Meeting with other people who are affected by Complex Regional Pain Syndrome (CRPS) can help you to remember that you are not on your own going through this difficult journey. Whilst they can't promise to make your pain go away, joining a CRPS support group provides the opportunity to hear others' experiences and advice on how to alleviate some of the symptoms, learn more about the condition, and make friends who truly understand what you are going through.
You can find the details of upcoming support groups on our Events page.
Burning Nights CRPS Support has now suspended in-person support groups and we now held regular online support groups through Zoom.
Virtual online support groups enable you to access many of the benefits of an in-person support group from the comfort of your own home. We understand that Complex Regional Pain Syndrome is unpredictable, so our online support groups provide some flexibility and are especially useful for those who might have struggled to get to one of our in-person groups.
As a charity, we have several aims for our support groups, both in-person and online.
We want to provide support to all those living with Complex Regional Pain Syndrome (CRPS) and to help you cope better with your condition. These support groups are there so that you can share your problems, feelings, ideas and information with others who are undergoing similar experiences. However, we cannot solve all of your problems, nor are these groups there to replace the services of a pain specialist, doctor or other health care professionals that may be involved in your care.
A support group is a good resource. Burning Nights CRPS Support is a registered UK charity run almost entirely by dedicated volunteers, many of whom live with CRPS themselves. We cannot provide medical, legal or welfare benefits advice. Any information or advice provided during a support group is not a substitute for advice from a trained professional. Do not make any changes to your medication or pain management regime without first speaking to your doctor, GP or specialist consultant.
“I really enjoyed being in the support group. It was eye opening to me. It was the first time I felt understood in years” CD June 2023