Burning Nights orange side version
Burning Nights Meet n Greet 4 CRPS Sufferers announcement

BURNING NIGHTS MEET & GREET EVENT

2016-02-09

BURNING NIGHTS MEET & GREET EVENT

Well, our 1st ever Burning Nights CRPS Support meet & greet event is now over! The Burning Nights team would like to say a huge thank you to all of you who came along to the event on Saturday 7th November at the Birmingham Marriott Hotel. We would also like to thank all of the speakers who gave up their time to speak at our event and produce videos and presentations to show everyone.

 

The day was superb and we received some great feedback from everyone. The main comments we received were that everyone was delighted to finally actually meet other sufferers, families, carers and loved ones face to face instead of behind a computer or on social media. This has given us the start we need and we will be holding another event next year!

 

There were several announcements of good news during our Burning Nights Meet & Greet event on Saturday, they were the fact that Burning Nights CRPS Support is around 75% complete in becoming a charity in England & Wales, which is amazing news! We also announced that Irwin Mitchell solicitors were becoming 1 of our main sponsors and that 1 of their serious injury solicitors was joining the board of Trustees and the final bit of good news was that Manchester Town Hall are changing the colour of their lights to orange on Monday 23rd November in support of CRPS awareness. If you are in Manchester on 23rd please visit Manchester Town Hall at Albert Square to see the lights! We will also be posting a highlight video of the day so those of you who were not able to come along will be able to see highlights. The video is being produced by Toothpix.

 

The VIDEO of the Meet & Greet conference day is now up on our very own YouTube channel! You can watch it here:

 

 

Irwin Mitchell are going to help us as well with setting up local support groups starting off with a pilot group in Manchester. If you live in or near Manchester and you would like to come to a regular support group then please do send us an email at info@chronicpaincrps.com or CONTACT US via the contact form.

 

Thank you to all the speakers on the day as well which at times was very emotional, they included:

DR JENNY LEWIS from RNHRD Bath Hospital Pain Services

MR RICHARD LOWES from BLB Solicitors in Bath

KIRSTY HUMPHREYS – CRPS sufferer

SCOTT NORLEY – CRPS sufferer

SOPHIE ETHERIDGE – CRPS sufferer

CLAIRE LACEY – carer for a CRPS sufferer

TERESA NORLEY – carer for a CRPS sufferer

 

[Tweet theme=”basic-full”]Watch our #BurningNights #CRPS Support meet & greet conference video via YouTube. Fancy coming 2 our nxt 1? https://youtu.be/SM1eM46WcnU[/Tweet]

 

 Burning Nights Meet & Greet event - charity

 

CHARITY REGISTRATION

We are currently around 75% complete in our charity registration in England & Wales, which is brilliant! So it won’t be much longer before we become a CRPS charity with a charity number. When we do receive our number we will of course let you all know!

We have 5 members on our Board of Trustees including an accountant, a serious injury solicitor and 3 CRPS sufferers. You can have a look at them on our Donations page.

 

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MONEY RAISED

On the day of our Meet & Greet we not only had our products that we sell on our website to buy, we had our unisex T-Shirt from our T-Shirt campaign TBOOM which you buy direct from TBOOM themselves. This is the link -> www.tboom.co.uk/burning-nights-crps-support

We also had some beautifully made CUPCAKES, designed and made by LARISSA RALPH, so thank you so much Larissa and to everyone who purchased one!

If you would like to make a donation to us at Burning Nights so we can continue to raise awareness and become a sustainable and great charity to support sufferers, carers, families and loved ones of CRPS sufferers, please visit our DONATIONS page – Thank You!

Finally we had a RAFFLE with some 19 prizes overall including a gorgeous piece of art created by NATHALIE SHERIDAN at NATHALIE SHERIDAN ART Please visit our Fundraising Ideas & Tips page for more information about Nathalie.

We raised £489 overall on the day – which is a FANTASTIC amount!

Thank You all very much for buying raffle tickets, cupcakes and our products!

 

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CURRENT FUNDRAISERS

LISA DAVIS

Lisa has raised up to today £1,000 which is an absolutely staggering amount of money for CRPS awareness and for Burning Nights CRPS Support! On 2nd November or Colour The World Orange Day, Lisa had her lovely beautiful hair all shaved off to nothing!

