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We're here for everyone who is affected by Complex Regional Pain Syndrome (CRPS). Every day, people are being diagnosed with CRPS. It is a difficult and debilitating condition where many people live in silence and alone. As a patient led organisation we believe in the power of the patient and carer advocacy.
We're here for you and your family.
Your story is so touching and I’m so glad you have raised global awareness! Thank you personally from myself, this is the kind of awareness that we need!!
Fantastic training session by Burning Nights CRPS, thank you so much for giving us things to think about when looking at wheelchair provision for someone with CRPS.
You are making a difference to lives on a daily basis and once in a while you save lives. This is something to be very proud of.
Because of you and your support, I have been able to manage CRPS in both of my legs. You gave me the information I needed to stay firm with my doctors that CRPS does make my legs swell
Burning Nights CRPS Support really do make you feel like you’re not alone and just having other people who completely understand your pain and everything that comes along with this awful disease is comforting
This website and community keeps me going, makes me feel ‘normal’ in our CRPS world.
Feels amazing to give & receive such amazing support here. Knowing we are not alone in this is so powerful!
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