Three Lakes Challenge Fundraiser 2 gentlemen - Graham and Michael - will be taking on the Three Lakes Challenge fundraiser in a canoe in aid of Burning Nights CRPS Support over the next few months. Graham's step-daughter is a Complex Regional Pain Syndrome (CRPS) sufferer and is also one of Burning Nights CRPS Support's trustees. The 2 men will canoe across the longest lakes in Wales, England and Scotland which are: Bala Lake Loch Awe Lake Windermere Three Lakes Challenge - Graham and Michael Their first lake has already been completed at the end of April and they are hoping to complete their second late towards the end of June. Please show your support for these men battling against the British weather by making a small donation to their fundraiser via their Three Lakes Challenge Fundraiser link. GOOD LUCK GRAHAM AND MICHAEL! Last Updated: 22/05/2017 LET'S SPREAD AWARENESS of CRPS!
November is CRPS Awareness Month 2017 For the whole month of November across the world we will be recognising International CRPS Awareness Month 2017! For the last 19 years CRPS awareness month has been going on around the world to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD. The more people including the public, medical and legal professionals are made aware of Complex Regional Pain Syndrome will help those living with the chronic condition to get diagnoses and treatment started sooner. CRPS Awareness Month November 2017 | Burning Nights CRPS Support charity If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome? HOW YOU CAN HELP RAISE AWARENESS FOR CRPS Here are some ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS): Sign up to our Thunderclap message - Are you on Facebook, Twitter or Tumblr? If so, you can sign up free to our one (1) Thunderclap message for CRPS awareness month which will go out on 30 November 2017 at 12 noon. We are aiming to get the hashtag CRPS trending on the final day of Complex Regional Pain Syndrome awareness month. Please help and support our campaign! Buy any of our CRPS awareness products - Leaflet | Postcard | Wristband | Bookmark | Enamel Badge | Pen | Notepad and Pen set ... We're including a FREE CRPS information leaflet for every order during November 2017! Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last year and are doing this year, as are First Direct Arena and Blackpool Tower Talk to your local Doctors' surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain Ask your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects you Provide a brief article for your local newspaper Ask to give an interview on your local radio station Hold a coffee morning Hold a fundraiser - See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are available Ask your friends and family to post on social media about you and your CRPS story or share our website Check out our CRPS Awareness Month page! HEALTHCARE & LEGAL PROFESSIONALS & STUDENTS For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS. These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity's Founder and Chair who provides these CRPS awareness sessions. We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you'd like us to send you a small supply. SCHOOLS, COLLEGES & UNIVERSITIES We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions. LEARN MORE ABOUT COMPLEX REGIONAL PAIN SYNDROME (CRPS) You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as: WHAT IS CRPS? HISTORY OF CRPS HOW CRPS IS CAUSED CRPS DIAGNOSIS & PROGNOSIS CRPS SIGNS & SYMPTOMS CRPS TREATMENTS You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series: Alternative Therapy for CRPS and Persistent Pain Psychological Treatments for CRPS and Persistent Pain As well as our CRPS Pain Diary, Coping with CRPS/RSD, Acceptance of CRPS/RSD, Dorsal Root Ganglion (DRG) Stimulation treatment for CRPS, Amputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy. WHAT'S GOING ON DURING NOVEMBER - CRPS AWARENESS MONTH? We have a few fundraising events as well as landmarks and town halls that are supporting us by changing their lights to orange. Why not check out our events calendar to see what's going on and where during November - CRPS awareness month? In addition to those fundraising events we also have 3 landmarks who have kindly agreed to change their building lights to orange in support of CRPS awareness month: MANCHESTER TOWN HALL - Manchester Town Hall will be lighting up their beautiful town hall building on Thursday 2nd November 2017 for the 3rd year running. Thank you! FIRST DIRECT ARENA - The First Direct Arena will be changing their outside arena lights to orange on Monday 6th November 2017 which is Colour The World Orange Day. Thank You! BLACKPOOL TOWER - Why not go along to the Tower on Wednesday 8th November 2017, take some photos and share them with us on social media?! Thank You Blackpool Tower! Here are some images of Manchester Town Hall who have supported CRPS awareness month over the last 2 years: Making people aware about CRPS is the key to getting the condition properly recognised across the world. It could help ensure that sufferers are correctly diagnosed and treated when they visit their GP's, doctors and hospitals. There are so many ways that you can try and get the message across to people […]
Occupational Therapy Show 2017 It's that time of year again! The Occupational Therapy (OT) Show 2017 will be at the NEC in Birmingham and Burning Nights CRPS Support charity will be exhibiting there once again on Stand E85! The Occupational Therapy Show is considered to be the UK's largest dedicated event aimed at Occupational Therapists (OTs). This year it's taking place on 22 & 23 November 2017 at the NEC in Birmingham. Interested in coming along to the Occupational Therapy Show 2017 and meeting some of the Burning Nights CRPS Support charity's team? You need to register for your ticket but this is easily done via the Burning Nights CRPS Support bespoke registration link. Here are some of our photos from the Occupational Therapy Show 2016 If you do visit our stand (Stand E85 Burning Nights CRPS Support charity) at the Occupational Therapy Show 2017, please speak to our team about our CRPS awareness sessions and put your name down. After the show we will be in contact with you by email to discuss the awareness sessions in more detail. If you don't get the chance to speak to any of our volunteers at the Occupational Therapy Show 2017 but you're interested in our CRPS awareness sessions, please email Victoria our Founder who will give you all the necessary information. Look forward to meeting you at Stand E85! Burning Nights CRPS Support, the UK charity dedicated to raising awareness and supporting all those affected by Complex Regional Pain Syndrome (CRPS) will be exhibiting at this year's Occupational Therapy Show 2017 at the NEC, Birmingham. You can find us on STAND E85 Occupational Therapy Show 2017 Meet Burning Nights CRPS Support charity on Stand E85 At the Occupational Therapy Show 2017: Access over 100 OT focused and interactive lectures, seminars and practical workshops Over 70 hours of FREE CPD accredited education to choose from Learn from world-renowned speakers and experts Update and refresh your learning across physical, mental health & learning difficulties, children & families and innovation, plus many more hot topics and specialist areas including research sessions and the poster zone Research and source new products and services through a network of 270+ trade exhibitors and suppliers. Occupational Therapy Show 2017 If you want to find more about CRPS, our charity or even about our CRPS training sessions that we offer, then come and visit us on STAND E85 at the Occupational Therapy (OT) Show in Halls 9 and 10 at the NEC in Birmingham, UK! Look forward to meeting you there! Written: 10/10/2017 LET'S SPREAD AWARENESS of CRPS!