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Giving Tuesday 2018 Burning Nights CRPS Support joins the Giving Tuesday 2018 movement to encourage people around the UK to do “good stuff” this Christmas! Burning Nights CRPS Support has announced it is taking part in this year’s Giving Tuesday 2018 campaign which this year is on Tuesday 27 November 2018. The Giving Tuesday campaign, which began in America, has now been running in the UK since 2014 and is an antidote to the mass consumerism of Black Friday. Giving Tuesday aims to get people thinking of others in the run up to Christmas, be it through donating to charity, volunteering or simply helping a friend, neighbour or family member. Burning Nights CRPS Support was founded in September 2014 by Victoria Abbott-Fleming, who lives with Complex Regional Pain Syndrome (CRPS) and is a bilateral above knee amputee due to Complex Regional Pain Syndrome (CRPS) and its many symptoms. They became a registered charity in April 2016. Burning Nights CRPS Support charity is dedicated to raising awareness & supporting people affected by a poorly understood neuropathic pain condition, Complex Regional Pain Syndrome (CRPS). Read more about how Burning Nights CRPS Support was founded. CRPS affects 1 in 3,800 people in the UK which is approximately 15,000 newly diagnosed cases every year, which doesn’t account for those who may have been undiagnosed or misdiagnosed. CRPS can cause a person to experience persistent, severe and debilitating pain. The condition may develop after an injury, surgery, stroke or heart attack, but the pain is out of proportion with the severity of the initial injury or trauma. The cause of Complex Regional Pain Syndrome isn’t clearly understood and CRPS awareness in the UK is low. Burning Nights CRPS Support provides a range of frontline services to help those affected by CRPS, including helpline, online forum, email & social media support, range of information and awareness products designed to help people understand the effects of CRPS annual conference, regional support groups, Access to legal support Provide interviews and volunteers for interviews in the media and on social media Assist in CRPS research projects and surveys and help to provide volunteers Awareness sessions for schools, the public, health & legal professionals Fundraising Support We’re self-funding and rely entirely on fundraising and donations. We don't receive any Government funding. There are a few ways you can help & all that’s needed is a couple of hours a week either as a volunteer or helping us fundraise. For every order made via our online CRPS shop during CRPS awareness month including Giving Tuesday 2018 up to and including 30 November 2018 (midnight GMT), we will give you not only one of our CRPS information leaflets, a button pin badge AND a CRPS wristband FREE of charge per order to one address*! (*Ts & Cs apply) If you'd like to fundraise for Burning Nights CRPS please contact us and we will send you a fundraiser supporters info pack. Here are some fundraising ideas: Coffee morning, Talk at your local school/college, Ask local businesses/library/shops/supermarkets to see if they will put up our A4 charity information posters Speak to your GP/Pain specialist/physio/OT/solicitor & ask if they'll include our CRPS information leaflet in their surgery/clinic/office. If your GP, physio, OT or pain specialist wants to include our leaflet in their surgery please give us their name and address and we will send the leaflets direct to them. Since its inception in the UK in 2014, Giving Tuesday has become one of the biggest events in the global charity calendar, breaking successive Guinness World Records for the most amount of money donated online to charity in 24 hours. In 2016, £48 million was donated online via PayPal with the UK accounting for the second largest amount of donations. An estimated 4.5 million people in Britain also did something to support a good cause on the day. Victoria Abbott-Fleming, Founder and Chair of Burning Nights CRPS Support said: "As a UK CRPS charity we provide support to anyone affected by this life-changing chronic neuropathic pain condition, Complex Regional Pain Syndrome and to do that we rely entirely on fundraising and donations. By donating a small amount can go a long way. For £5 we can give leaflets and support to 2 people affected by CRPS. For £25 we can keep our telephone helpline running for 1 month. So perhaps instead of sending Christmas cards this year why not donate the money to Burning Nights CRPS Support? We appreciate every penny and pound that is donated to the charity." Ben Russell, Director of Communications at CAF, said: "Giving gifts is a big part of most peoples Christmas celebrations and because of this, it is no wonder that Black Friday has become such a feature of the Christmas calendar. However, while many of us will be sharing presents with loved ones this year, millions more will spend it alone, hungry or worse. The aim of #givingtuesday is to get people thinking about others this Christmas and doing little things that can make a big difference. It could be donating money to charity, volunteering in your community, or something as simple as offering to help a neighbour. If we all do something small this #givingtuesday, it could make a real difference to millions of people." Giving Tuesday 2018 Ideas There are a number of ways you can get involved in Giving Tuesday 2018 to help Burning Nights CRPS Support. Here are some ideas: Post on social media asking friends and family to help support Giving Tuesday 2018 and Burning Nights CRPS Support Share all our Giving Tuesday 2018 posts on social media and don't forget to use the hashtag #GivingTuesday Ask your local school or college to support you by giving them a brief talk on CRPS or fundraise with them Text ORANGE to 70500 to donate £5 to Burning Nights CRPS Support. T&Cs apply. 100% goes to Burning Nights CRPS Support. Learn more via our Text To Donate page. Share this event on social media Donate via BT MyDonate or click the purple box below HOW DOES YOUR MONEY HELP? Your donations are invaluable to us as […]Find out more »
