Burning Nights CRPS: Increasing Awareness of Complex Regional Pain Syndrome in the UK and Worldwide
Burning Nights CRPS Support is a national UK charity working to improve life for those affected by Complex Regional Pain Syndrome (CRPS).
Complex Regional Pain Syndrome, formerly known as Reflex Sympathetic Dystrophy, is a poorly understood condition which affects many people in the UK and across the globe. CRPS can cause a person to experience persistent, severe and debilitating pain. The condition may develop after an injury, surgery, stroke or heart attack, but the pain is out of proportion with the severity of the initial injury.
The cause of CRPS isn’t clearly understood and CRPS awareness in the UK is low. However Burning Nights CRPS is a charity raising awareness and supporting individuals suffering with CRPS. Treatment for complex regional pain syndrome is most effective when started early. In such cases, improvement and even remission are possible.
Support and help for patients and families affected by CRPS in the UK and around the world
With low awareness and understanding of Complex Regional Pain Syndrome both globally and in the UK, it is vital that a Complex Regional Pain Syndrome support system is in place for those who suffer from this condition. Burning Nights CRPS Support offers detailed information and CRPS support for loved ones, carers, friends, families and patients.
We offer a range of support serices including our evidence-based website that provides information on causes, symptoms and treatments, as well as an Online Community Forum which provides an outlet to speak about the difficulties of living with this condition. The online community allows CRPS patients or their relatives throughout the UK to share their experiences and learn new methods of dealing with CRPS, or just to have a general chat.
Increasing knowledge of Complex Regional Pain Syndrome on a global and national scale in the UK is a necessity. Through the CRPS awareness and support products available, awareness and support of CRPS can improve through increased visibility and information.
We are a fully registered UK CRPS charity (Charity Registration Number 1166522) specifically aimed at not only raising awareness of CRPS amongst the public and medical professions but also supporting all those affected by the condition.
Burning Nights CRPS Support is proud to have been awarded ‘Charity Of The Year 2016’ by Aspire Magazine and Best Team Performance 2019 by WeGo Health Awards. Thank You to everyone for your support! In February 2020, our Founder Victoria was also awarded the Points of Light award by the Prime Minister’s Office. In June 2021, our founder Victoria was also awarded an MBE for services to charity in the Queen’s Birthday Honours List 2021,