Volunteer Befrienders are there to help those who sign up to the Befriending Service to feel more connected and less lonely. Befriending clients are most likely to be CRPS patients themselves, but the service is also open to friends, family and caregivers as well. The service aims to support anyone who is affected by this condition.

As a befriending volunteer, your role will involve a 40-minute call per client per week at a mutually agreed time, for up to 12 weeks or calls (depending on any holidays or sickness). Calls can take place either by telephone or on Zoom video, as per the client’s preferences. In addition to the weekly call, volunteer befrienders are to update and maintain the Charity’s CRM database and ensure that client records are up-to-date.

A befriender should encourage communication and confidence whilst practising empathy and understanding. It is crucial to have good listening skills and have the ability to withhold judgement. A befriender should support their client with knowledge of CRPS, although befriending calls are not exclusive to the topic of CRPS.

Read the Role Description for more information.

Time Commitment: Minimum 4 hours per week (mostly during office hours), 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Our volunteers provide the frontline service for anyone affected by CRPS and this role covers email support. The support email service is a key service for people needing information or guidance, whether they be patients, relatives, carers or medical professionals. It requires the use of focused understanding and literacy skills to read and respond to enquiries, to promote patient wellbeing and explore the impact of the condition in a safe space.

Email support volunteers can provide emotional support to clients, help them to access resources, and help to administer the day to day running of the support services.

Read the Role Description for more information.

Time Commitment: Minimum 3 hours per week, 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Live Chat Support volunteers offer confidential listening support and information via our Live Chat platform to anyone affected by CRPS whether they are patients, loved ones, carers or the general public, health and legal professionals.

Read the Role Description for more information.

Time Commitment: Minimum 2 hours per week to fall within Live Chat operating hours, 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Will you share your counselling or psychotherapy skills as Counselling & Therapy Volunteer and join a dedicated online therapy service for people affected by Complex Regional Pain Syndrome? We are looking for qualified counsellors, psychotherapists or psychologists, ideally with some experience of working with chronic pain patients, who want to volunteer their skills to support our adult service users (aged 18 and over) and help develop this vital support service.

Read the Role Description for more information.

Time Commitment: Minimum 7 hours per week (mostly during office hours), 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Will you share your counselling or psychotherapy skills as a Child & Young Person (CYP) Counselling Volunteer and join a dedicated online therapy service for people affected by Complex Regional Pain Syndrome? We are looking for qualified paediatric/CYP counsellors, psychotherapists or psychologists, ideally with some experience of working with chronic pain patients, who want to volunteer their skills to support our young service users (aged 5-17) and help develop this vital support service.

Read the Role Description for more information.

Time Commitment: Minimum 7 hours per week (mostly during office hours), 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Are you a proactive fundraiser and looking to support a small charity? We are looking for energetic and enthusiastic fundraisers to join our team and help increase the fundraising opportunities for the charity, as well as developing corporate partnerships, legacy giving, individual giving and major donors.

Read the Role Description for more information.

Time Commitment: Minimum 7 hours per week (mostly during office hours), 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Are you an enthusiastic and skilled funding grant writer? Be a part of our small but committed team as a pro-active grant writer volunteer for a small national charity supporting people affected by a debilitating pain condition.

We are looking for a skilled grant writer volunteer who can take the lead in researching appropriate funds and writing grant bids to help us continue offering our support services and resources and helping us create new programmes and services to support patients and their families who have been affected by a poorly understood chronic condition, Complex Regional Pain Syndrome (CRPS).

As a Grant Writer Volunteer you will be responsible for identifying appropriate grant opportunities and managing the grant development and proposal process, from research to submitting grant applications with any supporting documents.

Read the Role Description for more information.

Time Commitment: Minimum 4-7 hours per week (may vary depending on each grant application), 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Campaigners play a vital role in representing Burning Nights CRPS Support in their local community and nationally, by lobbying on behalf of all people impacted by Complex Regional Pain Syndrome (CRPS). You will be able to use your personal experience and experiences of others impacted by CRPS to try to influence decision-makers to take a particular course of action, which will benefit the CRPS community as a whole. Campaigners act as a voice for the Charity by helping to shape our campaigns, sharing your story and lobbying for change.

As a Campaigning & Lobbying Volunteer, you will support the efforts of Burning Nights CRPS Support to raise awareness of CRPS and influence policy changes that improve the lives of those affected by the condition, as well as develop your networking and influencing skills along the way. You will engage with stakeholders, contribute to advocacy strategies, and help to shape our campaigns to ensure a stronger voice for the CRPS community.

Your level of involvement is completely down to you and will depend on what campaigns are running at any one time. You will receive regular updates about what is happening, and how you can get involved, so that you can opt in or out of these activities. There will be opportunities to attend campaigning events with the charity and there may also be times when we will let you know about a specific action that is particularly relevant to your local constituency.

Read the Role Description for more information.

Time Commitment: Minimum 3-4 hours per week, 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Could you use your social media, marketing and communications experience to raise the profile of a small charity? Help us to increase our social media presence and engagement, generate great content and help promote existing activities. We are looking for an experienced social media and communications volunteer who is able to develop posts and campaigns from design to inception, create fresh and engaging content, increase engagement and to increase awareness of the charity and of the condition we represent.

Even though we are a small organisation we have big ideas and would like to draw on your experience in the communications world to help the charity deliver engaging content and communications to help us spread our aims and message to all our audience.

Read the Role Description for more information.

Time Commitment: Minimum 4 hours per week, 6 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

We are looking for detail-oriented and strategic Search Engine Optimisation (SEO) Specialist Volunteers to help optimise our online presence and ensure our campaigns and content reach the communities that need them most and increase the charity’s search engine results rankings. The SEO Specialist Volunteers will play a key role in enhancing the visibility and searchability of Burning Nights CRPS Support’s website and digital content.

The SEO Specialist Volunteers will be volunteering within the Communications & Marketing Team to implement SEO best practices, conduct keyword research, improve site structure, and analyse web performance – all to ensure our content reaches a broader audience and amplifies the voice of our charity’s supporters online.

Read the Role Description for more information.

Time Commitment: Minimum 5-10 hours per week, 6 months commitment to the Charity.

We estimate the initial SEO audit will take around 15-20 hours, with ongoing maintenance and strategy adjustments requiring approximately 5-10 hours per week as a minimum, plus attending a monthly meeting with the team. We are flexible and realistic with your time and appreciate any time you can offer. You are not under any contract to perform these tasks nor are you under any obligation to carry out this role. There are no set hours or days for this voluntary role. It is only as and when you are able to volunteer.

Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.

Are you multi-lingual or have advanced level language skills other than English? Join our team to help us translate our literature into other languages including:

• Arabic
• Farsi
• German
• Hindi
• Kurdish
• Mandarin
• Polish
• Punjabi
• Spanish
• Urdu

Translation volunteers are tasked with accurately translating text from English into another language as required to ensure Burning Nights CRPS Support is properly represented to different communities.

This role will be a valuable part of our team, helping us to share crucial information and events to our supporters, as well as communicating what support we can give to people affected by Complex Regional Pain Syndrome (CRPS), whatever their language.

Read the Role Description for more information.

Time Commitment: Minimum 2 hours per week, 3 months commitment to the Charity. Volunteers are not under any contract to perform these tasks nor under any obligation to carry out this role. There are no set hours or days for this voluntary role, only as and when volunteers are available. Please consider the responsibilities and commitment of the role compared with personal schedule before applying.