November is CRPS Awareness Month 2018 For the whole month of November across the world we will be recognising International CRPS Awareness Month 2018! For the last 20 years CRPS awareness month has been going on around the world to try and raise awareness for Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy or RSD. The more people including the general public, medical/healthcare and legal professionals are made aware of Complex Regional Pain Syndrome will help those living with the chronic condition to get diagnoses quicker and treatment started sooner. If we as a CRPS charity can help just 1 (one) person affected by this chronic condition or make 1 person aware of the effects of CRPS then we have made a difference. So how can YOU help us to raise awareness for Complex Regional Pain Syndrome? HOW YOU CAN HELP RAISE AWARENESS FOR CRPS Here are some ideas of how you can help raise awareness for Complex Regional Pain Syndrome (CRPS) during CRPS awareness month 2018: Download our Twibbon for CRPS Awareness Month on both Facebook and Twitter Buy any of our CRPS awareness products - Leaflet | Postcard | Wristband | Bookmark | Enamel Badge | Pen | Notepad and Pen set | Christmas Cards ... We're including a FREE CRPS information leaflet and a button badge for every order during November 2018! Talk to your local MP about the condition and how it affects you and about Burning Nights CRPS Support charity. Contact your MP and let them know about our Campaign to Raise Awareness of CRPS in Westminster. Visit our CRPS campaign in Westminster article on this which includes a free template letter which you can just add your brief story and send it to your local MP. Speak to your local Town Hall or Library and ask them to light their building orange as Manchester Town Hall did last year and Blackpool Tower are doing again for the 2nd year Talk to your local Doctors' surgery or pain clinic about putting some of our CRPS awareness leaflets or A4 posters in their waiting rooms, to try and reach out to anyone who may be affected by Complex Regional Pain. Contact us if your surgery would like to include them in their waiting room or ask the Practice Manager to contact us Ask your local school/college to give a brief speech to their pupils to give them an idea of what CRPS is, the symptoms and how it affects you Provide a brief article for your local newspaper Ask to give an interview on your local radio station Hold a coffee morning Hold a fundraiser - See our fundraising page for ideas. We can support your fundraiser by sending you A4 posters for your event, A5 flyers & t-shirts are available Ask your friends and family to post on social media about you and your CRPS story or share our website Check out our CRPS Awareness Month page! Donate £5 by Text - Text ORANGE to 70500 to give £5 to Burning Nights CRPS Support. Texts cost donation plus 1 message at your standard network rate. 100% goes to the charity. Always ask the bill payers permission. HEALTHCARE & LEGAL PROFESSIONALS & STUDENTS For health and legal professionals as well as student healthcare professionals we provide Complex Regional Pain Syndrome (CRPS) awareness and information sessions which are currently free to those in the NHS. These sessions are individual and bespoke information and awareness and are usually from 1 hour in length up to half day events. Please contact Victoria Abbott-Fleming the charity's Founder and Chair who provides these CRPS awareness sessions. We can also send your department, clinic or company with CRPS information leaflets for both patients and professionals alike as well as an A4 poster advertising the charity and its frontline services. Please contact us if you'd like us to send you a small supply. SCHOOLS, COLLEGES & UNIVERSITIES We can also provide CRPS information sessions to any schools, colleges and universities who may have students who live with CRPS. The schools and colleges session gives you an idea about the condition as well as practical tips and advice on dealing with a student with CRPS. Please email our founder Victoria who provides these sessions not only during CRPS awareness month 2018 but all year round. LEARN MORE ABOUT COMPLEX REGIONAL PAIN SYNDROME (CRPS) You can learn more about Complex Regional Pain Syndrome (CRPS) via pages within our website, such as: WHAT IS CRPS? HISTORY OF CRPS HOW CRPS IS CAUSED CRPS DIAGNOSIS & PROGNOSIS CRPS SIGNS & SYMPTOMS CRPS TREATMENTS You can also find more information and support about living with CRPS in our blog area. Here we have a couple of blog series: Alternative Therapy for CRPS and Persistent Pain Psychological Treatments for CRPS and Persistent Pain As well as our CRPS Pain Diary, Coping with CRPS/RSD, Acceptance of CRPS/RSD, Dorsal Root Ganglion (DRG) Stimulation treatment for CRPS, Amputation for CRPS and other blogs on various topics on life with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy. WHAT'S GOING ON DURING NOVEMBER - CRPS AWARENESS MONTH 2018? We have a couple of fundraising events and landmarks that are supporting us by changing their lights to orange. Why not check out our events calendar to see what's going on and where during November - CRPS awareness month 2018? In addition to those fundraising events we also have 3 landmarks who have kindly agreed to change their building lights to orange in support of CRPS awareness month: BLACKPOOL TOWER - Why not go along to the Tower on 5th November 2018, take some photos and share them with us on social media?! Thank You Blackpool Tower! Here are some images of Manchester Town Hall and Blackpool Tower who have supported CRPS awareness month in the last 2 years: Making people aware about CRPS is the key to getting the condition properly recognised across the world. It could help ensure that sufferers are correctly diagnosed and treated when they visit their GP's, doctors and hospitals. There are so many ways that you can try and get the message across to people about Complex Regional Pain Syndrome during CRPS awareness month this November 2018. So why not let us know what you're up to help raise awareness for Complex Regional Pain Syndrome month?! What are YOU doing to help during CRPS awareness month 2018??! Don't forget to […]Find out more »