Burning Nights orange side version

TESTIMONIALS

 

This page is for all the testimonials that have been made by email and on social media about Burning Nights CRPS Support, the products we have, the Founder or trustees and volunteers of Burning Nights CRPS Support charity, the CRPS awareness sessions and seminars we provide, our CRPS support groups and for the various blogs that have been written.

Thank you to you all who have sent in a comment or posted / tweeted testimonial comments on social media!

 


 

BURNING NIGHTS PRODUCTS

 

Support CRPS/RSD Awareness Enamel Badges

Burning Nights Support CRPS Awareness Enamel Badge

WOO HOO! We love chronicpaincrps.com new enamel badge. 
Be loud, be proud ~ #GivePainAVoice.

Tina Petrova CEO & Founder of Give Pain A Voice Canada May 19, 2015

 

CRPS RSD support awareness wristbands

SUPPORT CRPS AWARENESS WRISTBAND

"Burning Nights - CRPS Support Has WRISTBANDS ! Please support this amazing community by following them and liking them. They #GivePainAVoice"

Tina Petrova CEO & Founder of Give Pain A Voice Canada May 19, 2015

 

 

"I ordered these from the Burning Nights website, to help them fundraise to become a registered charity. Good prices & quality & great to be able to help raise awareness too. Arrived the day after I ordered! Check out the website, loads of helpful information too."

 

Burning Nights products testimonial

Susan Brown UK CRPS/RSD Sufferer May 28, 2015

 

default image

 

"I received my badge and awareness band today. Fantastic products the band is well designed and really stands out and the badge is bigger than I thought. Great products. Thanks"

K. Wright CRPS sufferer UK October 9, 2015

 

 

TO THE TOP

 

CRPS AWARENESS SESSIONS

 

CRPS Awareness Session | OTs | Testimonial | Enable Therapy Services

 

“We first met Victoria at the OT Show 2016 whilst she was promoting CRPS Awareness with Burning Nights CRPS Support and soon started chatting about the work to increase CRPS awareness.  Victoria is a terrific advocate and passionate about early identification of CRPS, she is taking every opportunity to get the message to the masses.

Enable Therapy Services invited Victoria and Michael to a learning session, her relaxed presentation style to  share her knowledge was well received by the OTs.  Burning Nights were able to provide lots of promotional materials to remind the OTs of the signs to consider with clients to assist with earlier identification of CRPS.

We enjoyed Victoria’s visit and look forward to seeing her again at the OT Show 2017.

 

CRPS Awareness Session for Enable Therapy Services, Leeds June 2017

Enable Therapy Services Clinical Operations Manager / www.enabletherapyservices.co.uk/ Leeds / CRPS awareness sessions June 9, 2017

 

Seminars | CRPS awareness training sessions | Manchester

 

CRPS AWARENESS TRAINING SESSION

 

I would definitely recommend the CRPS awareness training session to others. It gives a good insight into a complex condition. Victoria gave a really good presentation, expertly delivered - Thank You!

 

CRPS awareness training session given 8 November 2016

Manchester Neuropathy Centre Clinical Director CRPS awareness training session June 9, 2017

 

CRPS awareness training sessions | Testimonial | Burning Nights CRPS Support

 

CRPS awareness training session - OTs and Physiotherapists

"I would definitely recommend the CRPS awareness training session! It went over training I had 10 years ago...and gave more updates and raised awareness. I really enjoyed it - made me reflect on my experiences and has given me an idea of where to go if I spot the symptoms on a patient."

"YES! I'd definitely recommend this session to others. I found the presentation very helpful! Presenters' knowledge and experience - excellent!"

"The CRPS awareness session was well presented, good materials shown. Personal experience added appropriate extra emphasis."

"Informal but very well presented and knowledgeable!"

"Very informative!"

Comments given after the CRPS awareness session at the Royal Oldham Hospital

Royal Oldham Hospital June 9, 2017

TO THE TOP

RAISING CRPS AWARENESS 

 

default image

A big thankyou from me for all of the work you are doing to raise awareness of this condition. xx

Jayne Frost UK CRPS/RSD Sufferer May 19, 2015

 

default image

Thank you for spreading our cause

Susan Brown CRPS/RSD Sufferer From Facebook May 19, 2015

 

default image

I am so grateful you are spreading our course especially as you are suffering yourself. It can't be easy coping with it all and I thank you xxx

J. Jones From Facebook CRPS/RSD Sufferer May 19, 2015

 

default image

 Your story is so touching!!! And I'm so glad you have raised global awareness!!! Thank you personally from myself! This is the kind of awareness that we need!!

