Events for Sunday, July 28, 2019
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One of Burning Nights CRPS Support followers and supporters; Robert Hunt, will be undertaking 5 half marathons for CRPS. Robert's partner lives with Complex Regional Pain Syndrome and therefore has chosen to support Burning Nights CRPS Support charity because of his partner. Robert will be taking on 5 half marathons in March. May. August, September and October. Please support him in any way you can either by making a small donation, by cheering him on at the marathons or by sharing his fundraising page. Wishing Robert all the very best and Good Luck for all 5 of the half marathons for CRPS!Find out more »
Maddie is a 16 year old CRPS patient who is also a wheelchair athlete. This year Maddie will be undertaking several wheelchair racing events including London Mini Marathon and the Superhero Tri. Maddie Rolls Again is the name of Maddie's fundraising page and she's raising awareness and donations for three UK charities including Burning Nights CRPS Support, Birmingham Children's Charity and Diabetes UK. In Maddie's words the reason why she's chosen the three charities: I have chosen to fundraise for 3 charities this year; Burning Nights CRPS Support, Birmingham Children's Hospital Charity (BCH), and Diabetes UK.Burning Nights CRPS Support - This charity has provided me with so much support throughout my CRPS journey so farBCH - Without the help of my amazing physio and occupational therapist I would most certainly not be learning how to walk again and I am eager to give something backDiabetes UK - This one is actually for my boyfriend George. He lives with Type 1 Diabetes and it deserves way more recognition and research than it has already Maddie Gordon If you would like to support Maddie by making a donation please visit Maddie Rolls Again fundraising page or click on the Blue Button below. Or if you're able why not go along to one of her events? As Maddie says "Just because I'm disabled doesn't mean I'm unable." Good Luck Maddie!Find out more »
London To Paris Bike Ride On 24 July 2019, 2 young people; Ben and Isabelle, will be doing an absolutely amazing and difficult charity fundraiser; the London To Paris Bike Ride! Between 24 July 2019 - 28 July 2019 Ben and Isabelle will be cycling their way from London to Paris and will be raising money for 2 charities - Burning Nights CRPS Support and Melanoma UK. The bike ride is a total of 300 miles! Izzy and Ben will leave from London on Wednesday morning and then cycle 95 miles to Calais on their first day. Day two, they'll cycle from Calais to Arras – a total of 75 miles. Day 3 will be a 70 mile ride from Arras to Beauvais and then finally a 60 mile ride from Beauvais to the Eiffel Tower on the final day. They will arrive in Paris on the Saturday and will then watch the Tour de France finish in Paris on the Sunday. Isabelle or Izzy is supporting Burning Nights CRPS Support because she is a Chronic Pain Syndrome patient herself but was previously diagnosed with Complex Regional Pain Syndrome (CRPS) and so the difficult London To Paris bike ride will be particularly tough for her because of her condition. Ben will be supporting Melanoma UK in memory of his Grandfather. On their fundraiser page Izzy has written: After a fall to on her coccyx last year, Izzy has had problems with her back and legs. For 16 months, specialists bounced around the idea that she had 'complex regional pain syndrome' but it has only been recently that she was diagnosed with chronic pain syndrome which is slightly different but has the same symptoms. The charity has been vital for Izzy to find support and people to connect with during a time when there was a lot of uncertainty. The people she connected with through the charity have been vital for her to find the right treatments and get support from people who understand. Please show your support for Izzy and Ben by making a small donation because every penny counts for both charities. To donate to their London To Paris Bike Ride fundraiser please visit their fundraising page - London To Paris Bike Ride. GOOD LUCK BEN & IZZY! Written: 01/11/2018 Last Updated: 16/07/2019Find out more »