Take on the 5K May 2022 Challenge Take on the 5K challenge during May 2022 to support Burning Nights CRPS Support Will you take on the 5k May challenge during National Walking Month? Challenge yourself to a 5K walk, roll or run at any time throughout the month of May. Ask your family, friends or colleagues to sponsor your walking challenge and raise much needed donations for us. Remember that you don't have to complete the 5km all at once, why not spread it over the month and you can chart your success to share them on your fundraising page? The counselling service has genuinely changed my life for the better. For the first time since being diagnosed with CRPS I felt truly listened to and understood. I would recommend it to anyone. The amount of counselling is amazing. My counsellor has set me up for life with the skills and understanding she taught me. I can't verbalise how much good the service has done for me.AD, CRPS Patient Why Take Part? When the coronavirus pandemic took hold, Burning Nights CRPS Support saw a 38% increase in calls and emails from CRPS patients thinking about taking their own lives. With a major mental health crisis in the CRPS community now on our hands, we launched a counselling service to give patients a chance to work through their problems with a professional. We’re providing up to 20 hours of counselling or therapy free of charge to patients and their families, many of whom struggle to make ends meet because chronic pain means they cannot work. But therapy comes at a hefty cost to us and demand is far outstripping our current ability to provide and pay for this crucial service. Our other services such as our befriending service has also been very well received and has been of important value to many CRPS patients and their families. We provide 12 weekly phone calls or Zoom chats of up to 40 minutes each from one of our trained volunteer Befrienders who all live with CRPS themselves. Our charity's Founder and Chair, Victoria Abbott-Fleming said: “The pandemic hit Burning Nights CRPS Support badly just as it has for other small charities. As a small national charity, every pound and penny raised is crucial. Two of our support services for Complex Regional Pain Syndrome patients and their families - the counselling service and befriending service both need funding. During the Pandemic the charity had an increase of 38% of suicide related calls and emails, and an increase of 156% on requests for our support services. If you can roll, swim, dance, skate, run or walk a total of 5K during May, you will be helping to support vulnerable people struggling at a low point in their life.” How To Take Part You can take part on your own or as a group, set up a Just Giving page in aid of Burning Nights CRPS Support, start your fundraising and get yourself ready for taking on a total of 5km during the month of May. You can walk, roll, run, skate, cycle or even swim a total of 5km between the 1-31 May 2022. You need to be able to chart your success either in a activity watch or through an app lilke Strava. If you use Strava you can also link it to your Just Giving fundraising page and share your success with your supporters! Learn how to link your Strava account to your Just Giving page here. We can also send you one of our orange fundraising t-shirts and blank event posters to help you raise awareness of CRPS and also of your fundraising event. Check out some of our other fundraisers below! Not interested in the 5k May challenge? Why not consider fundraising for Burning Nights CRPS Support by taking on something else? Take a look at our fundraising ideas and tips page or our virtual fundraising ideas to find a fundraiser to take on. To start your 5k challenge, click on the button below and set up your fundraiser!
The Burning Nights CRPS Support 8th Annual National CRPS Conference is announced for 2022! The Burning Nights CRPS Support 8th annual CRPS conference is aimed 2022 will be held on Saturday 26 November 2022. Our annual conferences are aimed at patients living with complex regional pain syndrome, their families and friends to help give them support and to help their understanding of the condition, treatment options and more. The full one day conference is to help those living with CRPS and their families to provide them with the latest information and support and to help their understanding of the condition, treatment options and more. The conference is also available to health professionals and healthcare students. This year our CRPS conference is being held on SATURDAY 26 NOVEMBER 2022 and due to a very generous donation from an Estate, will be at the Novotel Edinburgh Park. We will also be holding a very informal get together on the Friday 25 November in the evening in the bar area. Here's all the necessary details within this event page that you'll need for the 2022 8th annual CRPS conference: Essential InformationSpeakersGetting Your TicketsRaffleStaying At The HotelParking At The Hotel Why not watch our brief 5 minute highlight video of what went on during our 2019 5th Annual National CRPS Conference which was held in Newcastle that took place in November 2019. Watch our 2019 5th Annual Conference Event If you're interested in coming along to our 8th Annual National Burning Nights CRPS Support Conference at the Novotel Edinburgh Park, please fill in the RSVP box below this event and event details. DETAILS DATE: Friday 25 November 2022 (evening) - we will be having a very informal get together in the evening of the 25th November in the bar area. Saturday 26 November 2022 - conference day TIME: Friday 25 November 2022 - this will be a very informal get together in the bar area where you can come and go when you would like any time from 7.30pm onwards Saturday 26 November 2022 - We start at 9.30am with registration starting at 08.45am and finish around 4.00pm / 4.30pm. However you are able to come and go as you wish. COST: Conference is FREE for CRPS patients and their families* On the day of the conference (Saturday 26 November 2022) Lunch and refreshments will be included free of charge. However please do consider making a donation either as a one off gift or as a regular donation, by clicking the button below: WHERE: Novotel Edinburgh Park, 15 Lochside Ave, Edinburgh EH12 9DJ CONFERENCE LUNCH & REFRESHMENTS: Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are free and form part of the day's event. If your dietary requirements fall out of this we ask that you contact the hotel direct with your requests. THE HOTEL: The Novotel Edinburgh Park is deemed a disabled friendly hotel. The conferencing area has a flat entrance leading from the main hotel reception. The area has a mixture of carpet and tiles. This is a flat area which is suitable for wheelchairs and scooters. There are accessible toilet facilities in the hotel and also in the conference area. The hotel is easily accessible from the local train station and is two-minute walk from Edinburgh Park rail station and a 12-minute ride to the city centre. The nearest airport is Edinburgh International Airport which is 4km away. PARKING: There are parking spaces available at the hotel and this includes a limited number of Blue Badge spaces. There are obviously not a large number of these places available. The parking is part of the conference and when you arrive in reception please let them know that you are in the car park and that you are attending the conference. SPONSOR: If you are interested in sponsoring our 8th annual national CRPS conference please email our Chair, Victoria or contact the charity. It is with the generosity of sponsors that we can keep the annual national CRPS conference free of charge for CRPS patients and their loved ones. However please consider making a donation to help keep our essential support services running. SPEAKERS As soon as our speakers are confirmed we will include their details below. Our speakers will always have working knowledge of Complex Regional Pain Syndrome, living with CRPS or disability due to CRPS. CRPS CARERS & CRPS PATIENTS' SPEAKERS We are looking for at least 3 patients or family members to speak about their experiences. If you would like to share your CRPS journey at the conference please contact us or email us at email@example.com Silent Auction For 2022 we have a very special auction prize! We are holding the auction in aid of Burning Nights CRPS Support on the day of the conference. Bids will be taken from anyone who is attending the conference. There will be no online or telephone bids for this item. We are thrilled to announce that we have been gifted a SIGNED MANCHESTER UNITED FOOTBALL with Certificate of Authenticity that we will be auctioning off on the day of the conference! Bids for this item will only be taken on the day of the conference and in person. How To Make A Bid To make a bid for this fantastic prize, you must attend the conference and the bid must be in UK pounds (£) If you have any items that you would like us to auction for the charity please contact us. Rules of the auction: Bids must be made clear in UK pound sterling and sent by emailParticipants must be aged 18 years or over and have a valid bank account to transfer to the UK account of Burning Nights CRPS Support d or valid cheque by which to make payment or pay via our website Auction items MUST be paid for in FULL before we can give you the item. Please do not make a bid unless you are able to pay for the item in fullPayment can be […]