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Complex Regional Pain Syndrome awareness Seminars & Media

 

CRPS SEMINARS (in-service CRPS awareness sessions)

As a charity we feel that it is extremely important for all healthcare and legal professionals as well as healthcare students to be aware of Complex Regional Pain Syndrome (CRPS). In response to this our Founder of Burning Nights; Victoria, is available for any public speaking event, whether you are looking to arrange a seminar, Complex Regional Pain Syndrome (CRPS) awareness training sessions, disability awareness or persistent pain information session.

 

Our trustees and volunteers are also available for interviews and any form of media article writing concerning any of the topics at the bottom of the page.

 

On average student medics receive around 6 hours of training on persistent pain. Physiotherapists receive the most training on chronic pain which is around 9 hours. The topic of chronic pain and more specifically CRPS needs more awareness brought to the curriculum of all student healthcare professionals as well as Continuing Professional Development (CPD). In a research study in 2015 (Briggs, E.V. et al) they found that:

 

“Dedicated pain modules were most common in France (27/31 schools; 87%). Excluding France, only 22% (47/211 schools) provided a dedicated pain module and in only 9% (18/211) was this compulsory…”

 

The founder of Burning Nights is a sufferer of CRPS and is passionate and fully committed about the subject and all areas of it and want to be able to pass on her knowledge that she has gained since 2003/4 to the medical profession as a whole. So when students join ANY branch of the healthcare profession they are at least aware or understand about chronic pain conditions such as CRPS and eventually diagnoses will become quicker, therefore treatment will be  available faster culminating in hopefully the sufferer into ‘remission’ or lesser and more manageable pain.

 

We are also able to provide similar CRPS sessions for schools, colleges and universities not only for healthcare students but also for those schools, colleges and universities who have children, teens and adolescents with Complex Regional Pain Syndrome. The in-service CRPS awareness sessions are free of charge to the NHS and to schools, however we ask for a small donation for private companies and private clinics as we are a charity.

 

Here is a short 10 minute video of our founder, Victoria, giving a presentation on her life with severe Complex Regional Pain Syndrome (CRPS) during the 2016 Naidex disability show:

 

If you are interested in discussing with us your requirements for your seminar, training or talk or interview/media articles, please send us an email or fill in the contact form and we will answer your query as soon as possible.

 

AREAS/TOPICS WE ARE AVAILABLE FOR:

  • Complex Regional Pain Syndrome awareness training sessions
  • Our Founder talking about her life with CRPS and being a bilateral amputee
  • Amputation due to CRPS
  • Chronic Pain
  • Disability
  • Disability awareness training

 

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Watch our brief Complex Regional Pain Syndrome awareness training session video to get an idea of what we are able to offer you as health or legal professionals:

COMPLETED SEMINARS / PRESENTATIONS / CRPS AWARENESS SESSIONS

WREXHAM MAELOR HOSPITAL

We were invited to speak to a group of Occupational Therapists at Wrexham Maelor Hospital, as they are receiving more CRPS referrals.

We gave a 2 hour presentation to the group complete with handouts, PowerPoint and symptoms & signs handout. It was a great experience for the OTs and they felt that they learned a lot from it. In their feedback in answer to the question on recommendation they said:

“Yes definitely to both healthcare professionals and patients.” 

 

Seminars and Media - North Manchester General Hospital CRPS awareness session

Seminars and Media – North Manchester General Hospital CRPS awareness session

 

NORTH MANCHESTER GENERAL HOSPITAL

We were invited to North Manchester General hospital to talk to a group of physiotherapists in May 2016. It was a very probing presentation and we answered many questions on various areas of our presentation especially on the topic of ice and CRPS.

 

ROYAL OLDHAM HOSPITAL

This Complex Regional Pain Syndrome awareness training session was for a mixture of physiotherapists and Occupational Therapists. It took place in June 2016 and in their feedback, one person said 

“I’ve been on numerous training and management courses and this one kept me gripped for the whole hour, thank you!” 

 

CRPS awareness training sessions | Testimonial | Burning Nights CRPS Support

 

CRPS awareness training session - OTs and Physiotherapists

"I would definitely recommend the CRPS awareness training session! It went over training I had 10 years ago...and gave more updates and raised awareness. I really enjoyed it - made me reflect on my experiences and has given me an idea of where to go if I spot the symptoms on a patient."

"YES! I'd definitely recommend this session to others. I found the presentation very helpful! Presenters' knowledge and experience - excellent!"

"The CRPS awareness session was well presented, good materials shown. Personal experience added appropriate extra emphasis."

"Informal but very well presented and knowledgeable!"

"Very informative!"

Comments given after the CRPS awareness session at the Royal Oldham Hospital

Royal Oldham Hospital June 9, 2017

 

 

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BOLSHAW PRIMARY SCHOOL

We are available to speak at schools, colleges and universities to explain about CRPS and how it can affect children in school, college or university.