If you’d like to support Lisa, she still has her Go Fund Me page going until 30th November! So there’s still chance for you to donate even just £5. Here is the link you need -> www.gofundme.com/lisasbigshave 

Thank You so much Lisa for what you are doing to help raise awareness of CRPS and for Burning Nights CRPS Support!

isa Davis before and After

Lisa Davis Before and After!

 

SCOTT NORLEY

Scott has already begun his 3 month sponsored beard grow. He has raised £160 so far, which is just fantastic! Please do sponsor Scott as he will be raising money until January and will close his Go Fund Me page in January. So you’ve got plenty of time to help show your support to Scott. Here’s the link to his Go Fund Me page -> www.gofundme.com/8e6y6xqk

Thank You Scott and Good Luck with your beard grow!

 

PETE LACEY

Pete and his wife have organised a CURRY NIGHT in Essex at the Maharaja Restaurant, Benfleet, Essex on 27th November. There will be a raffle as well with some prizes donated by local businesses, which is great! The local MP; Rebecca Harris will be going as well as the Mayor hopefully. If you’d like to go along, this is the link on Facebook that you need -> www.facebook.com/events/1615254492071770/

 

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 Burning Nights Meet & Greet event - Sponsorship

 

SPONSORSHIP

As we promised in our last blog and as we explained at the Meet & Greet event, IRWIN MITCHELL solicitors have agreed to come on board and become 1 of our main sponsors, which is just great news! They have decided that not only will they give us sponsorship but will also amongst other things help us begin Local Support Groups around the country, starting with a pilot group in Manchester. Irwin Mitchell’s are allowing us to use their office space mainly after 5pm for local support groups. This is a great opportunity to actually regularly meet other sufferers face to face to chat, swap tips and gain support from others with the same condition as you. At the beginning we will be holding support groups for sufferers and then eventually for carers, families, friends and loved ones.

** If you would like to come along to the support group in Manchester please send us an email and let us know or send us a message via our CONTACT US form. Our email address is info@chronicpaincrps.com

1 of Irwin Mitchell’s solicitors are also joining the board of Trustees of Burning Nights when our charity registration has completed. Altaf Patel is a serious injury solicitor and will be a great asset and support to us.

 

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MANCHESTER TOWN HALL

Manchester Town Hall agreed to change their building lights to orange for 1 day only on MONDAY 23rd NOVEMBER 2015 in support of CRPS awareness, which was great news! Here are some fabulous pictures taken by 1 of Burning Nights CRPS Support’s followers and by a professional:

Manchester Town Hall prof7small 1

Manchester Town Hall turned orange on 23 November 2015

 

Manchester Town Hall prof3small

Manchester Town Hall on 23 November 2015

 

Manchester Town Hall Nov 15 orange

Manchester Town Hall 23 November 2015 for CRPS awareness month

 

Manchester Town Hall Nov 15 orange

Manchester Town Hall 23 November 2015 for CRPS awareness month

 

Manchester Town Hall Nov 15 orange

Manchester Town Hall 23 November 2015 for CRPS awareness month

Manchester Town Hall Nov 15 orange

Manchester Town Hall 23 November 2015 for CRPS awareness month

 

Manchester Town Hall Nov 15 orange

Manchester Town Hall 23 November 2015 for CRPS awareness month

 

Manchester Town Hall Nov 15 orange

Manchester Town Hall 23 November 2015 for CRPS awareness month

Thank you all so much for coming along to this year’s conference; the Burning Nights CRPS Support Meet & Greet event! We would also like to say a very big THANK YOU to the Birmingham Marriott Hotel, Birmingham for hosting our Meet & Greet event on Saturday and to all of the lovely staff who helped us on the actual day and the day before. We really hope you all had a fabulous day and that you took away a lot from it. We will be sending you out a quick feedback questionnaire, if you’d like to fill it in please. If not please email us your thoughts and comments on the day to info@chronicpaincrps.com If you’re in or near Manchester and would like to come along to the pilot support group at the offices of Irwin Mitchell solicitors, please send us an email to the same email address. 

 

Last Updated: 09/02/2016

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About the Author
I'm a barrister, advocate & sufferer of Complex Regional Pain Syndrome (CRPS). I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS. However I want to help all those affected by this devastating condition which includes those living with CRPS, their loved ones, families, carers and friends. Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!
  1. Christine Fleming Reply

    Well done VICTORIA an exceptional day here to many more it wil not be long before the charity gets its number. Xxxxxx

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