Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
DONATE

Nervember CRPS Awareness month!

2020-03-15

Remember, remember, CRPS Nervember (TM)!

Tell your family, friends, followers & anyone who’ll listen that November CRPS awareness month is almost upon us!

Complex Regional Pain Syndrome formerly known as Reflex Sympathetic Dystrophy is an extremely painful, life-changing and debilitating chronic neuropathic pain condition. Around 5% of ALL accidents can result in CRPS.

The problem is that there is very little known or understood and there is NO cure or treatment for it. It ranks around 42 out of 50 on the McGill Pain Scale making it the most painful chronic condition in the world.

During CRPS awareness month we’ll be sharing blogs with poems, facts, pictures, information on social media and much more. So please check out Burning Nights CRPS Support blogs next month to find out more! If you haven’t signed up for the monthly newsletter then please do, you’ll find the sign-up form at the bottom of every page.

We have social media channels in Twitter (@BNightsCRPS) or Facebook (Burning Nights CRPS Support), Pinterest, Instagram, YouTube and LinkedIn. You can find all of the social media at the top of website pages and you can share any of the blogs!

We hope you are ALL ready for CRPS NERVEMBER (TM) awareness month! If you’d like to show your support for CRPS Awareness then please do visit our online SHOP

THANK YOU EVERYONE FOR YOUR SUPPORT FOR CRPS AWARENESS during NERVEMBER (TM)

Let’s Raise Awareness of CRPS!

About the Author
As the Founder of Burning Nights CRPS Support, I want to help all those affected by this devastating condition which includes those living with CRPS, their relatives, partners, carers and friends. I'm also barrister, advocate & have lived with Complex Regional Pain Syndrome (CRPS) since 2003. I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS. Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!
  1. Ruth mason

    Hi I have just been diagnosed with cprs.I would like a newsletter, and I was wondering if I could have leiflets to post in my village doors to make people more aware, as it’s a horrible condition. I was thinking to buy a teashirts on line to wear for November , and maybe try and collect money for the cause.Can you tell me how I go about it.I would need a collection pot..
    RegArds Ruth

    • Ruth mason

      As above

    • Victoria Abbott-Fleming

      Hi Ruth,
      Thank you for getting in touch. I’m sorry to read about your CRPS diagnosis 🙁

      For the newsletters there is a sign up area in the footer of every page on the right hand side, please fill in your name and email address and the system will do the rest!

      As for leaflets, we have A5 flyers that we can send you or we have A4 posters that advertise the charity and what CRPS is. If you’d like either or both of these please can you email us your address and we’ll put them in the post to you. Please email support@burningnightscrps.org

      For raising money we do have official collection pots that we can send you to use but it all depends on where you would be trying to raise money and if there were any restrictions etc. But please do email us your ideas and we’ll help you as much as we can!

      Best Wishes,
      Victoria x (Founder & Chair of Trustees of Burning Nights CRPS Support)

  2. Victoria Abbott-Fleming

    Hi Matilda,

    Thank you so much for getting in touch with Burning Nights. We are all here to help and support you as a fellow sufferer of CRPS/RSD.

    If you want to email me you can do, or you can join the FORUM as well so you can speak to others that have CRPS as well.

    My email address is victoria@chronicpaincrps.com

    Thank
    Victoria

  3. Matilda

    Hello, im from Sweden and i really want to talk to you! I have CRPS and the hospital don´t do ampution for CRPS here.
    I really want to know more about peopel who also have CRPS. And more about hospital arond the world.

    Write a mail to me, please.
    Tanks.
    Matilda

  4. Karen Macdonald

    Has anyone had any good ideas of things we could try and do in November to get awareness of there?

    • Victoria Abbott-Fleming

      Hey Karen!
      I’m just uploading a survey for possible new products for Support CRPS awareness.

      However it would be great to get some ideas for raising awareness for the condition. So, as Karen has said if anyone has ideas to help raise awareness for CRPS / RSD we would love to hear them!

      REMEMBER NERVEMBER IS CRPS AWARENESS MONTH!

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

We Need Your Support

Please help us provide counselling to people affected by CRPS. Our help, services and advice are only possible thanks to donations from people like you. If you can, please donate now.

Accessibility