Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
2017-10-30
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Three Lakes Challenge

Thursday, April 20, 2017 @ 8:00 am - Friday, December 29, 2017 @ 5:00 pm
Three Lakes Challenge | In aid of Burning Nights CRPS Support

Three Lakes Challenge Fundraiser   2 gentlemen - Graham and Michael - will be taking on the Three Lakes Challenge fundraiser in a canoe in aid of Burning Nights CRPS Support over the next few months.   Graham's step-daughter is a Complex Regional Pain Syndrome (CRPS) sufferer and is also one of Burning Nights CRPS Support's trustees. The 2 men will canoe across the longest lakes in Wales, England and Scotland which are: Bala Lake Loch Awe Lake Windermere Three Lakes Challenge - Graham and Michael   Their first lake has already been completed at the end of April and they are hoping to complete their second late towards the end of June. Please show your support for these men battling against the British weather by making a small donation to their fundraiser via their Three Lakes Challenge Fundraiser link. GOOD LUCK GRAHAM AND MICHAEL!   Last Updated: 22/05/2017 LET'S SPREAD AWARENESS of CRPS! 

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November is CRPS Awareness Month 2017

Wednesday, November 1, 2017 @ 9:00 am - Thursday, November 30, 2017 @ 5:00 pm
Worldwide United States
Complex Regional Pain Syndrome (CRPS) Awareness Month - November 2017 | Burning Nights CRPS Support charity | Please support CRPS Awareness!

November is CRPS Awareness Month 2017   For the whole month of November across the world we will be recognising International CRPS Awareness Month 2017!    For the last 19 years CRPS awareness month has been going on around the world to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD. The more people including the public, medical and legal professionals are made aware of Complex Regional Pain Syndrome will help those living with the chronic condition to get diagnoses and treatment started sooner.   CRPS Awareness Month November 2017 | Burning Nights CRPS Support charity     If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome?   HOW YOU CAN HELP RAISE AWARENESS FOR CRPS Here are some ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS):   Sign up to our Thunderclap message - Are you on Facebook, Twitter or Tumblr? If so, you can sign up free to our one (1) Thunderclap message for CRPS awareness month which will go out on 30 November 2017 at 12 noon. We are aiming to get the hashtag CRPS trending on the final day of Complex Regional Pain Syndrome awareness month. Please help and support our campaign!   Buy any of our CRPS awareness products - Leaflet | Postcard | Wristband | Bookmark | Enamel Badge | Pen | Notepad and Pen set ... We're including a FREE CRPS information leaflet for every order during November 2017! Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last year and are doing this year, as are First Direct Arena and Blackpool Tower Talk to your local Doctors' surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain Ask your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects you Provide a brief article for your local newspaper Ask to give an interview on your local radio station Hold a coffee morning Hold a fundraiser - See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are available Ask your friends and family to post on social media about you and your CRPS story or share our website Check out our CRPS Awareness Month page!     HEALTHCARE & LEGAL PROFESSIONALS & STUDENTS For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS. These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity's Founder and Chair who provides these CRPS awareness sessions. We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you'd like us to send you a small supply.   SCHOOLS, COLLEGES & UNIVERSITIES We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions.     LEARN MORE ABOUT COMPLEX REGIONAL PAIN SYNDROME (CRPS) You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as: WHAT IS CRPS? HISTORY OF CRPS HOW CRPS IS CAUSED CRPS DIAGNOSIS & PROGNOSIS CRPS SIGNS & SYMPTOMS CRPS TREATMENTS   You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series: Alternative Therapy for CRPS and Persistent Pain Psychological Treatments for CRPS and Persistent Pain   As well as our CRPS Pain Diary, Coping with CRPS/RSD, Acceptance of CRPS/RSD, Dorsal Root Ganglion (DRG) Stimulation treatment for CRPS, Amputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy.       WHAT'S GOING ON DURING NOVEMBER - CRPS AWARENESS MONTH? We have a few fundraising events as well as landmarks and town halls that are supporting us by changing their lights to orange. Why not check out our events calendar to see what's going on and where during November - CRPS awareness month? In addition to those fundraising events we also have 3 landmarks who have kindly agreed to change their building lights to orange in support of CRPS awareness month:   MANCHESTER TOWN HALL - Manchester Town Hall will be lighting up their beautiful town hall building on Thursday 2nd November 2017 for the 3rd year running. Thank you! FIRST DIRECT ARENA - The First Direct Arena will be changing their outside arena lights to orange on Monday 6th November 2017 which is Colour The World Orange Day. Thank You! BLACKPOOL TOWER - Why not go along to the Tower on Wednesday 8th November 2017, take some photos and share them with us on social media?! Thank You Blackpool Tower!   Here are some images of Manchester Town Hall who have supported CRPS awareness month over the last 2 years:     Making people aware about CRPS is the key to getting the condition properly recognised across the world. It could help ensure that sufferers are correctly diagnosed and treated when they visit their GP's, doctors and hospitals. There are so many ways that you can try and get the message across to people […]

