Burning Nights orange side version
3rd Annual National Burning Nights CRPS Support Conference

3rd Annual National Burning Nights CRPS Support Conference

3rd Annual National Burning Nights CRPS Support Conference

 

The Burning Nights CRPS Support FREE-to-attend 3rd Annual National Burning Nights CRPS Support conference event is on 4 November 2017!

 

3rd Annual National Burning Nights CRPS Support Conference

3rd Annual National Burning Nights CRPS Support Conference

 

Due to the fantastic successes of our last 2 Annual Burning Nights CRPS Support conference events in 2015 and 2016, our 3rd annual national CRPS conference is taking place on Saturday 4th November 2017 and due to popular request it will be held in the South at the Marriott Bexleyheath, Kent.

 

Watch our brief 5 minute highlight video on what went on during our Inaugural Burning Nights CRPS meet & greet :

Our last year’s Burning Nights CRPS Support annual national conference was held at the Manchester Marriott hotel in September 2016. Check out the 2 minute highlight video of what went on:

 

 

Not interested in watching our videos, then why not read our 2nd Annual Burning Nights CRPS Meet & Greet Conference blog or check out our Inaugural Burning Nights CRPS Meet & Greet blog as well?!

HOW TO GET YOUR FREE TICKETS
If you are interested in coming along to our 3rd Annual National Burning Nights CRPS Support Conference please visit our 3rd Annual National CRPS Conference event page. Fill in the details in the RSVP section which you can find underneath the event details and the map. Your tickets will still be FREE.   

 

 

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DETAILS:

DATE: Saturday 4th November 2017

TIME: Starting at 9.30am and finishing around 4pm (You are free to come and go as you like)

COST: FREE!!

WHERE: Marriott Bexleyheath hotel, 1 Broadway, Bexleyheath, DA6 7JZ

LUNCH & REFRESHMENTS: Both lunch (sandwiches including vegetarian option, salad bar and fries) and refreshments are FREE for you during the day’s event.

 

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SPEAKERS:

This year we have 4 confirmed speakers who are:

Mr James FitzGerald, Neurosurgeon, Oxford – ‘Dorsal Root Ganglion Stimulators for Complex Regional Pain Syndrome (CRPS)

3rd Annual National CRPS Conference | Speaker | Mr James FitzGerald

3rd Annual National CRPS Conference | Speaker | Mr James FitzGerald

Mr FitzGerald is a neurosurgeon who regularly implants the Dorsal Root Ganglion stimulators for CRPS sufferers. James FitzGerald is a Consultant Neurosurgeon at the University of Oxford and John Radcliffe Hospital, Oxford. He studied Physics at Oxford University, graduating in 1992, then Medicine, also at Oxford, graduating in 1998. He obtained a PhD in neuroelectronic interfacing at the University of Cambridge in 2010, before returning to Oxford to take up his present position in 2012. His work focuses on implanted electronic devices that interface directly with parts of the nervous system. Clinically he specialises in implanted neurostimulator devices, such as Deep Brain Stimulators, Spinal Cord Stimulators, and Dorsal Root Ganglion Stimulators for conditions including Parkinson’s disease and chronic severe pain.

 

 

 

Dr Chris Jenner, CRPS Specialist, London – ‘An overview of Complex Regional Pain Syndrome and the available treatment options

3rd Annual National Burning Nights CRPS Support Conference | Speakers | Dr Chris Jenner

3rd Annual National Burning Nights CRPS Support Conference | Speakers | Dr Chris Jenner

Dr Jenner is from the London Pain Clinic. As a leading Consultant in Pain Medicine and Anaesthesia, Dr Christopher Jenner MB BS, FRCA FFPMRCA has expertise in treating a host of chronic and acute pain disorders, particularly musculoskeletal pain, neuropathic pain and CRPS, he is well renowned as the go-to doctor when pain is the barrier to rehabilitation.

Dr Jenner’s reputation as a pain clinician and the outstanding results he achieves in the management of chronic pain, CRPS and fibromyalgia, sees patients fly to London from around the World to be treated by him. He runs an NHS clinic in a leading London hospital and is an honorary lecturer for Imperial Healthcare Trust. He also has a private clinic, the London Pain Clinic, in Harley Street and the Weymouth Street Hospital in central London.  As a leader in his field, Dr Jenner is regularly called upon to appear as an Expert Witness in complex medico-legal cases.

Why not read read Dr Jenner’s article on Removing the Complexity of CRPS in Medico-Legal Cases in our blog?

 

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Chris Edwards, Motability – ‘The Motability Scheme

Our 3rd confirmed speaker is Chris Edwards from Motability who will be speaking about the Motability scheme, how it works and adaptions that can be done on your car using the Motability scheme.

 

Rob Warren, Clinical Director of Plexus Healthcare – ‘How best to use your OT – What they do and what they can do for people with CRPS

3rd Annual National Burning Nights CRPS Conference | Speaker | Rob Warren Occupational Therapist

3rd Annual National Burning Nights CRPS Conference | Speaker | Rob Warren Occupational Therapist

Rob Warren has worked within health and social care for the past 20 years, initially working as a care assistant working with adults with profound physical and learning disabilities. He progressed to working in a day centre for people with physical and mental health difficulties and this led him to move into occupational therapy in 1996.

Rob qualified as an occupational therapist in 2002 gaining a BSC Honours degree from London South Bank University. During his qualifying studies Rob developed a keen interested in neurological occupational therapy, pursuing this interest, he worked for the NHS for 10 years specialising in neurological occupational therapy in both acute, community and specialist services.

Rob’s final position within the NHS was as the lead occupational therapist and Clinical Specialist for Stroke and Neurology.

Rob has been a regular guest lecturer for Essex University on both the BSc and MSc Occupational therapy courses and has been a clinical member of the Essex Cardiac and Stroke Network which actively works towards the promotion of good practice throughout the county.

Rob now works as Clinical Director and Independent Consultant Occupational Therapist for Plexus Healthcare and provides expert support, knowledge and experience for people with neurological impairments.

 

CRPS CARERS & SUFFERERS SPEAKERS

We have 2 CRPS sufferers giving us a short talk about their lives living with CRPS:

  • Maddie Gordon – Maddie will be talking about her journey as someone living with Complex Regional Pain Syndrome
  • Lisa DavisLisa is a trustee for Burning Nights CRPS Support charity and will be talking about her life as a CRPS sufferer facing an amputation

If you’re interested in speaking at our 3rd Annual National Burning Nights CRPS Support Conference please get in touch with us and let us know.

 

HOW TO GET YOUR TICKETS:

Please click on the 3rd Annual National Burning Nights CRPS Support Conference event link which will take you to our events page and complete the RSVP box underneath the event and map and fill in the following information:

  • how many tickets you would like,
  • your name,
  • email

If you are in a wheelchair once you have filled in the RSVP section please contact us and let us know you’ll be coming in a wheelchair.

The conference is now FULL however we have a Cancellation list running, which you are free to put your name down along with the number of tickets you would like and an email to contact you.

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RAFFLE:

Just as in previous years, we will be holding a raffle!  We are also holding an auction for 2 items which have been generously donated by 2 Premiership Football Clubs – Manchester United and Arsenal.

 

** Are you part of a business or company? If you are part of a large company, high street shop or you own a business and would consider kindly donating a prize to our raffle, please contact us! All the money raised on the day will go towards the charity.**

 

PRIZES SO FAR:

THANK YOU to all the companies and individuals who have kindly donated the following prizes for the raffle:

  • CDs and books by Dr Beth Darnell – Dr Darnell has kindly sent us some binaural relaxation audio CDs, ‘Opioid-Free Pain Relief Kit’ books and a ‘1 Less Pain, Few Pills’ book. If you wish to have a look at the books and CDs Dr Darnell has written and are for sale please visit her website -> Beth Darnell PhD
  • 2 tickets for a Days Play for one of the Lancashire Home Domestic Matches (excluding T20 and International matches) at Emirates Old Trafford, Manchester for the 2018 cricket season. Kindly donated by Lancashire County Cricket Club
  • Male and Female hamper kindly donated from Avon
  • 3 course meal for 2 voucher generously donated from Pizza Express
  • Hamper kindly donated from Tesco, Whaley Bridge
  • Sainsbury’s sandwich toaster
  • Russell Hobbs hand mixer
  • 4 x £25 Gift Vouchers – kindly donated by Burning Nights CRPS Support Patron – Fiona Ashworth
  • Small bottles of wine and beer
  • Royal Jelly products
  • Small leather purse

 

AUCTION

We have 2 generously donated items that we will be auctioning off on the day of the conference! Those attending the conference will be able to bid for these items on the day. Payment MUST be made in full on the day and items won’t be released until payment has been received. You are able to pay for these items either by cash, PayPal or bank transfer.

  • SIGNED MANCHESTER UNITED PENNANT – This pennant has been signed by 4 members of the Manchester United players – Daley Blind, Phil Jones, Jesse Lingard and Marcus Rashford –  Reserve price £25 bidding for the Manchester United pennant will begin at £25

 

3rd Annual National Burning Nights CRPS Support Conference - Auction - Manchester United pennant

3rd Annual National Burning Nights CRPS Support Conference – Auction – Manchester United pennant

 

  • FRAMED SIGNED ARSENAL PHOTOGRAPH – This photograph has been signed by members of the First Team Squad of Arsenal football club (Certificate of Authenticity along with the photograph) – Reserve price £50bidding for the framed signed Arsenal photograph will begin at £50

 

Burning Nights CRPS Support 3rd Annual National CRPS Conference - Auction - Arsenal signed and framed photo

Burning Nights CRPS Support 3rd Annual National CRPS Conference – Auction – Arsenal signed and framed photo

 

If you would like to stay at the hotel, their direct phone number is 020 8298 1000. If you book online why not sign up for Easy Fundraising and help us raise FREE donations just by booking your hotel online or buying anything online!

3rd Annual National Burning Nights CRPS Support Conference

3rd Annual National Burning Nights CRPS Support Conference

If you would like to reserve your free tickets please visit our 3rd ANNUAL NATIONAL CRPS CONFERENCE event and fill in the RVSP. If you have any questions or you can contact us by email, phone or on social media.

We look forward to meeting you all there for our 3rd Annual National Burning Nights CRPS Support Conference on Saturday 4th November 2017!

 

Last Updated: 30/10/2017

LET’S SPREAD AWARENESS of CRPS! Burning Nights orange side version

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About the Author
I'm a barrister, advocate & sufferer of Complex Regional Pain Syndrome (CRPS). I am also a bilateral (double) above knee amputee due to aggressive symptoms of CRPS. However I want to help all those affected by this devastating condition which includes those living with CRPS, their loved ones, families, carers and friends. Please help spread awareness of this debilitating and life-changing condition - CRPS. We need your support!
  1. Emily Willie Reply

    Hi, I have a fairly new diagnosis of CRPS and would find this conference very beneficial!!

    Could I please request 2 tickets (1for myself and 1 for my Mum) if there is still some availability?

    Thank you, look forward to hearing from you.

    • Victoria Abbott-Fleming Reply

      Hi Emily
      Thank you for your post and I’m sorry to read of your new CRPS diagnosis 🙁

      I can organise that for you. The 2 tickets will come to the email address you have supplied with this comment.
      Many thanks and look forward to meeting you and your mum!
      Best Wishes
      Victoria

    • Victoria Abbott-Fleming Reply

      Hi Emily
      I have just sorted that out for you and your mum. Your tickets will come to your email, if you want to check your inbox and if it’s not in there please check your junk/spam box as it may be in there.
      Best Wishes
      Victoria

  2. Dannie Reply

    Hi Victoria just seen this ( on Facebook, through buddies page) and it’s not too far away from me, are there any tickets left please, I would be needing 2 if there is pls. Thanks.

    • Victoria Abbott-Fleming Reply

      Hi Dannie
      Thank you for your message regarding tickets for the 3rd annual national CRPS conference. Unfortunately we are now full, however we can add your name to the cancellation list for 2 tickets if you’d like?
      Best Wishes,
      Victoria

  3. Alice Reply

    Hi Victoria, I’ve got 2 tickets reserved in the name of Alice Lyons, I’ve just noticed that you need to know wheelchair users. I will be in a wheelchair. Thankyou Alice

    • Victoria Abbott-Fleming Reply

      Hi Alice

      I will add it to the list thank you for letting us know.
      Many thanks,
      Victoria

  4. Roz Reply

    Will there be any conferences or meet up in the south-west for those who can’t make it all the way to Kent?

    • Victoria Abbott-Fleming Reply

      Hi Roz
      We have a support group at Bristol/Bath area that has been running over a year. Would you be able to get to this area?
      Many thanks
      Victoria and team

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