person's Online Support Group For? This online support group is for those UNDER 18 years of age and who have Complex Regional Pain Syndrome (CRPS.) If you are under 14 years of age you will need to have a parent or guardian will you at the start of the online support group to agree that you are able to join the group. Once we have confirmation at the start, we are happy for you to ask them to leave the group so you are able to talk. If you are over 18, we ask that you join our regular monthly online CRPS support group which are advertised in our Support Group events section. How To Join Our Young Person's Online CRPS Support Group We will be holding our young person's online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Are you a young person affected by Complex Regional Pain Syndrome? Join our young person's online CRPS Support Group on 14 October 2021. Young Person's Online Support Group Details Date: Thursday 14th October 2021 Time: 4:30 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Questions If you or your parents/guardians have any questions please get in touch with us by email or by phone on 01663 795055.

Loved Ones & Caregivers Online Support Group (October 2021)

Loved Ones & Caregivers Online Support Group - October 2021 Has your partner, child/teen, family member, friend or person you care for, been diagnosed with Complex Regional Pain Syndrome (CRPS)? Join Burning Nights CRPS Support for our online virtual loved ones and caregivers support group on Tuesday 19 October 2021 at 7 pm U.K. time. CRPS doesn’t just affect those who have been diagnosed with the condition and we do understand. This debilitating condition can have an effect on all those around the patient, just in different ways. Seeing your loved one, friend, child or person you care for go through extreme pain, struggle with daily living or have trouble dealing with the diagnosis, can be extremely difficult, often knowing there is little you can do to help relieve them of their pain. However being able to chat with other people in similar situations may help you answer some of the questions you may have, or give you that important support you need. Who Is This Loved Ones & Caregivers Online Support Group For? This online support group is for parents, partners, loved ones, family members, friends or carers (paid or unpaid) of anyone who has been diagnosed with Complex Regional Pain Syndrome (CRPS). If you are a patient with CRPS, we ask that you join our regular monthly online CRPS support group which are advertised in our Support Group events section. How To Join Our Young Person's Online CRPS Support Group We will be holding our virtual loved ones and caregivers support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue ‘register now’ button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group on 19 October 2021. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Loved Ones & Caregivers Online Support Group Details Date: Tuesday 19 October 2021 Time: 7 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue-button above to receive the sign-in details including the password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation button below. Questions If you have any questions please get in touch with us by email or by phone on 01663 795055.

Rock n’ Roll Liverpool Marathon

Liverpool Liverpool

Rock n' Roll Liverpool Marathon 2021 Corben Roberts is a loving husband of Amy, a CRPS sufferer. Corben has decided to help raise awareness of CRPS, through running the Rock n' Roll Liverpool Marathon. This is what Corben has said: Due to a rare disease called Synovial Chondromatosis (a type of non-cancerous tumour that arises in the lining of a joint), Amy underwent a total hip replacement in 2018. This was supposed to get her life back. Initially, her recovery went OK and things started to improve. However, since early 2019, a new condition has been diagnosed. Amy has developed CRPS - Complex Regional Pain Syndrome. Amy has been suffering and had "issues" with her hip but no one, not even I, will know how much pain she lives with every day.  Despite her pain on our wedding day in May 2019, Amy spent the whole evening on the dance floor with a smile on her face. Proving how she won't let this horrible condition beat her. The cause of CRPS isn't clearly understood and awareness in the UK is low. This is why I'd like to raise money and awareness through running the Rock n' Roll Liverpool Marathon. Whilst also completing a life long goal of my own. In 2019 I ran the Great North Run in a t-shirt that said "I run because Amy can't". Now I intend to run even further because Amy can do even less.  If you'd like to support Corben on his Rock and Roll Liverpool Marathon on 30th May 2021, please make a donation to his fundraising page. Or why not challenge yourself and fundraise for Burning Nights CRPS Support by taking on one of our challenge events or take up one of our marathon places we have our running events?