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9:30 am

3rd ANNUAL NATIONAL BURNING NIGHTS CRPS SUPPORT CONFERENCE

Saturday, November 4, 2017 @ 9:30 am - 4:00 pm
Marriott Bexleyheath, 1 Broadway
Bexleyheath, Kent DA6 7JZ United Kingdom
Free Sold out
3rd Annual National Burning Nights CRPS Support Conference

3rd ANNUAL NATIONAL BURNING NIGHTS CRPS SUPPORT CONFERENCE   The Burning Nights CRPS Support FREE 3rd Annual National Burning Nights CRPS Support conference event is on Saturday 4 November 2017! 3rd Annual National Burning Nights CRPS Support Conference Due to the amazing successes of our last 2 Annual Burning Nights CRPS Support conference events in 2015 and 2016, our 3rd annual national CRPS conference is being held this year on Saturday 4th November 2017 and due to popular request it will be held in the South at the Marriott Bexleyheath, Kent (DA6).   UPDATE: This event is now full! However we have a cancellation list in place now, so if you'd like to attend our Complex Regional Pain Syndrome UK conference to gain support and CRPS information please contact us and we will put your name down, email address and number of tickets you'd like if you are successful in the event of people cancelling.   Here's all the necessary details within this event page that you'll need for this year's annual national CRPS conference: Essential information Speakers Getting Your Tickets Raffle Auction Staying At The Hotel Parking At The Hotel   Check out our short 5 minute highlight video of what went on during our Inaugural Burning Nights CRPS meet & greet event:   Our last year's Burning Nights CRPS Support annual national conference was held at the Manchester Marriott hotel in September 2016. Here's what went on last year:     Prefer to read about our event last year? Why not check out our 2nd Annual Burning Nights CRPS Meet & Greet Conference blog or check out our Inaugural Burning Nights CRPS Meet & Greet blog?! If you are interested in coming along to our 3rd Annual National Burning Nights CRPS Support Conference please fill in the RSVP box below this event and event details.     DETAILS DATE: Saturday 4th November 2017 TIME: Starting at 9.30am and finishing around 4pm (You are free to come and go as you like) COST: FREE!! WHERE: Marriott Bexleyheath hotel, 1 Broadway, Bexleyheath, Kent, DA6 7JZ LUNCH & REFRESHMENTS: Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are FREE for you during the day's event.   The Marriott Bexleyheath is a wheelchair and disabled friendly hotel. The bar, restaurant and some bedrooms are on the ground floor. There are some rooms on upper floors and the conference room is on the 1st floor which is accessible via lifts. SPEAKERS:   This year we have 4 confirmed speakers who are: Mr James Fitzgerald, a neurosurgeon who regularly implants the Dorsal Root Ganglion stimulators for CRPS sufferers Dr Chris Jenner, Consultant in Pain Medicine specialising in CRPS from the London Pain Clinic - Dr Jenner is a very well qualified doctor with a number of years experience in pain medicine including Complex Regional Pain Syndrome (CRPS). His talk will be an overview of CRPS and the available treatment options Chris Edwards, Motability Operations - Chris will be giving a talk on the Motability scheme, how it works, what is available etc. Mr Rob Warren, Clinical Director of Plexus Healthcare - Rob's talk is entitled 'How best to use your OT - What they do and what they can do for people with CRPS' To learn more about each of the confirmed speakers this year, please visit our 3rd Annual National Burning Nights CRPS Conference blog.   CRPS CARERS & SUFFERERS SPEAKERS We are looking for CRPS carers and sufferers who would be willing to give a short talk about their lives either living with CRPS or as someone who cares/loves someone with CRPS. If you're interested in speaking at our 3rd Annual National Burning Nights CRPS Support Conference please get in touch with us and let us know.   HOW TO GET YOUR TICKETS: We only have a limited number of 100 places for our very popular annual national CRPS conference, so get your name on our list early to avoid any disappointment! Please click on the RSVP Ticket box below the map and details of the event to give the following information: how many tickets you would like (maximum of 4 per person), your name, email,   RAFFLE & AUCTION This year, we will be holding 1 raffle and 1 auction on the day of the conference! The raffle will take place and drawn on the day of the conference and will only be available to those attending our CRPS support conference. UPDATE - Due to the Collapse of Monarch Airlines we have suspended the sale of raffle tickets as of Monday 2nd October 2017. We are now looking into the possibility of obtaining a similar prize from another flight company. If this fails then we will be in contact with everyone who has purchased tickets to let them know of the situation and to offer you a refund. The auction will also take place on the day of the conference and will be finalised on that day. The winning bidder must pay for their item on the day of the conference. The item will not be given to the winning bidder until it has been paid for. We are able to accept cash, PayPal or a bank transfer on the day.     RAFFLE PRIZES Check out our blog for this year's 3rd Annual National CRPS Conference in Bexleyheath for more information on this year's raffle prizes so far!   If you know any companies who would be willing to donate a raffle prize to us please contact us If you are part of a company or you own a business and would consider kindly donating a prize to our raffle, please contact us! All the money raised on the day will go towards the charity.   AUCTION We have been generously given 2 fabulous items that we will be auctioning off on the day of the conference! Those attending the conference will be able to bid for these items on the day. Payment MUST be made in full on the day and items won't be released until payment has been received. You are able to […]

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