 

MANCHESTER NEUROPATHY CENTRE

This CRPS awareness training sessions was for a group of neuro-physiotherapists who wanted to learn more about Complex Regional Pain Syndrome (CRPS) as they were receiving more CRPS patients in their practice.

 

Seminars | CRPS awareness training sessions | Manchester

 

CRPS AWARENESS TRAINING SESSION

 

I would definitely recommend the CRPS awareness training session to others. It gives a good insight into a complex condition. Victoria gave a really good presentation, expertly delivered - Thank You!

 

CRPS awareness training session given 8 November 2016

Manchester Neuropathy Centre Clinical Director CRPS awareness training session June 9, 2017

 

 

AMERSHAM HOSPITAL 

This was a CRPS awareness session for a group of Occupational Therapists (OTs) and physiotherapists in April 2017. This was an overview of the condition, signs and symptoms and available treatment options. We also included a small section on how to spot a possible CRPS patient and also how to deal with a CRPS patient.

 

INTERACTIVE CRPS SESSION (Primary Care and Public Health Exhibition May 2017)

This was a brief 15 minute interactive session on Complex Regional Pain Syndrome where we gave a small amount of information on the basics of CRPS and the main time was given to going over various photographs of limbs and extremities for the audience to decide if it was a CRPS diagnosis or not. This short session was extremely well attended and well received by the whole audience.

 

ENABLE THERAPY SERVICES

Enable Therapy Services a group of Occupational Therapists who provide various services to “promote the use of rehabilitation and early intervention. Our founder, Victoria gave a 1 hour informal session on CRPS awareness including pathophysiology, treatment options, diagnosis and how to look out for a CRPS patient.

 

CRPS Awareness Session | OTs | Testimonial | Enable Therapy Services

 

“We first met Victoria at the OT Show 2016 whilst she was promoting CRPS Awareness with Burning Nights CRPS Support and soon started chatting about the work to increase CRPS awareness.  Victoria is a terrific advocate and passionate about early identification of CRPS, she is taking every opportunity to get the message to the masses.

Enable Therapy Services invited Victoria and Michael to a learning session, her relaxed presentation style to  share her knowledge was well received by the OTs.  Burning Nights were able to provide lots of promotional materials to remind the OTs of the signs to consider with clients to assist with earlier identification of CRPS.

We enjoyed Victoria’s visit and look forward to seeing her again at the OT Show 2017.

 

CRPS Awareness Session for Enable Therapy Services, Leeds June 2017

Enable Therapy Services Clinical Operations Manager / www.enabletherapyservices.co.uk/ Leeds / CRPS awareness sessions June 9, 2017

 

 

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Victoria has also spoken about her life as a CRPS sufferer and being a bilateral amputee at the following events:

  • Naidex 2016 and 2017
  • Cambridge Medico-Legal Conference – September 2016
  • Unite Professional Occupational Therapy Healthcare – October 2016
  • Manchester College – April 2017

 

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PRESS / MEDIA AREA

We wanted to create an evidence based website with a forum and regular blog to raise awareness, give good up-to-date information and support sufferers of a condition that affects the central nervous system and its one of the most painful conditions in the world today.

Read about how Burning Nights CRPS Support came to be founded in 2014 by visiting OUR STORY. You can find out about each of the trustees including the founder, Victoria Abbott-Fleming, by visiting each of the trustees’ pages.

The founder’s story has been in the newspapers in the UK and around the world, such as:

SHINE! Online Magazine 28th April 2015 – The first part of the article was written by the Shine! editor and the rest was written by the founder of Burning Nights herself.

DAILY MAIL ONLINE 2 MAY 2015

PAJAMA DAZE WEBSITE 8 June 2015 – The article was written by the founder of Burning Nights herself.

Issue 23 Real People magazine June 2016 – Article written on the story of the founder of Burning Nights CRPS Support

Manchester Evening News 23 April 2017 “Minor fall led to me losing my legs – but it won’t stop me completing the Great Manchester Run,” 

Great Run company 24 April 2017 “Brave Victoria Ready For Return To Manchester”

BBC Sport Get Inspired 26 May 2017 “Great Manchester Run: Inspirational Stories from the 10k Race”

 

Please visit our CRPS media coverage blog which has been dedicated to the various newspaper and magazine articles concerning Burning Nights CRPS Support or our Founder’s story.

CITED RESEARCH:

Briggs, E.V. et al. (2015) ‘Current pain education within undergraduate medical studies across Europe: Advancing the Provision of Pain Education and Learning (APPEAL) study, BMJ Open. 2015, 7 August. Vol 5(8). Full Text Available from: <https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4538268/>

 

Please CONTACT US for a media press pack on any of the channels available or if you would like more information about our seminars or CRPS awareness sessions please let us know!

 

Last Updated: 09/06/2017

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