OUR STORY
Burning Nights CRPS Support began as a fairly small UK non profit organisation to help those affected by the chronic pain condition; Complex Regional Pain Syndrome (CRPS.) It is now a fully registered UK charity dedicated to CRPS.
The idea of the website and organisation was thought of by the Founder and Chair of Trustees for the charity; Victoria Abbott-Fleming. Victoria has suffered with CRPS since an accident at work in 2003 and during the time she has had CRPS, she has needed both her legs to be amputated above the knee due to aggressive and extreme symptoms of CRPS. You can read Victoria’s story on her Founder’s page in our website. So how exactly did Burning Nights all begin?
BIRTH of BURNING NIGHTS CRPS SUPPORT
Burning Nights CRPS Support began as the title for Victoria’s, the founder and chair or trustees, autobiography that she is currently trying to get published and has been writing for a few years now. The actual words for the title for the book was because of the burning pain from the CRPS that she felt as a sufferer, along with thousands of other CRPS sufferers and because it burnt more at night after the day was over and things calmed down. So the name ‘Burning Nights’ it was! After Victoria was told in July 2014 that it was very likely she would need her 2nd leg amputated because of the aggressive and severe symptoms she had, she decided that she wanted to create an awareness website for CRPS sufferers in the UK and worldwide. Before this point in her time with the condition, Victoria had been far too poorly and in hospital so much that there was no possible way that she could do what she wanted to do to help other sufferers and their families, friends, carers and loved ones. The website, social media and content was finally up and running on 1st September 2014. So this was how Burning Nights CRPS Support began.
OUR LOGO
However we now needed a logo! This proved to be very tricky indeed as we wanted something that wasn’t just the standard orange awareness ribbon that most non-profits and charities use. The design was created by LINDSEY McCORMACK in Phoenix, Arizona USA. Lindsey is a fantastic graphic designer who does work for clients corporate, non-profit and charities both in the USA and worldwide, making her an exceptional person to go to in the need of designs! You can see her design work on her DRIBBBLE PROFILE PAGE (dribbble.com/lamccormack) Lindsey gave us the logo and all the copyright to it, which meant that we could copyright our beautiful logo here in the UK, which is what we have now.
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THE BEGINNING OF BURNING NIGHTS CRPS SUPPORT
When Victoria finally found a great web design company to help her fulfill the task of setting up the website, she wasn’t disappointed in her eventual choice after some problems not concerning the company. The content for the website was written and one of the main aims for the website and for more importantly Burning Nights, is that the everything is evidence based and is as up to date as possible. This is a philosophy of Burning Nights is to ensure that you, the reader, can be reassured that the information we give out is accurate and current.
Products and awareness leaflets were added to the website along with an online community forum where sufferers as well as loved ones, family members, friends and carers can go and chat with others like you who have lived with the condition and who are going through life with Complex Regional Pain Syndrome (CRPS). Burning Nights became a non-profit organisation and we didn’t realise the actual desperate need for our website, information and products from sufferers, family members, and friends as well as the need from the medical professionals themselves.
The social media side of Burning Nights CRPS Support grew and grew and now we have a great set of admins as well as 3 of the charities’ trustees who really get involved and who want to help others cope and deal with the condition either as a sufferer or a loved one or family member. Here are the links the our social media pages:
BURNING NIGHTS CRPS SUPPORT ARE DOING A GREAT JOB! I have just been thinking about Burning Nights and how many people you are helping with your news and advice that you always give. You have a global reach for your site and look at how many people you have helped and provided support to. Burning
