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Burning Nights CRPS Support is a UK national charity dedicated to raising awareness of Complex Regional Pain Syndrome (CRPS)
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Share Your CRPS Journey

Last Updated: 5th July, 2021
2021-07-05

Share Your CRPS Journey

Everyone has their own personal Complex Regional Pain Syndrome (CRPS) journey to tell regarding their story with this chronic condition – Complex Regional Pain Syndrome (CRPS), whether you are a CRPS patient, partner, parent, relative or a loved one.

By sharing your CRPS journey, it can also give encouragement and support to others who are either living with complex regional pain syndrome or know someone with Complex Regional Pain Syndrome formerly known as Reflex Sympathetic Dystrophy (RSD).

How To Share Your CRPS Journey

If you’d like to share your personal CRPS story please complete the following form and click submit.

If you have any questions please contact us at support@burningnightscrps.org and put ‘Personal Story’ in the subject line.

You can also send your story by video if you prefer. Please see our guidance article for more information on how to send it.

  • About You

    Please confirm you are aged 18 years or above. If you are under 18 please contact us at support@burningnightscrps.org and enquire direct about sharing your story
  • If you are a parent, partner, caregiver, health professional, family member or friend please include the length of time you have been working with or looking after the person with CRPS

  • Tell Us About You and Your Experience of CRPS

  • If you're a family member/carer/parent/partner please talk about what it's like being affected by this condition on a daily basis.
  • If you're the family member, parent, partner, carer or friend please tell us the treatments the person with CRPS has tried that you think has helped

  • Data Protection / GDPR

  • Please share a photo of yourself to add to your personal story. If you would like to send us a different or a second photo please email us at support@burningnightscrps.org

Personal CRPS Stories

Here are just some personal stories of people affected by Complex Regional Pain Syndrome:

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Registered Charity No. 1166522
Registered Address: 1 Alder Brook, Chinley, High Peak, Derbyshire SK23 6DN
Registered in England & Wales

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