Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)

Virtual London Marathon 2021

Virtual London Marathon 2021 Burning Nights CRPS Support has 3 places in the Virtual London Marathon 2021! On Sunday 3 October 2021, 50,000 runners will have the chance to be a part of the biggest marathon ever - the London Marathon 2021 What is the Virtual London Marathon 2021? The virtual London Marathon by Virgin Money Giving will return once again this year, giving you the opportunity to take on the world’s greatest marathon on the course of your choice. You will have 24 hours to complete the virtual London Marathon 2021 on 3 October 2021 which is covering a distance of 26.2 miles. You can start from 00:00:00hrs to 23:59:59 GMT (UK time), wherever your are in the world and we have 3 places available! However you can't use a running machine. Interested In Taking Part? If you're interested in taking up one of our places at the virtual London Marathon 2021 please click on the orange button below to complete our fundraising event form. Minimum Sponsorship You would need to to raise a minimum of £250 in sponsorship What You’ll Receive As part of Team Burning Nights you would receive the following: A Burning Nights CRPS Running Vest and/or T-ShirtFundraising pack with ideas and materialsPre-event support from a dedicated fundraiserSocial Media shout out with your unique fundraising pageThank you certificate and letter from usA finishers medal and T-shirt after you finish the event, sent by the race organisers (Virgin Money Giving)You’ll also be helping to change the lives of people affected by a debilitating chronic condition!

7th Annual National CRPS Conference 2021

DoubleTree Hilton Chester Warrington Road, Hoole

The Burning Nights CRPS Support 7th Annual National CRPS Conference is announced for 2021! The Burning Nights CRPS Support annual CRPS conference is aimed at patients living with complex regional pain syndrome, their families and friends to help give them support and to help their understanding of the condition, treatment options and more. The 7th annual CRPS conference is mainly for CRPS patients, their families and friends to help support them and to help their understanding of the condition, treatment options and more. The conference is also available to health professionals and healthcare students. This year our CRPS conference is being held on SUNDAY 21 NOVEMBER 2021 and will be at the DoubleTree Hilton Chester. If, due to Coronavirus restrictions we are unable to hold it at the hotel then we will move the conference back online. Here's all the necessary details within this event page that you'll need for the 2021 7th annual national CRPS conference: Essential InformationSpeakersGetting Your TicketsRaffleStaying At The HotelParking At The Hotel Why not watch our brief 5 minute highlight video of what went on during our 2019 5th Annual National CRPS Conference which was held in Newcastle that took place in November 2019. Watch our 2019 5th Annual Conference Event If you're interested in coming along to our 7th Annual National Burning Nights CRPS Support Conference at the DoubleTree Hilton Chester, please fill in the RSVP box below this event and event details. DETAILS DATE: 21.11.2021 Sunday 21st November 2021 TIME: 9.30am - 4.30pm We start at 9.30am and finish around 4.00pm / 4.30pm. However you are able to come and go as you wish. COST: FREE for CRPS patients and their families* Lunch and refreshments will be included free of charge. *For professionals we ask for a donation of £50 per person which will include lunch and refreshments WHERE: DoubleTree Hilton Chester, Warrington Rd, Hoole, Chester CH2 3PD LUNCH & REFRESHMENTS:  Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are FREE (for CRPS patients and their families) for you during the day's event. If your dietary requirements fall out of this we ask you to make your own arrangements. (For professionals the £50 charge will include lunch and refreshments) THE HOTEL: The DoubleTree Hilton Chester is deemed a disabled friendly hotel. The conferencing area has a flat entrance leading from the main hotel reception. The area has a mixture of carpet and tiles. This is a flat area which is suitable for wheelchairs and scooters. There are accessible toilet facilities in the hotel and also in the conference area. The hotel is easily accessible from the M53 Junction 12 motorway. The closest train station is Chester which is a few miles from the hotel by taxi or car. The nearest airport is Liverpool John Lennon (9 miles) and Manchester PARKING: There are parking spaces available at the hotel and this includes a limited number of Blue Badge spaces. There are obviously not a large number of these places available. We have also managed to get parking included for the event. SPONSOR: If you are interested in sponsoring our 7th annual national CRPS conference please email our Chair, Victoria or contact the charity. It is with the generosity of sponsors that we can keep the annual national CRPS conference free of charge for CRPS patients and their loved ones. SPEAKERS As soon as our speakers are confirmed we will include their details below. Our speakers will always have working knowledge of Complex Regional Pain Syndrome, living with CRPS or disability due to CRPS. Barrister Pankaj Madan - 'CRPS and Legal Claims; the role of the Barrister' Mr Mohammed Akbar Hussain, Neurosurgeon from RVI in Newcastle - 'Neuromodulation as a treatment option for CRPS' Miriam Parkinson - Advanced Occupational Therapist - 'Managing Your CRPS Flare-Ups' I am an Advanced Occupational Therapist working for East Lancashire Hospitals Trust.  I qualified in 2000 and settled very quickly into the field of hand therapy. My first patient with CRPS was a very severe case and I knew nothing! This sparked a real passion in me and I have now subspecialised in CRPS for almost 20 years leading to promoting CRPS awareness and services within our trust.  Presently, I work mostly in hand therapy with more acute CRPS in the upper limb and, to a lesser extent, in our Pain Management Service to support patients with more chronic CRPS (upper and lower limb) as part of a wider MDT.  Through my involvement with the British Association of Hand Therapists I have had the opportunity to teach on CRPS assessment and management at national conference in 2011 and 2020 and also contribute to the RCP CRPS guidelines revised edition 2018. CRPS CARERS & CRPS PATIENTS' SPEAKERS We are looking for at least 3 patients or family members to speak about their experiences. If you would like to share your CRPS journey at the conference please contact us or email us at support@burningnightscrps.org Raffle We may be having a raffle which would be drawn on the day of the conference at the end. If you are a business or company and you'd like to donate any items such as books, CDs, new electrical products, vouchers, meals out, days out etc. please contact us. As a thank you we will include your name and website link on the event here. Auction Please keep a watch during October for a very special online silent auction!! If you have any items that you would like us to auction for the charity please contact us. Rules of the auction: Bids must be made clearAuction items auctioned during the day of the conference MUST be paid for in FULL at the conference. Please do not make a bid unless you are able to pay for the item in full todayPayment can be made in cash, PayPal (orders@burningnightscrps.org) or bank transfer to the charity’s accountWinning bidders must leave their contact name and address. Official charity receipts for the auctioned items will be sent by post to the […]

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We Need Your Support

Please help us provide counselling to people affected by CRPS. Our help, services and advice are only possible thanks to donations from people like you. If you can, please donate now.