Over the weekend of 2nd May 2015, the story of the Burning Nights – CRPS Support creator happened to feature in several online newspapers and websites. The 2 popular daily UK national newspapers were; the Daily Mail/Mail Online UK national newspaper and the Mirror Online UK national newspaper. It also featured in Wales Online and the UK online magazine called SHINE!
Media Coverage for CRPS/RSD – Hot news!
This was great coverage for bringing CRPS/RSD to the forefront of the media and the general public. Many people have contacted Burning Nights asking about CRPS/RSD, what it is and how it affects sufferers. We also received messages from sufferers in all corners of the globewhich was great as we managed to reach CRPS/RSD sufferers who had not previously found too much information in their own countries.
There were just a couple of factual errors that had been made, namely that I am a double above knee amputee not belowknee and have been battling CRPS/RSD for 12 years not 3 years.
Here are the links to the story that has appeared in the media recently:
LEGGILO.NET – Cipro, Fabiana. 2nd May 2015, ‘E’ Stata una Banale Caduta dalle Scale, Oggi sono Senza Gambe,’ Available from: <http://www.leggilo.net/154831/e-stata-una-banale-caduta-dalle-scale-oggi-sono-senza-gambe.html>
FOX NEWS USA – Fox News.com 7th May 2015 ‘Woman has legs amputated after suffering a scratch,’ Available from: <http://www.foxnews.com/health/2015/05/07/woman-has-legs-amputated-after-suffering-scratch/>
If any more media coverage for CRPS/RSD occurs then Burning Nights will include them here. Media coverage is important to raise awareness of this terrible condition CRPS/RSD and will hopefully raise the profileand remove the stigma from it to enable the NHS and the various health systems around the world to improve the time of diagnosis and to put more funds into research so a cure or specific CRPS/RSD treatment can be found. Please feel free to share any of the links on social media or to make any comments you may have below.
I'm a barrister, advocate & sufferer of Complex Regional Pain Syndrome (CRPS).
I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS.
However I want to help all those affected by this devastating condition which includes those living with CRPS, their loved ones, families, carers and friends.
Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!