Virtual Befriending Service
Complex Regional Pain Syndrome (CRPS) can leave you feeling lonely, isolated and vulnerable whether you’re a patient, loved one or family member. One way that Burning Nights CRPS Support is trying to combat this is with our virtual befriending service.
What is Virtual Befriending?
Do you feel that you’re the only one affected by CRPS? This is something we want to change. You’re not alone in this journey.
Burning Nights CRPS Support is now offering a friendship service where one of our team of volunteers will either offer to telephone you every week or have a one to one chat on Zoom online for 12 weeks. All of this is from the comfort of your own home.
This isn’t a counselling service, but a friendship service where you can chat with someone who understands the condition; CRPS either as a patient or as a partner or loved one.
Who is the virtual befriending service for?
All our services are available for Complex Regional Pain Syndrome patients, their families, partners, carers and friends. The virtual befriending service is now different. However at the moment you need to be 18 years of age or over.
If you’re feeling that you’re alone on the CRPS journey, please know that you’re not and we’re here to make sure you don’t feel alone.
Our virtual befriending service is not a counselling service but more of a friendship service. You must:
- be over 16 years of age (if you are under 16 we ask that we speak to a parent/guardian to seek permission)
- have your own landline or mobile phone (if you choose a phone call)
- be able to hear and be understood over the phone (if you choose a phone call)
- have a quiet area or space for the call / Zoom chat
- commit to a regular call/Zoom chat each week (up to 12 calls/weeks)
- live/reside in the United Kingdom
- either have CRPS, or be a family member, parent, spouse or caregiver of a person within CRPS
If you wish to volunteer to be a befriender you also have to live/reside in the United Kingdom, please visit our Volunteering application page.
How long is the Befriending Service for?
Once you have been connected with one of our volunteers, you will receive up to 12 weeks of calls/video calls, one every week.
If you are unable to make one the calls, please let your befriender volunteer know and they will rearrange it for another day. If you can’t make one of the week’s please don’t worry, we will make sure you have up to 12 calls/video calls.
You will receive an automated message letting you know we have received your form. We will then send you an email to confirm which method of call you would prefer and the days & times you are more likely to be available for the call. You will also be sent a survey that we ask you to complete before starting your first call.
Once you have confirmed this, you will receive a further email to confirm the name of your volunteer and that they will be in touch with you to organise the date and time of your first call or video call.
After that email, you will then be called every week by one of our volunteers for 12 weeks or sooner if you decide to stop. At the end of your 12 weeks/calls we will send you a final survey by your Befriender volunteer, that we ask you to complete. Both surveys must be completed as part of using our Befriending Service.
If you would like to take part in our Befriending Service and receive a weekly call or video chat please complete the form below.