CRPS can be especially scary for young people. Not only are you feeling a lot of pain, but you are also facing unique challenges that adults do not.
Have a box next to your bed or somewhere easily accessible for flare ups. Fill this box with all the things that help you get through a flare up, whether that be an ipad, music, hot water bottles or chocolate, everyones box will look different its about what works for you,
Many people with CRPS report getting relief from heat, whether that be a hot water bottle, a heat pad or heated blanket. especially during the winter months, but make sure you use these safely and dont apply extreme heat directly on your skin.
Pacing is a self-management strategy for activity. Patients who pace well are active when able, and rest when tired. You may plan extra rest ahead of strenuous activities or busy days. Break down the activities you need to do into smaller manageable chunks, it's very rare an entire task has to be fulfilled all at once.
Seeing you in pain everyday can be really difficult for you loved ones, family members can often feel helpless and frustrated that they can't take your pain away. Try to keep talking with you family, tell them what they can do to help you, let them know when you are struggling. This can not only offer you support but can also help them to feel like they are supporting you.
Many people with CRPS have gone from engaging in daily routines to no longer being able to due to the non-stop pain they were experiencing. However, routines often provide an anchor to build all your daily activities from. Having a routine can ensure you continue to do the important things for your own physical and mental wellbeing such as self care, socialising with friends and family hobbies.
Sleep is an essential part of life and contributes to us feeling well both physically and mentally. Having a poor quality sleep can increase your pain levels and you can get stuck in a vicious cycle of poor sleep, higher pain, poor sleep. Here are some tips for getting a better nights sleep.