C.W From Facebook CRPS/RSD Sufferer May 19, 2015

 

TO THE TOP

 

default image

Great news just made my day you are certainly an inspiration just as DHC has said. All pulling together to raise awareness and help to raise funds to set up a CRPS Registered Charity. Good on you Victoria

Irene Bull UK Burning Nights follower June 2, 2015

 

default image

 

I'm so happy to hear this, Victoria Abbott-Fleming you are such an inspiration to us all and your site is amazing. Keep up your amazing work and I'm so glad that we have someone like you that is fighting for us all, don't let anyone tell you different you are one of the strongest women That I know and inspiration to all of us, the best bit is that you are beautiful on the inside and outside sending gentle hugs xxx

Dawn HC UK CRPS/RSD Sufferer June 2, 2015

 

default image

 

 

You're doing a great job Victoria Abbott-Fleming don't let anyone tell you otherwise. Keep up the good work xxx

Anna R.M. UK & Ireland CRPS/RSD Sufferer June 2, 2015

 

default image

BURNING NIGHTS CRPS SUPPORT ARE DOING A GREAT JOB!

 

I have just been thinking about Burning Nights and how many people you are helping with your news and advice that you always give. You have a global reach for your site and look at how many people you have helped and provided support to. Burning Nights CRPS Support are doing a great job - well done!

 

Dr Michael J Cooney

Dr Michael J Cooney Clinical Director, Calmare NJ New Jersey, USA June 2, 2016

 

default image

 

I would like to thank Burning Nights CRPS Support for all the brilliant work over the years!!! I know how much it has helped me and how much I have learned from it over the years!!! Thank you for helping so many all over the world. Your hard work i truly appreciated!!!!

Sending lots of positive healing energy all the way from Israel

Micol S. CRPS sufferer and Advocate Israel via Facebook October 5, 2016

TO THE TOP

 

BURNING NIGHTS CRPS SUPPORT 

 

default image

"I wish my brother had found your site. He couldn't cope with his pain anymore so is no longer with me. I think your site is wonderful I'm sharing your posts to help create awareness of CRPS Thanks"

J.B. Burning Nights follower May 19, 2015

 

default image

 

"...during my last hospital visit I had told them all about your web site, how helpful it had been to me in dealing with pain and learning to pace myself. They seemed very interested in your web site and were amazed at how well I was coping and how positive I'am in dealing with my condition. I just wanted to say a big thank you to you for all your help...

 

Also this was said in my letter :


'Dorne has done lots of research into CRPS. She has made extensive use of a website she has found called 'Burning Nights'. This provides evidence based information and has helped her develop some robust coping strategies. She is able to pace her activity and also modified her activity according to her pain levels.'

Keep up the good work, I'll keep in touch"

Dorne Connolly CRPS sufferer UK August 10, 2015

 

default image

BURNING NIGHTS CRPS SUPPORT ARE DOING A GREAT JOB!

 

I have just been thinking about Burning Nights and how many people you are helping with your news and advice that you always give. You have a global reach for your site and look at how many people you have helped and provided support to. Burning Nights CRPS Support are doing a great job - well done!

 

Dr Michael J Cooney

Dr Michael J Cooney Clinical Director, Calmare NJ New Jersey, USA June 2, 2016

 

 

TO THE TOP

 

FOUNDER/TRUSTEES/VOLUNTEERS OF BURNING NIGHTS

 

default image

 

SO Proud of YOU Victoria!!!! You are truly one of my Heroes. Congratulations!

Jennifer Andrews USA My Story May 19, 2015

 

default image

Prayers for you Victoria Abbott-Fleming so much to go through.

Kimberley Porter Chronic Pain Sufferer USA May 19, 2015

 

default image

Thank goodness for her husband who has a heart of gold. Victoria you have the will to live. Good luck.

She has her spouse for support and often all we need is that one person who loves and supports us.

I feel sad for what she experienced. No one ever deserves that drama and trauma.

Victoria, you are an amazing woman. I love your courage and gratitude. May every day hold something special for you and your darling husband!

Elizabeth McLeod Chronic Pain Sufferer USA May 19, 2015

 

TO THE TOP

 

default image

I have been connecting with Victoria Abbott-Fleming and she is ONE AMAZING HUMAN BEING. Not only has long term pain taken away her promising life- she has dedicated the life she has, to helping others with the same condition. I am inspired and humbled by the Path she has chosen to take...

Tina Petrova CEO & Founder of Give Pain A Voice Canada May 19, 2015

 

default image

Take care you are certainly an inspiration xx

J. Curtis From Facebook CRPS/RSD Sufferer May 19, 2015

 

default image

Thank you so much for sharing your story Victoria. I am hoping that everyone who reads this story will understand how you are such an inspirational person. You are someone that we all should look up too. How you have been through hell and back 20 time over and you came back through the other end fighting and still continue with life the best way you can.

S. Jackson From Facebook CRPS/RSD Sufferer May 19, 2015

 

 

 

 

Thank you to each and everyone who has taken the time to email us or post on social media about various aspects of Burning Nights! If you have any good comments about Burning Nights CRPS Support as a charity, our products, our CRPS awareness sessions or on any of team please contact us.

 

 

Last Updated: 09/06/2017

 

LET’S SPREAD AWARENESS of CRPS! Burning Nights orange side version

 

Don't keep our fab info to yourself! Share....Share on FacebookTweet about this on TwitterShare on LinkedInPin on PinterestShare on Google+Share on RedditPrint this pageEmail this to someone
Accessibility