CRPS awareness month has been going on around the world for over 22 years, to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD. The more people including the general public, medical/healthcare and legal professionals are made aware of Complex Regional Pain Syndrome, will help all those living with the chronic condition to get diagnoses quicker and treatment started sooner. If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome? How You Can Help Raise Awareness of CRPS During CRPS Awareness Month Here are some general ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS) during CRPS awareness month 2021: Buy any of our CRPS awareness products - Leaflet | Postcard | Wristband | Bookmark | Enamel Badge | Pen | Notepad and Pen set | Christmas Cards .... Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity. Contact your MP and let them know about our Campaign to Raise Awareness of CRPS in Westminster. Visit our CRPS campaign in Westminster article on this which includes a free template letter which you can just add your brief story and send it to your local MP.Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last 4 years and Blackpool Tower have doneTalk to your local Doctors' surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain. Contact us if your surgery would like to include them in their waiting room or ask the Practice Manager to contact usAsk your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects youProvide a brief article for your local newspaperAsk to give an interview on your local radio stationShare your CRPS story with usHold a coffee morningMake a donation via our donation pageHold a fundraiser - See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are availableAsk your friends and family to post on social media about you and your CRPS story or share our websiteCheck out our CRPS Awareness Month page!Donate £5 by Text - Text ORANGE to 70500 to give £5 to Burning Nights CRPS Support. Texts cost donation plus 1 message at your standard network rate. 100% goes to the charity. Always ask the bill payers permission. Donate £3 per month by Text - You can also pay a regular £3 per month - Text STRENGTH to 70300 to donate £3 per month. 100% to Burning Nights CRPS Support. Ts and Cs apply Healthcare and Legal Professionals and Students During CRPS Awareness Month For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS (within 2 hour radius of the charity's location. Over 2 hours we ask for a £50 donation towards the cost of the expenses) These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity's Founder and Chair who provides these CRPS awareness sessions. We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you'd like us to send you a small supply. Schools, Colleges & Universities We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions not only during CRPS awareness month 2021 but all year round. Learn More About Complex Regional Pain Syndrome (CRPS) You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as: WHAT IS CRPS? HISTORY OF CRPS HOW CRPS IS CAUSED CRPS DIAGNOSIS & PROGNOSIS CRPS SIGNS & SYMPTOMS CRPS TREATMENTS You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series: Alternative Therapy for CRPS and Persistent Pain Psychological Treatments for CRPS and Persistent Pain As well as our CRPS Pain Diary, Coping with CRPS/RSD, Acceptance of CRPS/RSD, Dorsal Root Ganglion (DRG) Stimulation treatment for CRPS, Amputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy. What's Going On During CRPS Awareness Month 2021? We have our 7th Annual National CRPS Conference on Sunday 21st November 2021 which should be fantastic! We also have a couple of fundraising events and landmarks that are supporting us by changing their lights to orange. We also have our silent auction as well! See below for more information. Silent Auction For 2021 we have a very special auction prize! We are holding a silent auction in aid of Burning Nights CRPS Support from 1st November 2021 up to 20th November 2021. We have just 1 amazing prize up for auction - a framed signed cap, signed by Formula 1 McLaren team 2021 - Lando Norris and Daniel Ricciardo. Within the frame there is the signed cap along with 2 images of the two drivers. There is a reserve amount of £300. If you are a Formula 1 fan, why not make a bid for this very special prize and help Burning Nights CRPS Support raise valuable funds. How To Make A Bid To make a bid for this fantastic prize, please send you bid in UK pounds (£) together with your fill contact details to email@example.com In the subject line please include Auction 2021. We are inviting you to bid from […]
Online CRPS Support Group (December 2021) Join Burning Nights CRPS Support for our next online complex regional pain syndrome (CRPS) support group on Wednesday 8th December 2021. Our online support groups are for anyone affected by CRPS such as patients, relatives, friends, partners or carers. These take place once a month. Our next online CRPS support group is being held on Wednesday 8th December 2021 starting at 2:00 pm GMT (UK Time). How To Join Our Online CRPS Support Group As usual, we will be holding our online CRPS support group using Zoom video conferencing. Please register in advance for our online CRPS Support group via the REGISTRATION link OR click on the blue button below. After registering via the link, you will receive a confirmation email containing information about joining the support group. Please also check your spam/junk folder as well as your inbox for this confirmation of registration email to enable you to join the group on Wednesday 8th December 2021. You can also download the Zoom app on your phone or tablet. The Zoom app is available for both iOS and Android. You may receive a computer safety notice when you download Zoom. Online Support Group Details Date: Wednesday 8th December 2021 Start Time: 2:00 PM Greenwich Mean Time (UK time) Where: Online via Zoom online conferencing How: Using Zoom video conferencing either online using the link you will be sent after registering, via the Zoom app on your android/iPhone or via the phone using your country's phone number listed after registering. You need to register your interest beforehand via the blue button above to receive the sign in details including password. After registering, you will receive a confirmation email containing information about joining the meeting. Cost: Free - but to help support Burning Nights CRPS Support in these very difficult times and to help us keep these online support groups free of charge please consider making a small donation via the 'make a donation' button below. Just £5 could help us provide free leaflets to a CRPS patient and a relative. Questions If you have any questions please get in touch with us by email or by phone on 01663 795055.