Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)

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  • in reply to: Wheelchair users #22952

    I am sorry that this is a very late reply but I have not been in the forum for a very long time…so long I had to reset my password. I am a full time wheelchair user due to having a locked foot drop on the right and a nonlocked foot drop on the left and a necrotic hip on the same side as the locked foot drop but even without the hip I would be unsafe on crutches and have no ability to place right foot on the floor as it is curved and pointed down permanently. It means I can have some form of a life and it sounds like you also cannot get out of the house or have a life so whilst it is clear you are trying hard to keep some mobility within the home it seems like safety would be at risk if you tried to leave the home and this would be likely avoided by you as it would be so difficult. Can you explain that this is how you maintain some independence? My chair is motorised as i cannot push with arms and hands due to crps and RA. I understand how frustrating this must be. I know we are required to move as much as possible with crps but as much as possible is the key.

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