Over the years there has been many different names for Complex Regional Pain Syndrome (CRPS). Yet since the International Association for the Study of Pain (IASP) Consensus Conference in 1994, the old name of Reflex Sympathetic Dystrophy or RSD has changed to what almost all of us know it as, Complex Regional Pain Syndrome or CRPS. Hence, RSD is now CRPS Type I or CRPS I.
As a result, there have been many names for Complex Regional Pain Syndrome. In fact, according to Dutton, K. & Littlejohn, G. (2015) there have been in fact 202 different names identified in a number of languages. Ratti, C. et al. (2015) explained that,
"CRPS is the current consensus-derived name, but historically it was called in different ways [Sudeck atrophy, causalgia, Reflex Sympathetic Dystrophy (RSD), algodystrophy, post-traumatic dystrophy, shoulder-hand syndrome] and with different names in different countries as well (79 names in Anglo-Saxon literature, 51 in German and 33 in French), proving the complexity and multifaceted aspects of this syndrome."
Giannotti, S. et al. (2016) found that considering only the Italian scientific literature on Complex Regional Pain Syndrome, there are 13 different names.
There are many confusing names and terminology, apart from Reflex Sympathetic Dystrophy (RSD), which have been used. These include but are not limited to:
The most common alternative names for Complex Regional Pain Syndrome, apart from RSD, include Causalgia, Aglodystrophy and Sympathetic Dystrophy Syndrome (Rickard, J.P. & Kish, T. 2015). In a recent research study by Todorova, J. et al. (2013), they discussed the various names of CRPS/RSD and whether they have been accepted in practice or whether they are still being used. They concluded that,
"The new terminology is now widely accepted by the medical professionals who are mostly engaged in the treatment of CRPS patients but not yet so in other medical spheres, for example radiology specialists. The names ‘reflex sympathetic dystrophy’ and to a lesser extent ‘causalgia‘ are still used by some authors."
Unfortunately, according to Alvarez-Lario, B. et al (2001) it was concluded that the new terminology of Complex Regional Pain Syndrome has not effectively replaced the old term of Reflex Sympathetic Dystrophy. They went on to say that the most commonly used terms are still Causalgia and RSD. The term CRPS is mainly used for pain and neurology journals.
Although, as you may have found out, many consultant, doctors and healthcare professionals, especially abroad, will still use the name Reflex Sympathetic Dystrophy (RSD), out of all of the different names, the ones you really need to know are Complex Regional Pain Syndrome (CRPS) Type I and Type II. Visit What is CRPS?
Remember, it is YOU who has the condition. Whichever different name for it that you use, just be as comfortable as possible with it!!
It is important to know that Complex Regional Pain Syndrome (CRPS) has had numerous names. Furthermore, two are still commonly used. Highlighting these two are useful just in case you speak to a doctor who may use one of the previously mentioned names for the condition. You can see from the History of Complex Regional Pain Syndrome (CRPS) how the name has altered throughout the century. Who knows if CRPS will stay, but for now it is.