Share Your Personal CRPS Stories
Everyone has their own personal CRPS story to tell regarding their journey with this devastating condition – Complex Regional Pain Syndrome (CRPS).
Giving the chance to share your personal CRPS stories is important not only to you as someone who lives with CRPS or someone who cares for someone with CRPS but also to other people who live with the chronic condition or their loved ones and families.
Other CRPS sufferers may realise they are not on their own in this difficult journey they are facing. You may recognise features and symptoms from other people’s CRPS stories. By sharing your CRPS journey can also give encouragement to others who either live with CRPS or love someone with Complex Regional Pain Syndrome formerly known as Reflex Sympathetic Dystrophy (RSD).
Why Should You Share Your CRPS Story?
Still unsure why you should share your CRPS story? Here are a number of reasons why you should share your CRPS story with us including:
Raising CRPS Awareness
The more stories that are shared about Complex Regional Pain Syndrome (CRPS) the more awareness is raised about the condition. Even though the condition is considered rare and poorly known or understood, CRPS was in fact described back in the mid 16th Century and then formally described during the American Civil War during the 1800s. However CRPS certainly needs more awareness and so by sharing your story will show others that the condition exists and can show up any problems or any myths about the condition.
Encouragement and Support
Sharing your CRPS story can also give some much needed support to others in similar situations as yourself. It also gives encouragement to other CRPS sufferers and show that they’re not suffering with this debilitating chronic condition on their own. Many people who read our CRPS stories often realise that they’re not living with this alone and there are others who are having similar problems or are at a similar stage as themselves.
Therapy, Acceptance and Self-Esteem
Taking the time to write your CRPS story for others to read can help you to start on the road of acceptance of your CRPS. It can help give you a boost to your own self-esteem and confidence. Knowing that there are others who are in need of support can give you a real confidence boost and can be a form of therapy to get all your thoughts about your CRPS journey down on paper.
How To Send Your CRPS Story To Us
If you’re interested in sending us your CRPS story whether you are a CRPS patient or whether you care for or have someone in the family with CRPS, please follow the instructions below:
- Type the story in a Word document (If you have upper limb CRPS and have problems typing why not use a voice-to-text app or computer software. Visit our disability equipment page for more information)
- Please don’t include names of hospitals or your medication levels
- Minimum word length of 500 words and maximum length of 1000-1250 words
- No more than 3-4 pictures either of yourself, you and your family, your injury or various stages of your CRPS – if you send pictures of you and other people please make sure you have their permission to use the photos and to send them to us
- Please send any pictures you may have either in the document or send them separately
- Email your document and pictures to firstname.lastname@example.org
- In the subject line include your name and “CRPS story for blog”
Featured CRPS stories will be placed in the blog area as well as in the e-newsletter. You don’t have to send us a picture of yourself with your CRPS story, however if you would like to include an image or two to go along with your journey please add them to your story or add them separately when you email us. To send us your CRPS story please click the CRPS story link.
We are also looking for stories from the side of the carers, loved ones and family members who live or love someone with Complex Regional Pain Syndrome, because CRPS doesn’t just affect the person with the condition, it affects everyone around them as well. As a UK CRPS charity we not only support those who live with the chronic condition, CRPS but we also equally support those who care or love someone with CRPS as well as their friends and family members.
By telling your story to others in a similar situation to your own, you begin to help people realise they are not on their own, that they can carry on with their life as much as possible and that there’s support available for them.
Last Updated: 01/03/2018