Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
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  • #9371
    mj1402
    Participant

    I suffer from CRPS of the left lower limb. I got this two years ago from a spinal injury from a car crash. I was diagnosed in may 2015 by Dr. Roberts who referred me to Oswestry. I had 2 weeks of intense hydro and physiology therapy but My CRPS spread from my left foot into my left knee and also causing restricted tendons in my hip and muscle wastage from me being unable to use my left leg for so long.

    I went into hospital on the 19th of December with serve abdominal pain which makes me come up in a red blotchy rash when I get shooting pains but will disappear as soon as the shooting pain stop. I was found to have very small amounts of blood in my wee along side protein and white blood cells and an infection they also found the infection in my blood but could not find where it was. I was discharged on the 22nd December on oral morphine and antibiotics for a water infection along with all my other medications I was prescribed from Oswestry which are: paracetamol, tramadol, omeprazole, amitriptyline, gabapentin.

    I then returned back to the doctors still in pain a week later and had more bloods taken when I was also prescribed a different type of antibiotics for the infection. Later on that week the hospital rang my mother about my blood results and that the infection had increased and my body was fighting the antibiotics and got prescribed a third type of antibiotics, and more bloods were taken and they have come back that the infection has cleared.

    Now on the 9th January I was rushed back into hospital with serve pains in my stomach. Ive been cleared for any life threatening infections that need operations. None of the doctors have any knowledge and it’s as if were teaching them about the condition. I am showing all the signs of CRPS in the organs and I have had my condition spread really fast in the past when they’ve told me my condition will not spread from my foot, do you think this could be CRPS in my organs? Please could you provide me with as much information so I am able to take it to my specialise.

    #9449
    UniQuegurl70
    Moderator

    Mj,
    I’m sorry to hear about the difficulty you have had. Please look at our website and join facebook. We have a lot I found people on Fb and someone may have experienced this.

    Good luck,
    ~lori

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