Contact Us

Joanne's CRPS Story

Joanne's CRPS Story

Joanne's CRPS Story

Sharing your Complex Regional Pain Syndrome journey can help you learn to cope with the condition. In this blog we discover Joanne’s CRPS story.

Please Remember You are not alone

My story goes back to 2009 when I started to experience excruciating pain in my right hand and wrist.  I had numerous appointments with my doctor who thought it could be Carpel Tunnel Syndrome or RSI so I was referred to the hospital for tests, but the results for both came back normal.

I believe that my condition stemmed from when I had a car accident around 14 years ago and was off work for 5 months with severe whiplash.  I was told at the time that I would suffer later on in life, but certainly didn’t expect this.


Thankfully my doctor at the time had experience with pain management so was able to diagnose me with Complex Regional Pain Syndrome (CRPS).  He advised me to do some research on this as it was quite complex, which I did and I had a lot of the symptoms.

Joanne's CRPS Story

I was under the care at our local hospital in Wakefield, but I am now under the care at another hospital which is out or our area in Bradford.  Over the years I have received guanethidine blocks, stellate ganglion block and epidural injections.  I have been on numerous medications including gabapentin, pregablin, nortriptyline, buprenorphine patches all which didn’t have any effect on the my pain, which by this time was getting a lot worse.


I have found with this condition that my personality has changed I feel that I am not as outgoing as I was, I get angry when things do not go well and I am having to rely on my family to help me with cooking, cleaning etc.  I struggle day to day when the pain is really bad as from the outside I look fine but inside I am suffering and it is hard explaining what the matter is with me.  I also suffer with sleep when the pain is bad.

Over the years the pain has gradually moved up my right arm and in to my left arm and neck.  However, in 2014 I was granted funding to have a spinal cord stimulator fitted, which was the last resort for me.  I trialled it for 2 weeks prior to having it fitted which was a god send, the pain wasn’t half as bad.  I finally had it fitted in April 2014 which was such a relief, but later on in the year they had to relocated as the wires where close to my spine and causing more pain.


My back is covered in scars from the various operations.  The stimulator covers my right arm but recently I have had it so that it covers both arms.  At the end of 2015 I was diagnosed with vestibular migraines which means I have pain in my neck but not my head, these are terrible when they flare up.

I am waiting for some more injections into my neck hopefully to help with the migraines if not my specialist is looking at inserting another stimulator to help with the constant pain that I am in.

I am very grateful to sites like this as it means that I am not alone and there are others who suffer with chronic pain.


I still manage to work full-time and go the gym with my partner.  Both my partner and daughter have been fantastic as my condition has affected not just me but us as a family but we are all still going strong.

I hope that my story will help other fellow sufferers.

Joanne from Wakefield

CRPS Journey

Thank You very much Joanne for telling your CRPS story so far and how you cope in daily life. Please remember that you are not alone in this battle, we as a charity are here to help and support you when you need us. How do you cope with your Complex Regional Pain Syndrome (CRPS) on a daily basis?

November is CRPS awareness month and we are looking for more CRPS stories to share with you on our website, to show that you’re not alone either living with this horrific chronic condition or that you live or love someone with CRPS.

If you’d like to share your CRPS story with us, please get in touch with your story (maximum 1000-1250 words) and a couple of photos that we can share to show how people have been affected by Complex Regional Pain Syndrome. Visit How to share your personal CRPS stories to find out more. We’re here to support you!

Read Other CRPS Stories

If you would like to read some other stories of living with CRPS, here are a few for you take a look at:




Registered in England & Wales.
Registered Address: 1 Alder Brook, Chinley, High Peak, Derbyshire SK23 6DN.
Registered Charity No. 1166522
Copyright 2024. Burning Nights.
All Rights reserved.
Site by Calm Digital
Back To Top

We use cookies to improve your experience. By accepting you agree to our cookie policy

Accept Cookies

Cookie Preferences

This website uses the following types of cookies: