Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
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This topic contains 14 replies, has 9 voices, and was last updated by  boydsmith 6 months, 3 weeks ago.

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  • #8857

    jayhow
    Participant

    Hi all,

    I am interested in exploring the beneficial effects of CBD oil and wondered of anyone on this forum had any experiences using this as an effective treatment for CRPS?

    I am aware of the beneficial effects it has for people suffering from MS, cancer, anxiety, depression, arthritis etc. CBD is widely used in many European countries, USA and Canada and there are moves by the UK medical authorities right now to have CBD oil classified as a medicine ( something which will mean the current retailers will be prevented from selling it without a very expensive license, potentially cutting off those that would benefit the most from having access to it).

    According to the below website, CBD oil is excellent at helping people with CRPS, helping to relieve nerve pain,muscle spasms,inflammation and stiffness.It can also help relive insomnia. Pure CBD oil has no psychoactive effects as the THC is removed ( the stuff that makes you high).

    RSD (Complex Regional Pain Syndromes Type I)

    I have been on Amazon this morning and ordered myself a bottle of CBD Oil from CBD brothers who produce the oil from organically grown plants where no chemicals or pesticides are used in production.

    I will be using this for the next month and if interested, I will report back on how it is working / not working for me!

    I am due to see a pain specialist in early November and am going to ask them if there are currently any plans to make this available in the UK as a medical treatment for chronic pain.

    Thanks Jason

    • This topic was modified 2 years, 8 months ago by  Victoria Abbott-Fleming. Reason: Removal of website where CBD oil was purchased as there is confusion whether CBD oil is legal in UK
    #8863

    jayhow
    Participant

    Hi all,

    The CBD oil arrived today and as i was in quite a lot of pain and stiffness today was eager to try it right away.

    The oil came in a 10ML bottle with a dropper. As instructed i shook the bottle well before use and using the dropper, placed one drop under my tongue and held it there for 90 seconds before swilling it around my mouth and swallowing. Now i have to say it has quite a strong taste to it and one that may take a bit of getting used too, but not overall very unpleasant. reading up various websites, it says that it can take up to 40 mins for the full effect to take hold. Now remember as the THC is removed, CBD oil does not make you feel ” high” or spaced out.

    After about 5 -10 mins i noticed i felt more relaxed in myself and less anxious, which was a nice pleasant feeling. After about 30 mins I noticed the pain in my foot had dialled down from about a 6-7 to around 3-4 and i was able to move my toes with less stiffness. As each individual reacts differently to CBD oil, it takes a bit of experimenting to find the right dosage. The effects are meant to last about 6-8 hours for each dose so I am planning on taking another dose about an hour before bedtime in the hope that it gives me a nice relaxed sleep!

    So after my first try, I can report that i have noticed a dulling of the pain which has allowed me to move around a bit easier and that i feel more relaxed and less anxious. I guess i will need to experiment a little over the next few days to find the right level and perhaps even a dosage that will give some respite from the pain and allow me to be more mobile and able to do more in physio!

    Best

    Jason

    #8876

    UniQuegurl70
    Moderator

    Jason,
    I’m so glad this is working for you thus far. Please keep me/us posted. I’m on a couple of different forums and several people use it and like you, have had success.
    ~lori

    #8878

    jayhow
    Participant

    Hi Lori,
    Thanks for your response. I took my second dose last night and can report that I had a really good restful sleep, something that I have been struggling with due to the pain and not being able to get comfortable.

    Apart from the dialling down of the pain, the other nice effect of the CBD is that 10 minutes after taking it, my foot started to feel nice and warm instead of its usual ice cold feeling and that was nice to experience as the cold feeling makes the pain more intense.

    This morning i woke up and noticed that my foot doesn’t feel as stiff or sore first thing as it usually does and i have been able to do my morning physio routine much easier. The pain is still there but not as intense as before and this is before i have taken any CBD. I will be taking some more later as the pain tends to increase as i go through the day ( after walking around and doing my physio routine), but i can say that i do feel that i am already seeing the benefit of using the CBD oil and am glad that i made the decision to try it.

    Best
    Jason

    #8888

    UniQuegurl70
    Moderator

    Jason,
    Thank you for the update . I’m glad it is working well for you! May you be pain free soon.
    ~lori

    #8891

    jayhow
    Participant

    Lori,

    Update – Day 3 So after taking the CBD oil for the last two days i can report a marked reduction in pain in my affected foot. Previous to using the oil, i would say my pain was around the 6-7 mark almost constantly ( apart from when i was taking pain meds when it was getting too much), now I would say after 2 days on the oil it has come down to around 3-4 with brief periods of hardly any pain at all. As you can imagine this is having a positive impact on how i am feeling and also how much easier i can move around, do my physio and be active. Just having a brief respite from the pain makes such a difference!

    I did some further research and found this really informative page which talks about the effects of MM, but it also has some really good information about the correct Vitamins to take to help repair nerve damage ( the info is geared towards neuropathy but is equally valid for CRPS as it involves the nervous system)

    #8946

    kazc27
    Participant

    Hello Jason, I am new on here having learnt about CRPS only today. My 30 year old son had an accident 9 years ago, fracturing his ankle. After 5 surgeries, physio, various medications (that do little to relieve his pain and other symptoms), the consultants have said there is nothing else can be done!!! I am now convinced that he could be diagnosed with CRPS. Our GP is aware of his “smoking” habit, which really helps with pain relief and limited mobility but the side effects bother me. I will be following your up dates carefully, whilst continuing to gather information that he can go armed with for his next review with the GP.
    Karen

    #9089

    jayhow
    Participant

    Hi Karen,

    Sorry it has taken me a while to respond. I am sorry to hear about the pain and difficulties your son is having. Unfortunately CRPS is still not a widely known about condition. When i first injured my foot in July initially i was told by my GP to go home and rest it for 5 days, thank goodness i went to A&E and got myself properly checked out when the pain would not go away and it was getting worse and that i was seen by a doctor who immediately recognized what was going on. I dread to think how much worse off i would be now if i hadn’t got a quick diagnosis.

    I wanted to post an update on my progress with the CBD oil as i have been taking it now for exactly a month. Taking CBD oil is different to smoking weed as it has the THC removed ( the chemical that gets you high), although if smoking helps your son with the pain then no harm done at all! I can tell you that smoking weed is much less harmful for your body then taking medication which can have horrible side effects.

    I would advise that maybe he can try getting some CBD oil and start taking it and see how he gets on, its not going to do him any harm and he may see an improvement in his pain and overall well being. Also CBD is known as a nerve protector and maybe it could even encourage repair of the damaged nerves.

    I can report that my pain has improved dramatically over the last 4 weeks, I have gone from being in constant burning pain to just a dull soreness, my inflammation has reduced significantly too. I have had one major flare of pain about a week ago that lasted for two days which was due to doing too much walking one day and then paying for the next 2 days but taking the cbd oil helped to reduce the symptoms while i rested up and waited for the swelling to subside.

    I had my first appointment with the pain management specialist this week and after discussing my CRPS with them they wanted to put me on gabapentin to help with the nerve pain, but after reading about all the side effects I have chosen not take something that could make me feel worse rather than better, also I am concerned that once i start on this kind of medication my body and nerves will begin to rely on them and “forget” how to self regulate.

    I still have a long way to go healing wise but I am seeing an improvement in the last month which encourages me to continue using the CBD oil to help me manage, along with the occasional use of painkillers if needed ( which is twice in the last month a dramatic improvement on previously when i was popping them every 4 hours)

    Best wishes
    Jason

    #9145

    UKMum
    Participant

    Hi Jason,

    I’m new here too and looking for any answers. Does this oil reduce the swelling at all if you have it?

    #9147

    jayhow
    Participant

    Hi UK Mum,

    Nice to meet you. I can only speak from my own experience but yes, I have found the swelling reduces after i take the oil. I mainly get swelling and inflammation if i walk too much or eat certain foods and as soon as the swelling comes on i take the oil and it goes within 20 mins. I have been trying different dosages as my symptoms come and go and i think for me taking it twice daily is the best as it lasts in your system for 6-8 hours, on a bad day i take it 3 times ( Morning, Noon and Night) as it helps me relax and sleep.

    Also i would recommend taking B Vitamins as they are known for helping the nervous system, and also trying to maintain a very clean diet ( whole foods, organic if you can, no processed food, reducing sugar, reduce coffee) as this will help reduce inflammation.

    I think with this condition as the symptoms are so wide ranging and different from person to person we have to try different things to find out what works. I am not keen on taking medication as I have read that once you get on them, its very hard to get off and their effectiveness reduces over time. The human body does have an amazing ability to heal itself if we are able to give it the right support and we have to work holistically in order to do that. For me its a combination thinking positively, gentle exercise as much as i can, eating healthy, rest and sleep and taking the right supplements to support the healing process.

    Meditation helps too from me as it allows my nervous system to calm down and I become more centered.

    Regards
    Jason

    #10032

    JimmyGold
    Participant

    CBD benefits are real because CBD does produce strong medicinal and therapeutic effects for even the most common conditions. Digestive Aid, Analgesic, Anxiety Relief, Cancer Spread these health benefits and incorporating CBD into a healthy lifestyle plan.

    #10221

    probation12
    Participant

    Hi Jason, which cbd oil are you taking and are you still finding it beneficial, thanks.

    #18670

    boe
    Participant

    Hi Jason
    I’m really interested to know which type of oil you used from the cbd brothers as there are so many different types… my son is suffering from crps badly at the moment and we are waiting for a pain management appointment. I think this could be a good alternative.
    Thanks
    Boe

    #22052

    Yngvar
    Participant

    There are million of weed related applications now a days and im just not entirely certain what the dependable onces are. At that point I ran over this one application from greenmed it appears to be so well known to many individuals is it a put stock in application? What are your contemplations about it?

    #26863

    boydsmith
    Participant

    I read several blogs and forums to get the maximum info about CBD oil benefit. you can find valuable information here.

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