London Halloween Walk

The Oval Kennington Oval, Oval, London

London Halloween Walk 2021 Back for 2021–why not treat yourself to a hair-raising hike around some of the City’s scary streets and historic haunts? Choose your distance, gather your bravest guys & ghouls to make up a team–or go it alone if you dare and meet up with other chilling challengers. Dress to distress, and our creepy dungeon keepers at The Oval start & finish will meet, greet & shock. Once you escape there are ghostly looped routes, with zombie rest stops, and if you manage to get back in one piece there’s a macabre medal, a glass of the Devil’s fizz, some horrific hot food & drink–and a souvenir bobble hat to ward off the spirits as you head off. Join as a Team or IndividualSelf Fund or Support a CharityDiscounts for 12-16 agesChoose your Distance & Start TimeHalloween Walk AppFully Signed RouteMedics & MarshalsFree Snacks, Drinks & Hot FoodNeck Buff & Bobble HatHalloween Medal & Certificate SIGN UP & FUNDRAISING OPTIONS: Charity Sponsorship–you pay a small registration fee, do lots of fundraising and we cover the cost of your event place!Mixed Funding–pay half of the event place cost yourself, fundraise a bit less and we pay the balance of the event place cost.Self Fund–you pay the full cost of the event place-fundraise whatever you want, with no set target or deadline, and there’s no cost at all to the charity! For full details of prices –CLICK HERE! To register, please contact Laura on 01663 795 055 or email fundraise@burningnightscrps.org.

Online CRPS Support Group – November 2021

Online CRPS Support Group (November 2021) Join Burning Nights CRPS Support for our next online complex regional pain syndrome (CRPS) support group on Wednesday 10th November 2021. Our online support groups are for anyone affected by CRPS such as patients, relatives, friends, partners or carers. These take place once a month. Our next online CRPS support group is being held on Wednesday 10th November 2021 starting at 2:00 pm GMT (UK Time). How To Join Our Online CRPS Support Group As usual, we will be holding our online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group on Wednesday 10th November 2021. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Online Support Group Details Date: Wednesday 10th November 2021 Start Time: 2:00 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Just £5 could help us provide free leaflets to a CRPS patient and a relative. Questions If you have any questions please get in touch with us by email or by phone on 01663 795055.

Loved Ones & Caregivers Online Support Group (November 2021)

Loved Ones & Caregivers Online Support Group - November 2021 Has your partner, child/teen, family member, friend or person you care for, been diagnosed with Complex Regional Pain Syndrome (CRPS)? Join Burning Nights CRPS Support for our online virtual loved ones and caregivers support group on Tuesday 16 November 2021 at 7 pm U.K. time. CRPS doesn’t just affect those who have been diagnosed with the condition and we do understand. This debilitating condition can have an effect on all those around the patient, just in different ways. Seeing your loved one, friend, child or person you care for go through extreme pain, struggle with daily living or have trouble dealing with the diagnosis, can be extremely difficult, often knowing there is little you can do to help relieve them of their pain. However being able to chat with other people in similar situations may help you answer some of the questions you may have, or give you that important support you need. Who Is This Loved Ones & Caregivers Online Support Group For? This online support group is for parents, partners, loved ones, family members, friends or carers (paid or unpaid) of anyone who has been diagnosed with Complex Regional Pain Syndrome (CRPS). If you are a patient with CRPS, we ask that you join our regular monthly online CRPS support group which are advertised in our Support Group events section. How To Join Our Young Person's Online CRPS Support Group We will be holding our virtual loved ones and caregivers support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue ‘register now’ button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group on 16 November 2021. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Loved Ones & Caregivers Online Support Group Details Date: Tuesday 16 November 2021 Time: 7 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue-button above to receive the sign-in details including the password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation button below. Questions If you have any questions please get in touch with us by email or by phone on 01663 795055.

Young Person’s Online CRPS Support Group (November 2021)

Young Person's Online CRPS Support Group (November 2021) Are you under 18 years of age and have been diagnosed with Complex Regional Pain Syndrome (CRPS)? Join Burning Nights CRPS Support for our online young person's CRPS support group on Thursday 18 November 2021 at 4.30 pm. Living with CRPS when you're a young person can be very difficult and can be at times frightening. You may have lots of questions not only about your condition but also about how you're going to cope with school or college, or how you're going to make new friends when you have a chronic illness. Being able to chat with other young people your age may answer some of your questions you may have. Who Is This Young Person's Online Support Group For? This online support group is for those UNDER 18 years of age and who have Complex Regional Pain Syndrome (CRPS.) If you are under 14 years of age you will need to have a parent or guardian will you at the start of the online support group to agree that you are able to join the group. Once we have confirmation at the start, we are happy for you to ask them to leave the group so you are able to talk. If you are over 18, we ask that you join our regular monthly online CRPS support group which are advertised in our Support Group events section. How To Join Our Young Person's Online CRPS Support Group We will be holding our young person's online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Are you a young person affected by Complex Regional Pain Syndrome? Join our young person's online CRPS Support Group on 18 November 2021. Young Person's Online Support Group Details Date: Thursday 18th November 2021 Time: 4:30 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Questions If you or your parents/guardians have any questions please get in touch with us by email or by phone on 01663 795055.

We Need Your Support

Please help us provide counselling to people affected by CRPS. Our help, services and advice are only possible thanks to donations from people like you. If you can, please donate now.

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